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Posts tagged with: Featured

Lamont Family Garage Sale Raises $2,000 for GSF

June 13, 2010 by Victoria Strong

We are so amazed by and are filled with enormous gratitude for each and every fundraiser that people continue hosting to benefit GSF and our mission to end SMA. Each time we receive an email from someone (many times from a person we have never met) offering to lend a hand to raise funds for our...

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Dance Party USA

June 11, 2010 by Victoria Strong
So every evening as I wait for Bill to get home from work I find myself gazing longingly at the clock. Tick. Tock. Tick. Tock. Where is my reinforcement? I think this end of the day fade is true for most parents -- the kids are spent, parents are fried, but it's not quite time for bed. In the past...
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To Shave or Not To Shave Only A Month Away

June 09, 2010 by Victoria Strong
The inspiring Team Lucy's Hope For A Cure have reason to celebrate -- with exactly a month to go they have nearly reached their $10,000 goal for their To Shave or Not To Shave campaign, raising over $8,000 so far! And they have been working hard to do it. The woman behind the mission, Barb Zahn,...
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Not A Fire Exit Optioned For Film

June 08, 2010 by Victoria Strong

Not A Fire Exit, the suspense novel written by Christopher Finlan, has been optioned for a motion picture! As you may remember, Chris and his Milverstead Publishing have been generously donating a portion of all proceeds of Not A Fire Exit and several other Milverstead publications (The Jeffrey...

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Rubber Duckie…You’re The One!

June 08, 2010 by Victoria Strong
The amazing Beb-e-ssential ladies, Penny and Melissa, have blown us away and we are so excited to share their exciting story! Not only did Penny and Melissa hold a GSF fundraiser, raising over $1,000 through sales of their darling handmade children's accessories, they then extended their GSF...
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7th Anniversary…And I’m So Glad

June 06, 2010 by Victoria Strong
Tomorrow is our 7th wedding anniversary...and I am so glad for you. And as we celebrate, these are the thoughts on my mind...

I'm glad our eyes met and you had the courage to say hello 11 St. Patrick's Days ago

I'm glad you didn't give up on me for canceling our first date with no good excuse and...
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Photo Shoot: Our Little Butterfly

June 03, 2010 by Victoria Strong

For Mother's Day Bill gave both his mom and me the gift of a photo shoot with the fabulous Kacie Jean. It was presented in an elegant box on fine stationary and with a lovely framed picture of Gwendolyn holding a sign that read: "My gift to you...pictures with ME!" (Note to dad's out there -- this...

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Animals, Animals Everywhere

June 03, 2010 by Victoria Strong
Gwendolyn loves animals. LOVES. Loves. Loves animals. Pretty much any animal -- she loves it. Lately we have had tons of fun animal encounters -- they seem to find us -- and she is having a blast. We got to meet trained bunnies and she even got to hold one. We met a new mini horse friend named...
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Makenzie’s Live, Laugh, Breathe Event

June 01, 2010 by Victoria Strong
I often wish that SMA had never entered my life, that I never knew any of this pain, that I didn't have to face any of this. And as often as I so wish I could wipe my SMA slate clean, in all of this, I have met some of the most incredible people that I have ever known. People who have faced...
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Sesame Street Live

June 01, 2010 by Victoria Strong
This weekend we had an awesome experience with Gwendolyn -- we took her to see Sesame Street Live!It was a day full of surprises and Gwendolyn was game for them all. She is always so ready for an adventure and I just love seeing her darling expression of anticipation -- and after such a stressful...
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SMAandNutrition.org: Calling All SMA Type I Families, We Need YOUR

May 28, 2010 by Bill Strong
I don't think anyone would argue that nutrition and proper dietary management is a critical component to any Spinal Muscular Atrophy (SMA) care philosophy. There are several options and points of view, but, unfortunately, to date there has yet to be any data driven scientific research to provide a...
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Long Legged Beauty

May 26, 2010 by Victoria Strong
Everyone always comments about how tall Gwendolyn is. And, yes, she is very tall. Bill and I are average height -- okay, I'm short. So it is always comical to us that Gwendolyn just seems to stretch and stretch and keep stretching. And her legs -- her long, lovely legs -- seem to go on forever. In...
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100 Miles For Owen: Clam Dinner and Car Wash

May 25, 2010 by Victoria Strong
100 Miles for Owen is jumping with action. Stephen Taylor who is running the Western States 100 Mile Ultra Marathon on June 26th is planning and inspiring all sorts of fun events in the Boston, Massachusetts area. We aren't quite sure where he finds the time to plan and organize all of this while...
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Change For Change

May 25, 2010 by Victoria Strong

This is a great idea that anyone can do -- anywhere. Let your spare change create real change for SMA!

Clean out the car, dig through old purses, look under the couch cushions, throw your extra change from purchases into a jar. Collect any coins that you find and at the end of each week, donate your...

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Team GSF: Meet David

May 24, 2010 by Victoria Strong
Team GSF has another incredible event coming up with another inspiring athlete: David Price. David and Bill went to USC together and when he learned of GSF through their mutual good friend, Matt Morse, David selected SMA as his cause to champion in his latest athletic challenge.David is...
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Abby Cadabby Dream Come True

May 21, 2010 by Victoria Strong

When we returned home after the Stanford trip, we received the most incredible surprise. And I mean, incredible! A dream come true for Gwendolyn. Unbeknownst to us, a friend of a friend was working on a little project for Gwendolyn (actually, a pretty darn BIG surprise in the world of an...

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GSF Awards $135,000, Partners On Promising Gene Therapy Program

May 20, 2010 by Victoria Strong

Gwendolyn Strong Foundation Awards $135,000, Partners On Promising Gene Therapy Program

We are so excited to announce the Gwendolyn Strong Foundation (GSF) has granted $135,000 to two promising cure focused SMA research programs. We have been working on these for months -- since a certain really...

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iPhone Photo Apps

May 19, 2010 by Victoria Strong
I'm obsessed. Totally and completely obsessed. I love the new iPhone photo apps and they've got me reinvigorated about documenting every second. Perhaps a little too much. I'm photographing everything -- mostly Gwendolyn. And the really neat thing is that Gwendolyn can use them, too. Check out the...
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Big Box Delight

May 18, 2010 by Victoria Strong
There are so many things that I plan to post about and just never get around to doing. One of those posts is how Bill and I spent our Valentine's Day this year -- at Sears. I know, romantic. But what WAS fun about buying a washing machine that day was seeing Gwendolyn experience a big store for the...
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Hope Calendar: GSF Selected as Beneficiary

May 17, 2010 by Victoria Strong

We are so excited -- the Gwendolyn Strong Foundation was just selected by the Hope Calendar as their charity for 2011. The Hope Calendar was started by Houston photographer, Debi Gomez, as an effort to give back to causes impacting children and, in the last three years, over $19,000 has been...

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