Little Miss Eleanora just turned six months old. How quickly time is moving and in our house the six month milestone is a pretty darn big thing. Six months is a blessing. A milestone most recognize as just a step closer to the big one year mark. But six months in the SMA world is something...Read More >>
Sometimes the good in the world is just what we need. On a whim, we stopped at Full of Life Flatbread in the tiny town of Los Alamos and talked with people we will likely never see again. But their generosity and random acts of kindness brightened our spirits. On this journey with Gwendolyn,...Read More >>
We have been doing a lot of this after our trip up to Stanford this week. Gwendolyn deserved some relaxation -- we all did. So a few days swimming in Carmel is just what the doctor ordered. Our Stanford visit did bring some possible answers -- though not great news.
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I am the mother of two. I can hardly believe this myself. Celebrating yesterday with my two gorgeous girls was more than I could have dreamed. Before choosing to have another child, I knew to juggle the needs of two I would have to do some major letting go of many of the tasks that I felt...Read More >>
We are extremely excited and proud to announce our 2014 Emerging Investigator Awards grantees: Barrington Burnett, Ph.D., Uniformed Services University of the Health Sciences, Sara Custer, Ph.D., Indiana University School of Medicine, and Faraz Farooq, Ph.D., Children’s Hospital of Eastern...Read More >>