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Posts tagged with: Gwendolyn Strong Foundation

This is SMA. And this is what incredible looks like.

August 15, 2011 by Victoria Strong

We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless.

These families and their stories represent what this disease really is. SMA is far more than its brutal...

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City of Santa Barbara Again Declares August SMA Awareness Month

August 12, 2011 by Victoria Strong

Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about...

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Cupcakes for Amanda

August 11, 2011 by Victoria Strong

Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has SMA.

For the entire month of August Amanda...

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SMA Awareness Month: Challenge Number Two.

August 08, 2011 by Victoria Strong

Way to go on Challenge Number One. Keep up the great work. You guys are doing an amazing job spreading the word about SMA and what we at the Gwendolyn Strong Foundation are trying to do to change it. Our Facebook Fan Page is growing every day, reaching new people, thanks to you!!!

Challenge...

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SMA Awareness Month: Challenge Number One.

August 03, 2011 by Victoria Strong

This is simple. Knowledge brings change. And the best way to bring about knowledge is exposure to the SMA cause. So, challenge number one is:

You can do this by posting our link on your wall. Don't forget to add the @ symbol to...
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Do Something. Make a Difference. August is SMA Awareness Month!

August 01, 2011 by Victoria Strong

August is SMA awareness month and since you are reading this you probably already have a general idea about this brutal disease and why increasing awareness of it is so necessary. Over the next few weeks we will be asking things of you. We will be challenging you to get more involved. We will...

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Team GSF SB Marathon: Injury Frustration and Perspective

July 31, 2011 by Bill Strong

I've been nursing a nasty and painful injury since finishing the Montecito-Summerland Half Marathon two weeks ago. I'm not going to lie, it's been pretty frustrating. It's my left leg and it seems to be a nice mix of a shin splint and plantar fasciitis -- both pretty common running injuries. I...

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State of California Declares EVERY August as SMA Awareness Month!

July 28, 2011 by Victoria Strong

Awesome news! The state of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year's declaration. The proclamation doesn't just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator,...

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Team GSF Conquers Ironman France

July 26, 2011 by Victoria Strong
The athletes involved with Team GSF are amazing! We are continually humbled by what they accomplish and that they are doing it for the SMA cause.

David Price is a college friend of Bill's. You may remember he competed in a triathlon last year for Team GSF in honor of Gwendolyn. He blew us away last...

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Kacie Jean Photography Donating to theGSF Entire Month of August

July 21, 2011 by Victoria Strong

August is SMA Awareness month and we are so excited that the amazing and continually acclaimed Kacie Jean Photography will be donating 5% to the Gwendolyn Strong Foundation for the entire month. Kacie is based in Santa Barbara and is booking up quickly as August is one of her last months before...

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Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

July 20, 2011 by Bill Strong

Over the last several years, we haven't shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn's Spinal Muscular...

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Goal Set. Goal Achieved: Montecito Half Marathon

July 18, 2011 by Bill Strong

What an incredible experience -- I finished the Montecito-Summerland Half Marathon on Saturday in just under 2 hours!

On Saturday, my great friend and fellow Team GSF SB Marathon runner, Mike Paskin, our friend, Steve Fergusson, my awesome trainer, Mike Claytor, and I conquered the first...

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Climb4SMA Conquers Mt. Rainier To Fight SMA

July 14, 2011 by Victoria Strong
The inspiring Jadons Hope and Climb4SMA are at it again! As ifclimbing the 23,000 foot Mt. Aconcagua and raising over $45,000 for theGSFs $200K For SMA fundraising campaign wasnt impressive enough, Jim Baker decided to create a team of climbers to tackle the famous Mt. Rainier in Washington. And it...
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Team GSF SB Marathon: Hills, interval training, and the Montecito

July 12, 2011 by Bill Strong

Well, well, well... time really is flying around here. It seems like yesterday I did my first training run and made the decision to run a marathon. And now we're only a little more than 4 months out from the Santa Barbara International Marathon in November 2011. Yikes!

When I decided to...

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100 Miles For Owen = Awesomeness

July 10, 2011 by Victoria Strong
100 miles. 100 miles in 26 hours and 54 minutes. 100 miles in memory of sweet Owen Simmons.

Stephen Taylor completed his second Western States 100 endurance challenge and he's got the bumps and blisters to show for it. What Stephen did was incredible -- awe inspiring. But add to it that he didn't...

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Acts of Kindness: The Walker Family

July 07, 2011 by Victoria Strong

Wow. Simply blown away. Ann and Jim Walker and their darling twins Will and Lily are determined to raise $5,000 for theGSF this year. They decided this all on their own and are half way to their goal. When Will and Lily turned two earlier this year they asked for donations to theGSF in lieu of...

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Strawberry Festival Goodness

June 28, 2011 by Victoria Strong
The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the...
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readgive rummage

June 14, 2011 by Victoria Strong
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Team GSF SB Marathon: 20 Plus Runners and a Few Things I’ve Learned

June 05, 2011 by Bill Strong

We're a little under five-and-a-half months out from the Santa Barbara Marathon and I'm feeling great. I'm loving my training and it's become a normal part of my weekly routine -- two strengthening workouts followed by thirty minute runs and one one hour run. The intensity is definitely picking up...

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The Great Duck Race Round Two

June 02, 2011 by Victoria Strong

Remember last year when the "Gwennie" duck was plucked from the water out of 1,007 rubber ducks at the Troy Strawberry Festival? Remember how Penny and Melissa from Beb-e-ssentials donated all of the $1,000 winnings to the GSF?Well, they are at it again. And get this -- the City of Troy and the...

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