Posts tagged with: Featured

We Are Home and There Is No Place Like It!

August 06, 2011 by Victoria Strong

We are home! We are home! And everyone is doing fine. Gwendolyn is such a trooper, but she definitely had enough of being poked and prodded and beamed from ear to ear as we marched out those hospital doors -- in a Dorothy dress no less and with new toys and balloons. (Thank you Lunt and Gooden...


Gwendolyn stable, but in PICU

August 04, 2011 by Victoria Strong

Oh Gwendolyn. She likes to keep us on our toes. We are at Stanford right now in the PICU. It's a bit of a long story and the truth is we don't really know all the chapters yet. She is stable and happily watching lots of movies, but something isn't quite right. For the last few weeks we have been...


SMA Awareness Month: Challenge Number One.

August 03, 2011 by Victoria Strong

This is simple. Knowledge brings change. And the best way to bring about knowledge is exposure to the SMA cause. So, challenge number one is:

You can do this by posting our link on your wall. Don't forget to add the @ symbol to...

Do Something. Make a Difference. August is SMA Awareness Month!

August 01, 2011 by Victoria Strong

August is SMA awareness month and since you are reading this you probably already have a general idea about this brutal disease and why increasing awareness of it is so necessary. Over the next few weeks we will be asking things of you. We will be challenging you to get more involved. We will...


Team GSF SB Marathon: Injury Frustration and Perspective

July 31, 2011 by Bill Strong

I've been nursing a nasty and painful injury since finishing the Montecito-Summerland Half Marathon two weeks ago. I'm not going to lie, it's been pretty frustrating. It's my left leg and it seems to be a nice mix of a shin splint and plantar fasciitis -- both pretty common running injuries. I...


Acts of Kindness: A Wizard of Oz Surprise in Memory of Chloe

July 29, 2011 by Victoria Strong
Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this was a hit is an understatement. When...

State of California Declares EVERY August as SMA Awareness Month!

July 28, 2011 by Victoria Strong

Awesome news! The state of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year's declaration. The proclamation doesn't just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator,...


Team GSF Conquers Ironman France

July 26, 2011 by Victoria Strong
The athletes involved with Team GSF are amazing! We are continually humbled by what they accomplish and that they are doing it for the SMA cause.

David Price is a college friend of Bill's. You may remember he competed in a triathlon last year for Team GSF in honor of Gwendolyn. He blew us away last...


A Royal Tea Party in Oz

July 25, 2011 by Victoria Strong

This weekend Gwendolyn received a very special package of gifts (more on that later) -- one of which is a Wizard of Oz tea set. Gwendolyn has been in heaven playing with it. We had a tea party yesterday with Laurie, Chris and Connor at the Santa Barbara Mission. And this morning Gwendolyn and I...


Kacie Jean Photography Donating to theGSF Entire Month of August

July 21, 2011 by Victoria Strong

August is SMA Awareness month and we are so excited that the amazing and continually acclaimed Kacie Jean Photography will be donating 5% to the Gwendolyn Strong Foundation for the entire month. Kacie is based in Santa Barbara and is booking up quickly as August is one of her last months before...


Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

July 20, 2011 by Bill Strong

Over the last several years, we haven't shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn's Spinal Muscular...


Goal Set. Goal Achieved: Montecito Half Marathon

July 18, 2011 by Bill Strong

What an incredible experience -- I finished the Montecito-Summerland Half Marathon on Saturday in just under 2 hours!

On Saturday, my great friend and fellow Team GSF SB Marathon runner, Mike Paskin, our friend, Steve Fergusson, my awesome trainer, Mike Claytor, and I conquered the first...


Date Night, Daddy Shopping, Mommy Makeup, and an Ouchie

July 15, 2011 by Victoria Strong
Well, it has been a really great week filled with lots of fun, but poor Gwendolyn now has a few ouchies that are no fun at all.


Date Night --> We did it. We had an actual real adult date night -- just the two of us, at night, at a non-child venue. Just Bill, me, Eddie Vedder and the thousands of...

Climb4SMA Conquers Mt. Rainier To Fight SMA

July 14, 2011 by Victoria Strong
The inspiring Jadons Hope and Climb4SMA are at it again! As ifclimbing the 23,000 foot Mt. Aconcagua and raising over $45,000 for theGSFs $200K For SMA fundraising campaign wasnt impressive enough, Jim Baker decided to create a team of climbers to tackle the famous Mt. Rainier in Washington. And it...

Team GSF SB Marathon: Hills, interval training, and the Montecito

July 12, 2011 by Bill Strong

Well, well, well... time really is flying around here. It seems like yesterday I did my first training run and made the decision to run a marathon. And now we're only a little more than 4 months out from the Santa Barbara International Marathon in November 2011. Yikes!

When I decided to...


Good Things: Schools Out for the Summer

July 11, 2011 by Victoria Strong

We can not believe our baby finished her first year of preschool, including a special summer program. And what a year it has been. To say we are proud is putting it mildly. That Gwendolyn had this opportunity fills us with such enormous gratitude and that it was so enriching for her is beyond...


100 Miles For Owen = Awesomeness

July 10, 2011 by Victoria Strong
100 miles. 100 miles in 26 hours and 54 minutes. 100 miles in memory of sweet Owen Simmons.

Stephen Taylor completed his second Western States 100 endurance challenge and he's got the bumps and blisters to show for it. What Stephen did was incredible -- awe inspiring. But add to it that he didn't...


Acts of Kindness: The Walker Family

July 07, 2011 by Victoria Strong

Wow. Simply blown away. Ann and Jim Walker and their darling twins Will and Lily are determined to raise $5,000 for theGSF this year. They decided this all on their own and are half way to their goal. When Will and Lily turned two earlier this year they asked for donations to theGSF in lieu of...


Long Weekend Love

July 06, 2011 by Victoria Strong
[caption id="attachment_6255" align="aligncenter" width="588" caption="Little Miss Firecracker and Dollie"][/caption]

Oh what a weekend! Prepare for photo overload because we have been having a blast enjoying the warm weather with friends and celebrating our favorite fella's birthday.

On Saturday...


Gwendolyn In The AeroSling Swing

July 01, 2011 by Bill Strong

It's no secret, Gwendolyn LOVES to swing on the swings. We can't even think about walking past the park near our house these days without taking her on the swings. And at her preschool, she's on the swings every single day. She loves it. And we love it.

Most of the time we hold Gwendolyn in our lap...


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