I Support SMA Research Because Babies Matter!November 16, 2009 by Victoria Strong Okay guys, we need help! And NOW! The SMA Treatment Acceleration Act has a window of opportunity in the House of Representatives now that the ginormous health reform bill is no longer at the forefront. But, it is a small window and so we need to up the ante, spread the word, get our mojo rolling again!!! PetitionToCureSMA.com is helping. It has given the SMA community backing to present to Congress. It has given a little known disease proof that a broader audience cares. The number of signatures on it makes a difference. So please, please ask every single person in your family, your friends, your coworkers to sign, post on facebook, tweet about it, pass out flyers, beg, plead, and SIGN. (It does not help to have you sign multiple times -- we need 100,000 unique signers.) With multiplied efforts, we can show Congress that SMA research matters because babies do!
PetitionToCureSMA.com -- 100,000 signatures HERE WE COME!!!
And THANK YOU!!!
To help your efforts, feel free to use the below or create your own ideas and be sure to comment about what you have done to spread the word!
Video: To post on your blog grab the "Embed" code on YouTube or here is the url for email: http://www.youtube.com/watch?v=DncMkpqn_xo
Flyer: Click image to download and print. It is a half sheet flyer, so cut and pass out!
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Are You An SMA Carrier? Advocating for the Affordable Care Act: Gwendolyn's Story (Video) It Arrived!!! Let the Adventures Begin!
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200k for sma news featured gwendolyn strong foundation fundraiser spinal muscular atrophy gwendolyn teamgsf sma tips parenting a child with disabilities sma awareness friends sponsor-a-mile development concerned acts of kindness birthday family hospitalization video chase community giving therapy sma treatment acceleration act good things for gwendolyn holidays travel doctor g-tube transportation research special outing power chair newly diagnosed uncategorized health insurance 3rd birthday daily care sma carrier screening giveaway photographer adapted toys grief sitting up 2nd birthday unite for the cure clinical trial smaheadlines.com 1st birthday hospice medi-calHide Tags
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