Project Mariposa

"Project Mariposa" is an initiative of the Gwendolyn Strong Foundation (theGSF) with a simple mission: to make the world more accessible to those with severe disabilities through targeted technology product grants. Mariposa is butterfly in Spanish -- theGSF's signature symbol -- and like a butterfly emerging from it's cocoon, Project Mariposa will help those with disabilities to spread their wings.

Project Mariposa will initially focus on granting iPads to those impacted by Spinal Muscular...

“Say Hi! AAC” iPad Communication App

"Say Hi! AAC" is an augmentative and alternative communication (AAC) and navigation iPad application that brings the world of basic communication to people with severe physical disabilities, limited movement, and/or challenged dexterity.

Install Say Hi! AAC on your iPad and create pages with groups of words or phrase boxes. A page can contain up to nine boxes and a box can have any combination of words, phrases, pictures, or recorded sounds. It's completely customizable to suit your...

$200K For SMA—Phase Two | Funding the pre-clinical sma model

On the heels of the success of the "$200K For SMA -- Phase One" campaign, in March 2011 theGSF launched "$200K For SMA -- Phase Two" to fund the first ever SMA pre-clinical animal model. theGSF once again enthusiastically partnered with FightSMA and their esteemed scientific advisory board to fund groundbreaking research that will impact many facets of SMA research, including gene therapy, for years to come.

So, what will be funded through the $200K For SMA -- Phase Two commitment? >> We'll...

Team GSF | MOVE YOUR BODY SO ONE DAY THEY CAN TOO

Run, bike, swim, climb… whether this is your first athletic event or you are a seasoned pro, we welcome all athletes to move their bodies so one day those with SMA can too. Any race, game, or event can turn into an opportunity to raise funds for SMA research and programs through theGSF when you join our team. In just two years over $150,000 has been raised by Team GSF athletes and we are continually inspired by those who push their physical strength to the limits to help conquer a disease...

This is SMA.

"This is SMA." is an ongoing effort by theGSF with the simple goal of answering that first What is SMA? question in a visual and relatable way that leaves an impact.

theGSF created the This Is SMA. campaign in 2009 and have used a variety of tools to put a face to this brutal disease and create more understanding about who children with SMA are beyond statistics. theGSF utilizes targeted, blunt messaging to reach a broad global audience through unique social media campaigns. As part of this...

SMA Headlines | SMA. News. In. One. Place.

In October 2010, theGSF launched an extremely simple project -- "SMA Headlines" -- and that’s exactly what it is. Spinal muscular atrophy (SMA) news from across the globe organized and shared from one website.

For such a little known disease, we’ve always been shocked by the number of SMA articles that are published every single day around the world. But, we’ve also been frustrated that there isn’t one place that we can find access to those stories or go back to search or peruse the...