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Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

July 20, 2011 by Bill Strong

Over the last several years, we haven't shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn's Spinal Muscular Atrophy diagnosis. Throughout her SMA journey, we have always been conscious that we are but one family facing one devastating illness in a sea of many -- fully aware that there are tens of thousands of families in desperate need of help.

The Affordable Care Act (ACA), passed by Congress in March 2010, is one of those previous injustices and we've been pretty outspoken about its necessary passage and positive impact on families like ours (seeour March 2010 blog post about what the passage of ACA meant to us, theSeptember 2010 New York Times article on Gwendolyn's story,and the January 2011 post/video about Gwendolyn's story that was shared on the floor of Congress). We feel passionately about the material pieces of the ACA and that the ACA is necessary for survival for our family and others in similar situations. It lifted a monumental and unjust stress from our shoulders. It removed the threat of financial ruin. It means Gwendolyn will have access to health insurance for her entire life. And we feel equally as passionate about fighting to make sure this legislation is not railroaded.

We were humbled when the Consumers Union, the nonprofit organization that publishesConsumer Reports (one of the top 10 circulation magazines in the United States), invited us to tell Gwendolyn's story and how the ACA has helped our family. The video they created is one of several stories that highlight the different type of people this legislation impacts. We are honored to be one of them and we hope other families facing critical illness will feel justly represented. These videos will be shown across the country and to members of Congress -- and will, hopefully, help in protecting this important legislation.

For more information about the Affordable Care Act click HERE (and, yes, that is Gwendolyn's picture smile).

Talk About It

You are such an incredible, inspiring family.
Posted by Bridget on 2011-07-20 11:37:58
Great job! Thank you for your advocacy!
Posted by gettyowl on 2011-07-20 12:42:50
Good job!!!
Posted by Marcela on 2011-07-20 13:42:19
GREAT, GREAT JOB STRONG FAMILY!!! Let's hope this lame duck Congress listens!!!!
Posted by Gramma Strong on 2011-07-20 17:12:52
Go Strong family!!!
Posted by Megan and Justin morseth on 2011-07-21 03:59:29
Thank you guys so much for being a strong (no pun intended) voice for affordable health care. This legislation affects so many people, and I can't think of two more eloquent and wonderful people to be out advocating and educating.
Posted by Parvaneh Givi on 2011-07-21 08:39:45
Awesome job on awarenes of SMA and what it takes to live day to day with it. It's not fair for insurance to bail when there is a medical need. That's why we purchase it in the first place. Thanks for advocating for all us families.
Posted by Jennifer Calafiore on 2011-07-22 10:25:12
Please tell us how we may make a difference. Should we be getting signatures? Should we write letters? For so many I lOve this is a critical issue. How do we keep working insured insured? No family should have to pick and choose between treatment, medicine therapy because there is a cap on theirinsurace. Please tell us how to best support theACA. Thank youin advance! Ann walker
Posted by Ann Walker on 2011-07-23 20:47:17
[...] More Progressive Blog Watch: Advocating for the Affordable Care Act: Gwendolyn's Story (Video … [...]
Posted by Advocating for the Affordable Care Act: Gwendolyn's Story (Video … « Affordable Care Act « Progressive News Feeds on 2011-07-25 12:52:13

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