I Support SMA Research Because Babies Matter!November 16, 2009 by Victoria Okay guys, we need help! And NOW! The SMA Treatment Acceleration Act has a window of opportunity in the House of Representatives now that the ginormous health reform bill is no longer at the forefront. But, it is a small window and so we need to up the ante, spread the word, get our mojo rolling again!!! PetitionToCureSMA.com is helping. It has given the SMA community backing to present to Congress. It has given a little known disease proof that a broader audience cares. The number of signatures on it makes a difference. So please, please ask every single person in your family, your friends, your coworkers to sign, post on facebook, tweet about it, pass out flyers, beg, plead, and SIGN. (It does not help to have you sign multiple times -- we need 100,000 unique signers.) With multiplied efforts, we can show Congress that SMA research matters because babies do!
PetitionToCureSMA.com -- 100,000 signatures HERE WE COME!!!
And THANK YOU!!!
To help your efforts, feel free to use the below or create your own ideas and be sure to comment about what you have done to spread the word!
Video: To post on your blog grab the "Embed" code on YouTube or here is the url for email: http://www.youtube.com/watch?v=DncMkpqn_xo
Flyer: Click image to download and print. It is a half sheet flyer, so cut and pass out!
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200k for sma gwendolyn strong foundation gwendolyn featured spinal muscular atrophy friends fundraiser teamgsf parenting a child with disabilities sma tips sma awareness concerned sponsor-a-mile hospitalization news acts of kindness chase community giving good things for gwendolyn birthday holidays development therapy video sma treatment acceleration act 3rd birthdayShow More
200k for sma gwendolyn strong foundation gwendolyn featured spinal muscular atrophy friends fundraiser teamgsf parenting a child with disabilities sma tips sma awareness concerned sponsor-a-mile hospitalization news acts of kindness chase community giving good things for gwendolyn birthday holidays development therapy video sma treatment acceleration act 3rd birthday doctor family research g-tube photographer travel giveaway special outing newly diagnosed sma carrier screening power chair sitting up grief 2nd birthday health insurance hospice clinical trial transportation 1st birthday unite for the cure adapted toys daily care smaheadlines.com medi-cal uncategorizedHide Tags
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