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Mother’s Day for Amanda

May 15, 2012 by Victoria

I spent Mother’s Day holding Gwendolyn. She was especially snuggly that day... or she knew that I needed her cuddles.

We learned early Sunday morning that our dear friends Marcela and Juan lost their beautiful daughter Amanda. Amanda had SMA. She was only 21-months-old.

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Project Mariposa :: {WEEK FIFTEEN} Grants #36 - 38

May 11, 2012 by Victoria
Project Mariposa :: {WEEK FIFTEEN} Grants #36 - 38

Project Mariposa {WEEK FIFTEEN}. In honor of Mother's Day, today's Project Mariposa grants are going to three very deserving mothers. Being a mother is difficult. Being a mother with SMA brings an entirely new set of challenges: lifting your child up, going to a park with uneven flooring, chasing...

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Project Mariposa {Month THREE} Recap: Grants #32-35

May 11, 2012 by Victoria
Project Mariposa {Month THREE} Recap: Grants #32-35

Each Friday, we announce the newest Project Mariposa grantees on theGSF Facebook Fan Page. We love Fridays and are always so excited to share each person's story. So if you missed them, here are the most recent grant recipients. Meet Project Mariposa grant recipients #32 to #35:

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Mud Run Complete

May 10, 2012 by Victoria
Mud Run Complete

Mud. Obstacle courses. Being fierce and ferocious. Screaming our warrior cry. Feeling empowered. Kicking some SMA butt with some killer SMA moms. Survivor Mud Run = Complete.

When I committed to doing the Survivor Mud Run, it was on a whim. But this experience was definitely a powerful one --...

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SB Marathon: Join Team GSF

May 07, 2012 by Victoria

So you want to be part of Team GSF in the Santa Barbara International Marathon, Half Marathon, or Relay? AWESOME! We are continually inspired by those who push their physical strength to the limits to help conquer a disease that robs children of theirs. Whether this is your first race or you...

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