Posts tagged with: Gwendolyn
We...Read More >>
We are so grateful for all of you who follow our journey with so much encouragement and kindness
We are so grateful for your incredible generosity, support and belief in what we are doing with the Gwendolyn Strong Foundation
We are so grateful for our friends and family (both near and far) who...Read More >>
Yep...it's an extra special, super duper, really big, awesome, stupendous surprise... just in time for Christmas! Gwendolyn's POWER CHAIR ARRIVED! EEEEEEEEEEEE! Yipee! Yipee! We are pretty darn excited around here...but most importantly, Gwendolyn is OVER. THE. MOON!!!
Yesterday all three of us...Read More >>
Oh we have some pretty big "good things" this week with numero uno being that Gwendolyn is doing well! We are still watching her closely and hoping napping and diet changes will boost her energy level back up. We've been taking it easy since we got home and "Nap Boot Camp" has officially started....Read More >>
Good news -- GREAT news! Gwendolyn's appointment today went really well. All things considered, Dr. Yuan is actually really pleased with how Gwendolyn looks and sounds. Her labs came back excellent. Her x-ray was fabulous. And overall she is in tip-top shape. WHEW! We talked to Dr. Yuan for hours...Read More >>
Yesterday we had our holiday family photos taken with Jennifer Foster of Z's The Day Photography and Design. Well, family photos really as we have never had professional photos done specifically for the holidays before. Over the last three years we have had the honor of working with some...Read More >>
We had an AWESOME day yesterday! Awesome! And we needed it. The Santa Barbara Zoo hosted their annual "Snow Leopard Festival" (you may remember we went last year). The Santa Barbara Zoo actually trucks in piles and piles of ice to create snow for a one day really special event. They build a...Read More >>
We can only be said to be alive in those moments when our hearts are conscious of our treasures. ~Thornton Wilder
We have had a lovely long Thanksgiving -- a quiet, simple, fun family weekend. And it feels so good! And throughout it all, we were especially conscious of our many blessings! I know we...Read More >>
Let's face it, emergencies are a fact of life for SMA families and we've had our share of urgent medical situations over the years with Gwendolyn -- collapsed lung, regular mucus plugs, power outages, sudden vomit with fear of aspiration, forest fires, battery failures, life-critical equipment...Read More >>
GwendolynStrong.com has been a bit heavy of late. And while all of this is going on for Bill and me, we try really hard to not let it be part of Gwendolyn's life. No, Gwendolyn is 3 and should get to be just 3! And like most 3 year olds, the world is her oyster and fun can be found everywhere! So...Read More >>
On Thursday night we learned that our dear sweet special friend Jonas Coleman had passed away -- a gorgeous blue-eyed almost 3-year-old darling little boy. Tomorrow is his funeral. And we are heartbroken.
And while I try to sit with the thoughts of him now being able to run free, of him no longer...Read More >>
Ahh what a weekend! It was awesome!!! GSF's Golf For A Cure was held on Friday (more on that soon) and we were so, so excited that several of our SMA friends came into town to support it and spend time with us. The Calafiore's, Chris and Jennifer, and their darling daughter, Hayden, stayed at our...Read More >>
We are spent.
We were coasting. Coping. Busy with a capital "B", but glad it was all positive, good stuff.
But. It's not all positive.
Gwendolyn is fine. Thank God. But "fine" in the SMA world is still an awful lot of life saving. And that is hard. Plain hard. Last...Read More >>