Posts tagged with: Featured
I've always wanted to run a marathon -- it's one of those goals I planned to "one day" check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just six-months-old.
I was at work. My...Read More >>
Oh these two girls...they are just too much!Gwendolyn and Hayden just love each other and we were so excited to spend the weekend at Hayden's house -- a three day slumber party filled with fun, fun, fun!
The Calafiores live about four hours north of us in Central California. They are surrounded...Read More >>
Team Run For Owen is always amazing and tomorrow they are embarking on a new incredible adventure -- the Ragnar Relay. This fabulous 12 person team starts their journey in Albany, New York and in relay style will travel 196 miles to Tarrytown,...Read More >>
Lucy's Hope for a Cure in Fond du Lac, Wisconsin was a big success. For the second year in a row, Marjorie Trew-Munson organized this great neighborhood sale in honor of Lucy...Read More >>
San Fernando Valley friends, mark your calendars --> Pizza at Fresh Brothers next Tuesday and 20% goes to the Gwendolyn Strong Foundation to help end the #1 genetic killer of babies! That's right --> eat pizza, raise funds for SMA research! Easy!
WHEN --> Tuesday, May 17th from 11 to 9WHERE -->... Read More >>
In December I met Stephanie and Brandon Humes, owners of Lullaby Blankies. Stephanie reached out with an email about their story that goes something like this --> Gorgeous couple in love. Get married. Want to start a family. But Stephanie and Brandon's story takes a turn there. Thanks to a...Read More >>
Happy Mother's Day to the two best moms in the entire universe! There is no way to adequately thank you for the selfless daily sacrifices that you make for us and the immeasurable impact that you have had and are having on shaping our lives. You've devoted yourselves to making sure we have the...Read More >>
Woowee! Get your rummage on! You all have blown us away and there are Rummage To Cure sales popping up everywhere!
This weekend in Fond du Lac, Wisconsin and Canoga Park, California -->
Lucy's Hope for a Cure will host their 2nd annual Rummage To Cure! Lots of items for just 25 cents!
- WHEN -->...
Nora Gooden is surrounded by people who adore her and who fight SMA in her honor. And Nurse Kim is definitely one of them. The incredible Nurse Kim has organized a fun night with Sips N Strokes to "Paint Away SMA" in Knoxville, Tennessee on May 14th. Painting, spending time with friends, enjoying...Read More >>
Last Monday we packed up for four days of Disneyland fun and we met the Calafiore family for some BFF fun -- a sequel to Gwendolyn's birthday trip in October, only this time it was a "just because" trip. Gwendolyn is now...Read More >>
$8,110 was raised for the Gwendolyn Strong Foundation and our "$200K for SMA" campaign!!!A-mazing! Simply amazing! A big thank... Read More >>
What an awesome Easter! Easter egg decorating, playing, more playing. A Gramma slumber party. Easter egg hunting, Easter basket opening, more Easter basket opening, more Easter egg basket opening, more Easter basket opening. A beautiful walk to the park, a swing on the swings, a meeting with...Read More >>
We've always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level.We've been big supporters...Read More >>
In our personal experience, getting your arms around life-critical machines and supplies can be daunting in the process of dealing with a spinal muscular atrophy diagnosis. What will we need? Where will get all this stuff? What do others use? How are we going to figure all of this out? We remember...Read More >>
Thank you all for participating in the GSF Mother's Day Giveaway! We had so much fun and we hope you did, too! A big THANK YOU to the 10 fabulous vendors who contributed to this fantastic prize and who continually support the GSF and our mission to END SMA, the #1 genetic killer of young...Read More >>
We wish you all a happy, wonderful Easter!Read More >>