Blog Archive 04/2008
We just wanted to let everyone know that Gwendolyn's MIC-key button g-tube (feeding tube) surgery went extremely smoothly yesterday. Her recovery from surgery has progressed much more quickly than the doctors had anticipated and she is already out of the ICU, off of the ventilator,...
We've had a very productive week meeting with a number of SMA specialists at Stanford and have learned a ton about how to provide Gwendolyn with the best quality of life possible through this journey. Gwendolyn was scheduled to have surgery tomorrow to implant a very important feeding tube in...
We thought we would send a quick update of the latest events -- and there are quite a few. Gwendolyn stopped breathing yesterday, but thankfully we were across the street from the emergency room. She is stable now, although dehydrated and exhausted. We were transferred to a pediatric ward last...Read More >>
We apologize in advance for sending this news via email but, in all honesty, it's the only way we can do it right now. As parents, we have learned the worst: Gwendolyn's illness is terminal. This is the most difficult news we have ever had to face and now share with those who...Read More >>