Our Mission

The Gwendolyn Strong Foundation (theGSF) is a nonprofit organization dedicated to increasing global awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, accelerating research focused on ending this cruel disease, and supporting families impacted by SMA and other life-altering conditions. theGSF is an all volunteer organization, meaning 100% of your donation goes toward fulfilling our mission.

Research. Awareness. Support.

For more information about SMA, CLICK HERE >>

The Beginning

theGSF was born out of Bill and Victoria Strong’s firsthand experience with their daughter, Gwendolyn, who was diagnosed with SMA Type I at 6-months-old. Their passion to make a difference quickly grew well beyond just two people and within a short time theGSF and its supporters were having a material impact on SMA. theGSF is the Strong family, is families around the globe affected by this devastating disease, is other SMA organizations collaborating together, is people who want to change the future of the leading genetic killer of young children.

To read more about Gwendolyn, CLICK HERE >>

Newly Diagnosed?

If your child has been newly diagnosed with SMA, please click for more information. You have several care and support options and we are here to assist you.


Are You a Carrier?

1 in every 40 people unkowingly carry the SMA gene. Most have no family history of the disease and no signs during pregnancy. Find out more about SMA carrier testing.