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SMA Awareness Month: Challenge Number Two.

August 08, 2011 by Victoria Strong

Way to go on Challenge Number One. Keep up the great work. You guys are doing an amazing job spreading the word about SMA and what we at the Gwendolyn Strong Foundation are trying to do to change it. Our Facebook Fan Page is growing every day, reaching new people, thanks to you!!!

Challenge Number Two is geared to those impacted by spinal muscular atrophy, but with the hope that through this coordinated effort we can define SMA for those new to the fight. GSF created the "This is SMA" campaign as a way to try to show what this disease really is and all year long on our Facebook Fan Page we post photos, stories, and videos of the good, the bad, and the reality of SMA. So, challenge number two is:

Post a photo of yourself or your loved one impacted by SMA on the GSF Facebook Fan Page. This is open to all ages, all types, all angels and all warriors. The point is to give a face to those three letters. Be sure to upload a picture (not just tag us) -- that way anyone can see your photo and description.

  • In the caption write the name, age (or angel dates), and one or two things you want others to know about you/your child. Example: "This is SMA and this is Gwendolyn. She is almost 4 years old. She loves adventure, playing with friends, and spending time with her horse pal."

 

 

 

 

We can't wait to see all of your images. Together we can end SMA -- ONE person and ONE dollar at a time!

Talk About It

We are impacted by SMA simply because we have fallen head over heels in love with Miss G! I remember vividly, the day I read her name in our church bulletin, and I wondered who was this "Baby Gwendolyn Strong?" Then, not a day later, an email cam through from Jane Riggio,sharing your story. That was over 3 years ago. I had never even heard of SMA before that day, and now, I carry it within my heart, along with Gwendolyn,as well as unbridled hope that a cure is around the corner. Together we WILL make a difference. Love to you al.
Posted by Zoey's mom on 2011-08-08 13:57:37
That would be "all"!!
Posted by Zoey's mom on 2011-08-08 13:57:59
I only became aware of this through a Facebook and racing friend, Kristen Strong Carter, I'm amazed that this has not gotten more press. I will do what I can to spread the word to help children like Gwendolyn.
Posted by Mike Welch on 2011-08-11 05:06:28
I checked the GSF Facebook wall and was inspired. I have too much to say about SMA to limit it to a short caption, so I'm linking up my blog post to the Wall. I love that August has permanent status as SMA Awareness Month in California! Way to go, you guys!
Posted by Cass on 2011-08-11 09:40:06
[...] asked families impacted by SMA to submit a photo and share something they would want others to know about [...]
Posted by This is SMA. And this is what incredible looks like. | Gwendolyn Strong on 2011-08-15 09:08:27

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