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Posts tagged with: Parenting A Child With Disabilities

Serial Casting Round II and Construction

September 09, 2009 by Bill Strong
Never a dull moment in the Strong household...

Today, we took Gwendolyn to see her pediatric orthopedist, Dr. Early, for a checkup on how her serial casting was coming along. All good news. Her right ankle is looking very good and probably only needs another two weeks, at most, to get back to...

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Serial Casting Success and City Proclamations

August 26, 2009 by Bill Strong
All in a day's work for our little fighter Gwendolyn...

This morning we took Gwendolyn to see her orthopedist, Dr. Early, to have her serial casting performed. Victoria and I were nervous for her, but Gwendolyn was a trooper as usual -- she actually smiled at Dr. Early through almost the entire...

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Serial Casting

August 24, 2009 by Bill Strong
Tomorrow, we will be taking Gwendolyn for serial casting. No, we're not exactly happy about it, but it is necessary and will lead to more good, adventurous, fun stuff for our little fighter Gwendolyn. Serial casting is a noninvasive procedure where Gwendolyn's Orthopedist, Dr. Sean Early, will put...
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Mr. Seagull, I'm Watching You!

August 23, 2009 by Bill Strong
What a wonderful Saturday it turned out to be, even though we spent most of the day waiting for it to clear up (life-critical machines and rain don't mix). We're having some strange August weather here in Santa Barbara. For the last few weeks it's been cooler than normal and overcast -- we're used...
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Hamusuta: The Happy Hamster

August 05, 2009 by Bill Strong
We have a new fabulous toy for Gwendolyn! Gwendolyn's awesome cousin, Camie, immediately thought of her when she saw this crazy toy while on a high school summer trip to Greece and Italy. (What an awesome teenager, right? On a dream trip and still thinking of her baby cousin!) She brought it ALL...
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Brandon's Village: A Park Full of Inspiration

August 04, 2009 by Bill Strong

Last Friday, while staying with Gramma, we went to Gates Canyon Park/Brandon's Village in Calabasas, California. The park was simply AMAZING, inspiring! And, not because it is a handicap accessible park, but simply because it's a fantastic place for children to play! The design of this Universally...

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Joy

July 23, 2009 by Victoria Strong
Today was a terrific day. The weather was gorgeous, if a little hot -- although nothing like Texas...or Mississippi...or cut-the-humidity-with-a-knife New Orleans, so I think I will take that back. I got a little pampering in with a new and long overdue haircut. Then Bill and Gwendolyn met me at...
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How We Made This Trip Work

July 18, 2009 by Bill Strong

We've found doing anything outside of our home with Gwendolyn to be challenging. Her machines, the power issues, being outside of our comfort zone, having no night nurse, the change in schedule, exposure to viruses, the added stress, etc. But, we also know how much Gwendolyn enjoys getting out...

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Melancholy

June 11, 2009 by Victoria Strong

I feel a bit melancholy today. I don't know why. I don't have any reason to be -- well, no extra reason. I just woke up in a bit of a funk and I find myself needing extra snuggles and hugs from Gwendolyn, watching her as she naps, wanting to take in all of her sweet sleeping snores, her soft skin....
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Gwendolyn Rocking Out!

June 10, 2009 by Victoria Strong

Gwendolyn is really getting the hang of presents! After being a bit fussy with Mom and Dad (teething!), we asked if she would like to open a present from Great Uncle John and Great Aunty Clare. Her grumpy fussy sound immediately stopped as she eyed the pretty package and a smile (that was nowhere...
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X-Y-L-O-P-H-O-N-E

June 03, 2009 by Bill Strong

Gwendolyn is really doing well in her stander and she is LOVING EVERY SECOND OF IT! - which is all that matters. She's up to 50-55 degrees for about 20-30 minutes. This week, she smiled ear-to-ear when we put her in the stander at her weekly CCS therapy session and starting raising her up. But, the...
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New Fun Toy and a Pair of Pink Crocs!

May 30, 2009 by Bill Strong
Gramma brought a fun new toy that Gwendolyn enjoyed playing with her last week. Gwendolyn loved choosing which color wooden "nail" to take on next and having Gramma help her pound, pound, pound them with the hammer. You can tell she really liked the feel of the impact of the hammer and the noise...
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Being Social with SMA

May 28, 2009 by Victoria Strong

Gwendolyn is truly a social child. She has been since she was a tiny baby. During our first hospitalization when she was only 9-weeks-old, she showed no fear toward strangers, and instead beckoned every nurse with a sweet grin and a look that said, "Hi, come play with me." And she hasn't slowed...
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Stressful Morning

May 22, 2009 by Bill Strong
Gwendolyn decided to take a cat nap on the home stretch of our morning walk today. The nap was well deserved, as she was absolutely exhausted from a stressful and scary morning.


She had a good night and slept very well. After she woke up and our night nurse had briefed me on the night's events, I...
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REMINDER: Vote NO on CA Prop 1D

May 18, 2009 by Bill Strong
To Our Dear California Resident Friends:

California Proposition 1D will be on a special statewide election ballot on May 19, 2009. We are asking you to please VOTE NO ON PROPOSITION 1D and tell your family, friends, colleagues, and neighbors to do the same.

If passed, the proposition will have a...
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Friends of Gwendolyn, Vote NO on CA Prop 1D

May 12, 2009 by Bill Strong
To Our Dear California Resident Friends:

California Proposition 1D will be on a special statewide election ballot on May 19, 2009. We are asking you to please VOTE NO ON PROPOSITION 1D and tell your family, friends, colleagues, and neighbors to do the same.

If passed, the proposition will have a...
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Bill is iParenting.com's Dad of the Month

May 11, 2009 by Victoria Strong
Anyone who reads this blog regularly knows that Bill is an AWESOME father. I always knew he would be a great dad because he is a thoughtful and loving husband. But, Bill is truly an incredible father -- and not because our daughter is sick -- in spite of it. He is completely and utterly devoted to...
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Thursday Fun Day

May 01, 2009 by Victoria Strong
Yesterday, Gwendolyn and I had a really fantastic day together. We went to music class, which is always a hit, but yesterday the teachers added a parachute to the fun and it had the WOW! factor. Gwendolyn and I went underneath it together and I held her hand up to touch the parachute as it went...
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Who Turned On The Heater In April?

April 21, 2009 by Bill Strong
It is hot. H-O-T! I know, I know, we shouldn't complain. Santa Barbara weather is pretty great all year, but guess what that means -- we don't have air conditioning! So, we are literally sitting in front of our little room air unit/fan combo and looking for a rain cloud. Gwendolyn is doing okay,...
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Stacking blocks, knocking them down…

March 28, 2009 by Bill Strong

Gwendolyn loving playing with Gramma; stacking some generations old wooden blocks and knocking them down. She loves the knocking down part the most smile
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