Last Wednesday, the National Pediatric Research Network Act (NPRNA) was officially signed into law by President Obama. This is a momentous milestone, is a major cause for celebration for the inspiring SMA community... And, for us personally, passage of this legislation feels like a triumph that...Read More >>
Today we are granting TEN iPads, yes 10! Thanks to the generous support of Jadon's Hope Foundation, today ten more lives will be changed. Congratulations to all the incredible recipients. We can't wait to hear how your new iPad opens your wings and makes your world more accessible.
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We’re absolutely thrilled to announce a very generous $10,000 donation from Jadon’s Hope Foundation in direct support of our Project Mariposa iPad grant program. That’s 20 more iPads going to 20 very deserving grantees. And that’s 20 more lives changed. Literally.
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80 inspiring runners + 25 generous sponsors = $90,000 raised! Which allows us to fund more RESEARCH, grant more IPADS, create more unique AWARENESS, and more effectively ADVOCATE.
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June Marie Howsden was born to Chris and Molly Howsden, and big sister, Virginia, in 2009. June came into the world struggling, born with Type 0 Spinal Muscular Atrophy, the most severe form of the disease, had stopped moving in utero, and had to be intubated to help her breathe at birth. But she...Read More >>