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Posts tagged with: Featured

Our Dancing Diva

May 18, 2011 by Victoria Strong
Gwendolyn loves music. She always has. Her favorite is to play music in the car (loudly and with the sunroof open) and to dance like crazy as we roll up to preschool or therapy. But she doesn't like any old song -- she likes a beat. She's so specific about her tunes that the radio DJ was...
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I’m Running the Santa Barbara Marathon

May 17, 2011 by Bill Strong

I've always wanted to run a marathon -- it's one of those goals I planned to "one day" check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just six-months-old.

I was at work. My...

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Good Things For Gwendolyn: A Slumber Party with Hayden

May 16, 2011 by Victoria Strong

Oh these two girls...they are just too much!Gwendolyn and Hayden just love each other and we were so excited to spend the weekend at Hayden's house -- a three day slumber party filled with fun, fun, fun!

The Calafiores live about four hours north of us in Central California. They are surrounded...

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HUSH in Panama Hosting Shop To End SMA!

May 14, 2011 by Victoria Strong
Marcela Vallarino and Juan David Cardoze have the most adorable baby girl, Amanda. Amanda has SMA. At just 10 months old, sweet Amanda has already inspired friends, family and her community to join the SMA cause in her honor. The Cardoze family was part of the GSF's "200K for SMA" campaign,...
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Team Run For Owen Runs Ragnar Relay

May 12, 2011 by Victoria Strong
200 miles. 12 runners. Two days. Running to end SMA!!!

Team Run For Owen is always amazing and tomorrow they are embarking on a new incredible adventure -- the Ragnar Relay. This fabulous 12 person team starts their journey in Albany, New York and in relay style will travel 196 miles to Tarrytown,...

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This Weekend’s Rummage To Cure Sales Raise Nearly $5,000 for the

May 11, 2011 by Victoria Strong
Wow! Wow! Wow! This was a huge Rummage To Cure weekend. Two sales. Two locations. And two groups working to help END SMA!!!

Lucy's Hope for a Cure in Fond du Lac, Wisconsin was a big success. For the second year in a row, Marjorie Trew-Munson organized this great neighborhood sale in honor of Lucy...

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Calabasas Fresh Brothers Fundraiser May 17th for the GSF

May 10, 2011 by Victoria Strong

San Fernando Valley friends, mark your calendars --> Pizza at Fresh Brothers next Tuesday and 20% goes to the Gwendolyn Strong Foundation to help end the #1 genetic killer of babies! That's right --> eat pizza, raise funds for SMA research! Easy!

WHEN --> Tuesday, May 17th from 11 to 9

WHERE -->...
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Lullaby Blankies Helps End SMA!

May 08, 2011 by Victoria Strong

In December I met Stephanie and Brandon Humes, owners of Lullaby Blankies. Stephanie reached out with an email about their story that goes something like this --> Gorgeous couple in love. Get married. Want to start a family. But Stephanie and Brandon's story takes a turn there. Thanks to a...

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Happy Mother’s Day

May 08, 2011 by Bill Strong

Happy Mother's Day to the two best moms in the entire universe! There is no way to adequately thank you for the selfless daily sacrifices that you make for us and the immeasurable impact that you have had and are having on shaping our lives. You've devoted yourselves to making sure we have the...

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Rummage To Cure—> This Weekend and Coming Soon Near You

May 06, 2011 by Victoria Strong

Woowee! Get your rummage on! You all have blown us away and there are Rummage To Cure sales popping up everywhere!

This weekend in Fond du Lac, Wisconsin and Canoga Park, California -->

Lucy's Hope for a Cure will host their 2nd annual Rummage To Cure! Lots of items for just 25 cents!

  • WHEN -->...

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Paint Away SMA at Sips N Strokes in Knoxville, TN

May 05, 2011 by Victoria Strong

Nora Gooden is surrounded by people who adore her and who fight SMA in her honor. And Nurse Kim is definitely one of them. The incredible Nurse Kim has organized a fun night with Sips N Strokes to "Paint Away SMA" in Knoxville, Tennessee on May 14th. Painting, spending time with friends, enjoying...

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Disneyland…Again

May 04, 2011 by Victoria Strong
I can't believe we haven't posted about this yet because -- it was AWESOME!

Last Monday we packed up for four days of Disneyland fun and we met the Calafiore family for some BFF fun -- a sequel to Gwendolyn's birthday trip in October, only this time it was a "just because" trip. Gwendolyn is now...

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Hope Calendar Raises Over $8,000 For GSF

May 02, 2011 by Victoria Strong
We are so excited! Debi Gomez of Life's Images Photography and the creator of the "Hope Calendar" just announced the final totals of the 2011 sales...Drum roll please....

$8,110 was raised for the Gwendolyn Strong Foundation and our "$200K for SMA" campaign!!!

A-mazing! Simply amazing! A big thank...
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Saying Goodbye

May 02, 2011 by Victoria Strong
I've been a little quiet around here and that is because I've been saying goodbye to one of the most important people in my life -- Grandpa Harry. Losing Harry (and yes, I called him by his name -- everyone did) has been extremely hard. There aren't many men like my grandfather -- he was truly...
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Easter 2011

April 29, 2011 by Bill Strong

What an awesome Easter! Easter egg decorating, playing, more playing. A Gramma slumber party. Easter egg hunting, Easter basket opening, more Easter basket opening, more Easter egg basket opening, more Easter basket opening. A beautiful walk to the park, a swing on the swings, a meeting with...

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Continuing the SMA Charge on Capitol Hill

April 27, 2011 by Bill Strong
Get ready -- a NEW SMA bill is on it's way and we will need YOUR help.

We've always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level.We've been big supporters...

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Spinal Muscular Atrophy Machines and Supplies

April 26, 2011 by Bill Strong

In our personal experience, getting your arms around life-critical machines and supplies can be daunting in the process of dealing with a spinal muscular atrophy diagnosis. What will we need? Where will get all this stuff? What do others use? How are we going to figure all of this out? We remember...

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GSF Mother’s Day Giveaway {Valued Over $400!}

April 25, 2011 by Victoria Strong
{UPDATE}

Thank you all for participating in the GSF Mother's Day Giveaway! We had so much fun and we hope you did, too! A big THANK YOU to the 10 fabulous vendors who contributed to this fantastic prize and who continually support the GSF and our mission to END SMA, the #1 genetic killer of young...

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Happy Easter.

April 24, 2011 by Bill Strong

My how our little bunny has grown and grown and grown and grown. A little walk down Easter memory lane [brought some healthy tears to these eyes] --Easter 2008Easter 2009Easter 2010.

We wish you all a happy, wonderful Easter!

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Swingin’

April 22, 2011 by Bill Strong
Gwendolyn LOVES to swing on the swings. I mean she a-b-s-o-l-u-t-e-l-y LOVES it. On our almost daily walks we pass several parks and one has a huge children's playground. There is no way we can get past that park these days without taking a swing on those swings -- which can be challenging if we're...
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