Blog Archive 04/2010
Our Little Picasso
April 29, 2010 by Victoria Strong Gwendolyn loves art -- especially coloring with markers and painting with watercolors and finger paint. Gramma usually brings a special art project every week. Lately they have been having lots of fun painting shapes and letters together...oh and stirring the brush in the water is lots of fun! Read More >>Team GSF: Meet Stephen
April 28, 2010 by Victoria Strong Meet Stephen Taylor. Stephen is an incredibly inspiring guy who has enthusiastically joined Team GSF to raise funds for SMA research. On June 26th, Stephen is running the Western States 100 Ultra Marathon. The Western States 100 starts in Squaw Valley California and goes through the Sierra Nevadas... Read More >>Beb-e-ssentials Fundraiser & The Gwendolyn Butterfly
April 24, 2010 by Victoria Strong
The butterfly in our logo is more than a design element. And while I have called Gwendolyn my little butterfly since she was a baby, it is more than that, too. Like a butterfly, SMA children have beautiful bright knowing spirits, but are delicate and fragile and confined in the cocoon of their...
Read More >>Recovering
April 23, 2010 by Victoria Strong Gwendolyn is doing okay. Apart from worry and insomnia, we are recovering...but it has left us all in a fog. Bill is exhausted.Gwendolyn wants her bipap all the time, which seems more psychological than an actual breathing change. And I start something and completely forget what I am doing. We are... Read More >>Los Angeles Friends: PLEASE Contact Rep. Waxman ASAP
April 23, 2010 by Victoria Strong It is extremely important that everyone call or email their representatives asking them to cosponsor the SMA Treatment Acceleration Act. but today it is especially critical that our Los Angeles friends tell Representative Henry Waxman that his support is needed.Representative Henry Waxman is key...
Read More >>Babysitter For Hire
April 22, 2010 by Victoria StrongOne 2 1/2 year old babysitter for hire with lots of experience. I give gentle snuggles, tickle toes, pat tiny baby bottoms, and know just how to put baby to sleep.
Gwendolyn LOVES babies! And I mean loves! She looks when she hears a baby cry, she wants to visit all of her friends' new baby...
Read More >>Call To Action: Help Pass SMA Bill
April 20, 2010 by Victoria Strong Calling all SMA supporters! We need your help!As you know the SMA Treatment Acceleration Act is making its way through Congress. While the last few months have been focused on health care reform, our little SMA bill has been circling the desks of lots of Senators and Representatives. The good news...
Read More >>Family Cartoon
April 19, 2010 by Victoria Strong
The benefits of living in a seaside town with lots of tourists? Sometimes its fun to be a tourist, too.
Read More >>Nominate GSF
April 19, 2010 by Victoria Strong
We have so many exciting things happening at GSF! With your help we are collectively making a difference in the future of SMA. Thank you so very much for continuing to fight for the children impacted by this cruel disease!
In the coming weeks we are going to ask more of you. We are going to ask you...
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