I Support SMA Research Because Babies Matter!November 16, 2009 by Victoria Strong Okay guys, we need help! And NOW! The SMA Treatment Acceleration Act has a window of opportunity in the House of Representatives now that the ginormous health reform bill is no longer at the forefront. But, it is a small window and so we need to up the ante, spread the word, get our mojo rolling again!!! PetitionToCureSMA.com is helping. It has given the SMA community backing to present to Congress. It has given a little known disease proof that a broader audience cares. The number of signatures on it makes a difference. So please, please ask every single person in your family, your friends, your coworkers to sign, post on facebook, tweet about it, pass out flyers, beg, plead, and SIGN. (It does not help to have you sign multiple times -- we need 100,000 unique signers.) With multiplied efforts, we can show Congress that SMA research matters because babies do!
PetitionToCureSMA.com -- 100,000 signatures HERE WE COME!!!
And THANK YOU!!!
To help your efforts, feel free to use the below or create your own ideas and be sure to comment about what you have done to spread the word!
Video: To post on your blog grab the "Embed" code on YouTube or here is the url for email: http://www.youtube.com/watch?v=DncMkpqn_xo
Flyer: Click image to download and print. It is a half sheet flyer, so cut and pass out!
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Are You An SMA Carrier? Advocating for the Affordable Care Act: Gwendolyn's Story (Video) It Arrived!!! Let the Adventures Begin!
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200k for sma featured gwendolyn strong foundation news fundraiser spinal muscular atrophy gwendolyn teamgsf sma tips friends parenting a child with disabilities sma awareness sponsor-a-mile family development concerned acts of kindness birthday video hospitalization chase community giving travel sma treatment acceleration act therapy good things for gwendolyn holidays doctor research g-tube transportation special outing uncategorized power chair newly diagnosed daily care health insurance sma carrier screening 3rd birthday giveaway photographer adapted toys grief sitting up smaheadlines.com 2nd birthday clinical trial unite for the cure medi-cal 1st birthday hospiceHide Tags
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