Blog Archive 08/2010
Feeling Back To Normal…Almost
August 15, 2010 by Victoria Well, we are feeling back to normal...almost. Each time we have some sort of misstep, it takes a while to recover. But with Gwendolyn doing so well, we are feeling the spring in our step once again. And thank goodness (hallelujah!) she is feeling so much better. Her secretions have thinned out (be... Read More >>Off Kilter
August 13, 2010 by Victoria
So I am having one of those weeks. I just feel spent, emotional, lump in the throat. Gwendolyn is doing okay -- not 100% yet -- but thank goodness not going down hill. We have had a few choking scares and I don't think I will ever get used to saving my daughter's life. And there is the anxiety of...
Read More >>Holding Steady
August 11, 2010 by Victoria
Just wanted to post an update. Gwendolyn is stable and the additional nebulizing treatments with Mucamyst (or as our friend, Jennifer, calls it = Mucus Get Out) seems to be really helping break up Mr. Sticky. It is an odd thing because Gwendolyn doesn't seem full blown sick -- no fever, no runny...
Read More >>Team GSF Runners: Two Worlds Collide
August 11, 2010 by Victoria We love it! This weekend Lauren (aka Team Run 4 Owen Queen) and Stephen (aka 100 Miles 4 Owen Madman) are meeting in the Bronx to join forces and kick some serious SMA butt. And...Stephen's extremely awesome girlfriend, Magda, is bringing her SMA Go Gettem' shoes, too.Lauren and Stephen both run...
Read More >>Taffy’s Pizza Fundraiser TODAY
August 10, 2010 by Victoria
Don't forget...Today, Wednesday, August 11th, Taffy's Pizza in Santa Barbara will donate 20% of each purchase to GSF. The offer is good all day and for both take out and dine in. All you need to do is bring in this flyer or mention the Gwendolyn Strong Foundation. Yep, that's it.
Our wonderful...
Read More >>Children Helping Children Part 1
August 10, 2010 by Victoria There's something about children helping children...it gets me every time. It makes me both choked up and motivated to see these innocent faces filled with so much determination and certainty. I love it. We are invigorated by their selflessness and their generosity in giving up a toy or a playtime... Read More >>Watching Gwendolyn Closely
August 10, 2010 by Victoria
So Gwendolyn is fighting something. We hesitate to say she is sick because, well, she's smiling and insisting on doing things and going places, but she's just not quite right. No fever. No major lethargy (although a little more tired than usual). But she's not fully herself either. For several...
Read More >>Our Counting Queen
August 07, 2010 by Victoria Gwendolyn loves to count everything -- and I mean everything. How many stairs we go up, how many we go down. How many dolls on her bed, how many cars on the street. How many of just about everything we see. And oh boy counting can save the day when I have a fussy preschooler on my hands! Going down... Read More >>Tri To Fight SMA in Memory of Zane
August 05, 2010 by Victoria
The Schmid family and Sweet Baby Zane supporters are incredible! In the year since Zane's passing, the Schmid's have raised over $125,000 for SMA. And just as importantly they have inspired thousands of friends, family members, and people around the world to get involved in fighting this disease....
Read More >>In Honor of Lucy Lunt, FondTimes Gift Basket
August 04, 2010 by Victoria
