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$25,000 Raised in New Year Gala in Honor of Taysen

January 29, 2015 by Victoria
$25,000 Raised in New Year Gala in Honor of Taysen

The PRAYING FOR A MIRACLE NEW YEARS EVE GALA in Lynden, Washington was a huge success. Inspired by 10-year-old Taysen and his positive attitude, this selfless community turned the typical New Years Eve fun into a night of CHANGE. Over 300 people rang in the New Year for a good cause, raising...

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Eleanora, our Rainbow Baby, Turns ONE

January 19, 2015 by Victoria
Eleanora, our Rainbow Baby, Turns ONE

Our silly Eleanora turned ONE today. And, oh, what a year it has been! A magical, wonderful, challenging, learning, growing year it has been as a new family of four! Eleanora is joyful and silly, curious and eager, and in all her tininess brings levity to the unrelenting ravages of SMA and our...

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Announcing our 2014 Emerging Investigator Award Finalist Grantee

January 07, 2015 by Bill Strong

We are extremely excited to announce our Finalist Grantee for the 2014 "FightSMA/Gwendolyn Strong Foundation Emerging Investigator Awards" program: Dr. Barrington G. Burnett, Assistant Professor, Department of Anatomy, Physiology and Genetics, Uniformed Services University of the Health...

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Never Give Up Song

January 05, 2015 by Victoria

We are so excited. Musician Hannah Williams wrote and recorded this wonderful song: Never Give Up -- and 100% of the purchase is being donated to the Gwendolyn Strong Foundation.

She wrote it for us. For the SMA community. To inspire. To be part of the change. And we think it's beautiful --...

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‘Ice Bucket’ Donations Put More Hands in the Lab for SMA

November 19, 2014 by Bill Strong
‘Ice Bucket’ Donations Put More Hands in the Lab for SMA

We're proud to announce the creation of the Gwendolyn Strong Foundation Research Scholarship and its first $10,000 grant to Dr. Lyndsay Murray's SMA lab at The University of Edinburgh.

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