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Team Jenna Raises $3,000 and Runs in Buffalo Half Marathon Again

May 24, 2012 by Victoria Strong

This is Jenna. She's 7 years old, is in the first grade, and loves princesses -- really loves princesses. On a recent trip to Disney World Jenna met every single princess and prince there. She even got to be Sleeping Beauty in her school play -- a definite highlight of the year. Jenna is also courageous and incredible and is adored by her wonderfully loving family. Jenna has SMA.

This is Team Jenna: Renee Gronowski, Deborah Tracy, Catherine Clark, and Paul Boguhn. Last year Jenna's Aunt Renee ran the Buffalo Half Marathon in her honor. It was a fun and positive experience for the whole family and Jenna was so proud to cheer for her awesome aunt.

The run was such a positive experience that Renee decided to do it again and this year she recruited a team, including Jenna's devoted dad, Paul. Over the last few months Renee, Paul, Deborah, and Catherine have been hard at work training, meeting up for team runs on the weekends, and encouraging each other along the way. They have also been actively fundraising to help SMA. They even hosted a pub crawl fundraiser for Renee's 40th birthday where they all wore theGSF NEVER GIVE UP. shirts. In fact, Team Jenna has raised an amazing $3,000!!!

From Renee:

SMA...Spinal Muscular Atrophy...the #1 genetic killer of babies under 2. Many people do not know one thing about this awful disease or have never heard of it until it affects them. Our family included. But awareness of SMA is now spreading and there is a cure on the horizon. I want to help be a part of that. There is not much I can do medically for my niece Jenna... but I CAN do this!!! I WANT to do this!!!! My emotions are very high on what this run means to me. I have seen Jenna grow up..she is now 7. I remember Paul and Mary telling me what the doctors told them, "Go home..love your little girl...she's not going to make it." We have all shed many tears...but we have all shared much happiness. SMA truly has made us a STRONGER family. I love my family and I'm so proud to be a part of it!!! We *NEVER GIVE UP*!

 

Jenna is lucky to have such a wonderful family. And we are honored that Team Jenna is running to raise SMA awareness and funding to help theGSF in our mission to change SMA. We are continually moved and inspired by people with the "NEVER GIVE UP." spirit -- like Team Jenna and the entire Boguhn family.

We will be cheering you on this Sunday as you run in the Buffalo Half Marathon. Gooooo Team Jenna!!! You guys rock! Thank you for running so one day they can too! 

 

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