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PROJECT MARIPOSA :: {OCTOBER RECAP} GRANTS #71-74

November 02, 2012 by Victoria Strong

In October, we granted four more iPads to those with Spinal Muscular Atrophy with the simple goal to make the world more accessible to them. We are so very grateful for every donation that has helped create Project Mariposa -- this program is changing lives!

Project Mariposa :: {WEEK THIRTY FIVE} Grant #71: Angela Wilson, California :: "Angela is a 30 year old woman living a full life with love and gusto and SMA Type 1. Despite only being able to move her right hand, unable to walk and being vent dependent, she gets up every day, dresses to the nines, uses her iPhone to text, write school reports for online classes, post pictures on Facebook and chat with friends and family. She lives independently with the assistance of 24 hour caregivers that she hires herself and trains. Although she is in pain everyday she always has a smile, wants to go shopping, loves to keep up on local comedy and music shows and manages all her own bills and paperwork herself. The internet is vital to her. It is her lifeline. An iPad would greatly change her life in a positive way. She currently uses a very old iPhone and it really is her link to the world. Despite her mobility issues Angela recently got a part time job helping provide independent living services to clients with special needs. Her long term goal is to be a social worker and help others." Congratulations Annie! We can't wait to hear how you are using your new iPad.

Project Mariposa :: {WEEK THIRTY SIX} Grant #72: Abby Quinn, North Carolina :: "Abby is an amazing 17yr old with SMA 2/3. She was diagnosed at age two and has been fighting her way through this world one challenge at a time and each one she overcomes. She's never sad, she is always positive and has the best dispostion even though she faces many challenges in everyday life. She is literally my hero. She loves communicating online and is currently applying to colleges which is keeping her very busy. Having an iPad would certainly help with all of this and more it would give her the ability to feel once again some independence. She is also the Student Body President for her high school and is very involved in many clubs in her school and having an iPad would help with all of the research and planning she has to do to make her Senior year not only very productive but also very memorable! Abby always challenges herself. She recently wrote a rap called "Never Give Up" and was featured on MTV's Made show -- it reminds me so much of what your foundation stands for!" Congratulations Abby! We can't wait to hear what neat ways you are using your new iPad to make your world even more wonderful!

Project Mariposa :: {WEEK THIRTY SEVEN} Grant #73: Ashleigh Jacques, Massachusetts :: "Ashleigh was diagnosed with SMA Type 1 at the age of 6 months. She still has some movement in her wrists and is able to move her arms with assistance from using arm slings. An iPad would give her the opportunity to play games by using her fingers. It would give her a feeling of pride to be independent and able to play on her own or alongside her big sister. I think an iPad would be a great tool that could be used to help Ashleigh communicate her needs in an effective way. Ashleigh is such a happy little girl." Congratulations Ashleigh! We hope your new iPad opens the world for you!

Project Mariposa :: {WEEK THIRTY EIGHT} Grant #74: Jessica Frischknecht, Utah :: "My name is Jessica Frischknecht. I have Type 2 SMA. With limited mobility I only have the use of my hands so the iPad will make things more accessible to me. An iPad will assist in providing me freedom and accessibility to learn, create, and express at the push of a button! I'm studying criminal justice so the iPad would help my studies. And it would help me write the book about my life that I am writing. Would I rather have a different life in order to be able to walk? That is a hard question to answer. I would like to be able to walk. I would like to be able to put on my own make up, I would like to be able to drive, anywhere I wanted to - drive until I was sick of driving any longer. I would like to be able clean my own room, mess it up, jump on the bed - lay on it - any way I chose. At times I get frustrated, angry, and feel pain that could knock me out - emotionally and physically. But the pain, anger, and frustration is what keeps me going. It motivates me to fight, allows me to learn, to grow, and makes me believe that anything is possible. I haven't experienced much physically, such as sports, running, jumping, kicking, or even screaming as loud as my frustrations have wanted to be heard. But those things don't make me who I am. I am an artist, designer, amateur business woman, girly-girl, aspiring fashionista, platinum blonde, diet coke loving, soon-to-be author!" Congratulations Jessica! We know your new iPad will help you continue to be the amazing woman you already are!

UPDATE >> How has Project Mariposa made the world more accessible? This is Sophia Doebbert and these are some of the new things she can do on her iPad: 
 

 

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