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Posts tagged with: Sma Treatment Acceleration Act

All In Favor of the SMA Treatement Acceleration Act say Thumbs Up

November 10, 2008 by Victoria Strong
Please take one minute to vote "In Favor" of the SMA Treatment Acceleration Act on WashingtonWatch.com -- a website that monitors public opinion of legislation in Congress. Both the Senate and House version of the bill are being watched and need more votes to show Congress this is broadly...
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Gwendolyn in "Delaware County Daily Times"

October 27, 2008 by Victoria Strong
Last week Gwendolyn was featured in an article in the Delaware County Daily Times, a newspaper in my sister's area. Thank you super sister Elizabeth for pursuing this and putting yourself out there, thank you Commissioner Heilmann for making the introduction and helping make this happen, and thank...
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Petition to Cure SMA and SMA Treatment Acceleration Act

July 26, 2008 by Victoria Strong

Congratulations! Our collective efforts are paying off!!! With your help, we have received over 6,200 signatures. And it is MAKING A DIFFERENCE. We are working closely with FSMA and FightSMA who are leading the charge on Congress on behalf of the SMA community. This week during their trip to DC,...

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SMA Treatment Acceleration Act - We need your help!!!

July 04, 2008 by Bill Strong
Dear Family and Friends of Gwendolyn:

Although relatively unknown, Gwendolyn's disease, Spinal Muscular Atrophy (SMA), is the number one genetic killer of children under the age of 2 and is estimated to occur in nearly 1 out of every 6,000 births. SMA is an inherited disease that destroys the nerves...
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Senator Kerry Supports Families of SMA

July 03, 2008 by Bill Strong
Senator John Kerry (D-MA) gave a speech (click here to view Senator Kerry's speech) at the 2008 Families of SMA (FSMA) Conference in Boston, MA this past week and announced that he has signed on as a cosponsor to the SMA Treatment Acceleration Act (click here to read more about the Act) that will...
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