SMA Community Grants
The next grant cycle will begin in the Fall of 2018. You can still apply now so your application can be reviewed.
At theGSF, we fully understand how life-altering a Spinal Muscular Atrophy (SMA) diagnosis can be. It impacts every aspect of life -- and the SMA journey can be extremely challenging. Specifically financially.
There is a common belief that health insurance and other resources (federal, state, local) jump to the rescue to cover all costs associated with a diagnosis as severe as SMA. Unfortunately, even with complete coverage and full services, public resources don't even come close and are often far from meeting a family's needs. Costs can be astronomical and it can feel overwhelming.
We are here to help. The Gwendolyn Strong Foundation's "SMA Community Grants" program will make financial grant contributions toward uncovered, tangible expenses associated with the challenges of SMA. While we can't fund projects in their entirety, we can help families reach their fundraising goals and hopefully feel less stress in getting their child or themselves what they need so they can live life to the fullest.
SMA Community Grants will range from $250 to $2,500. Our online application process is simple. Grants will be considered and selected on a rolling basis, no deadline. All grant purposes will be considered, but some examples of categories that we're specifically interested in funding include:
- Wheelchair repairs or modifications
- Home modifications
- Accessible vehicles
- Standers, specialized wheelchairs, etc.
- Assistive technology
- Funeral expenses
Because expenses are so great, we ask that applicants are concurrently raising money for themselves through local community fundraisers. Friends and family can be doing this on your behalf. You will be asked to include a link or flyer to your personal fundraising efforts, how much is needed, and how much has already been raised. Our goal through SMA Community Grants is to help fill in those gaps for uncovered expenses.
WHY SMA COMMUNITY GRANTS PROGRAM IS NECESSARY?
Simply, SMA creates an enormous and unexpected financial burden on families.
- In general, insurance companies will purchase a wheelchair for a child. However, they usually will only do so every 5 years. Can you imagine your 7-year-old child having to wear the same shoes he had at 2? A growing child also needs growing equipment, regular modifications and adjustments -- all of which are not covered by insurance.
- A family finally has a wheelchair and are ready to take on the world. But how do you get a 300+ pound wheelchair into a car? A wheelchair accessible vehicle with a ramp is a must. But, these specialized vehicles start at around $50,000. Insurance and federal resources do NOT cover one dime!
- Home modifications. Again, insurance and public resources do not pay for permanent ramps, widening hallways, accessible bathtubs/showers, or other necessary changes needed for accessibility in one's home. These are not luxury items. They are safety and accessibility realities.
Your donations allow the Gwendolyn Strong Foundation to help families in enormous need.