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I am Happy.

September 14, 2017 by Victoria Strong

Gwendolyn drew this. It was her first-grade self-portrait. She chose to include her bipap, her butterfly bow, her long hair and a striped shirt. She also chose the words, "I am happy." This was all Gwendolyn. No guiding or pushing in this direction. Other kids chose things like "I am a...

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Life in the In-Between

April 23, 2017 by Victoria Strong

Life is moving pretty fast these days. Days are full. Nights are foggy. Sleep is limited. And I've been living in the in-between, where illusion and reality blur. I've been here before. Life in the in-between.

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Carrier Screening, Newborn Screening and Why Expanded Access Matters

March 11, 2017 by Victoria Strong

We are so pleased that in their March 2017 publication, the American College of Obstetricians and Gynecologists (ACOG) published two Committee Opinions recognizing expanded carrier screening. Specifically and for the first time, spinal muscular atrophy (SMA) is now recommended to be offered to...

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A New Little Sister: Willa Gwendolyn Strong

January 15, 2017 by Victoria Strong

I love birth stories. No matter how long ago, a mother beams as she recounts that special day. Every detail seared into our mothering bones. Regardless of how the child arrived, the day you first hold your precious baby becomes a fingerprint on both of us. Our child’s first story. Our first...

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Gwendolyn’s Birth Story

January 08, 2017 by Victoria Strong

Gwendolyn DeBard Strong was born the morning of October 4th, 2007. It had been a warm autumn, with me wearing tanks and skirts most of the pregnancy. We had recently purchased our first house, a sweet 1921 Craftsman right in the middle of Santa Barbara, and spent my pregnancy moving in, fixing...

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