Blog Archive 07/2008

Green Day, Trek to the Doctor, Change in Feed…

July 31, 2008 by Bill Strong

Gramma and Gwendolyn match almost perfectly in their green outfits as Gwendolyn shows off her wave goodbye trick - this one to Mommy.

We had a trek down to the pediatrician for Gwendolyn's monthly check-up today. Once again Gwendolyn seemed to have more secretions when we were out-and-about. The...

PetitionToCureSMA.com Video

July 27, 2008 by Bill Strong

We created this video to promote PetitionToCureSMA.com online. As always, please feel free to pass the video link on to anyone that you think would be interested -- but -- only if they'll agree to sign the petition and send the petition link on to at least 100 friends

Click here to see the...

7,000+ petition signatures in 16 days!!

July 27, 2008 by Bill Strong

We now have received over 7,000 petition signatures from 44, yes 44 countries around the world and all 50 states. The state and country rankings didn't change this time. Keep up the good work promoting the petition to your contacts.

Nursery Rhymes and Hawaiian Music with GrandPa

July 27, 2008 by Bill Strong

This weekend was filled with tons of GrandPa peek-a-boos and nursery rhymes galore including "Itsy Bitsy Spider", "Ba Ba Black Sheep", "Humpty Dumpty", "Run Rabbit Run", and "Bye, Baby Bunting". Today we even made it out to a park near our house for some good old fashioned live Hawaiian music and...

Petition to Cure SMA and SMA Treatment Acceleration Act

July 26, 2008 by Victoria Strong

Congratulations! Our collective efforts are paying off!!! With your help, we have received over 6,200 signatures. And it is MAKING A DIFFERENCE. We are working closely with FSMA and FightSMA who are leading the charge on Congress on behalf of the SMA community. This week during their trip to DC,...

6,100+ Petition Signatures in 13 Days!!!

July 26, 2008 by Bill Strong

We now have received petition signatures from 41 countries around the world and all 50 states. Although the country rankings didn't change, Pennsylvania and Texas are new members of the top 5 states list. Here's the updated rankings:

Top 5 States

California
Ohio
Texas
New York
Pennsylvania

Jazz at the Courthouse - Take II

July 26, 2008 by Bill Strong

We had such an amazing time last month that we decided to walk down to the live jazz at the Santa Barbara Courthouse again tonight. The evening was beautiful. Gwendolyn was a bit "juicier" than normal so it was a bit more stressful, but once we got to the courthouse, settled under a nice shady pine...

Wakey! Wakey!

July 25, 2008 by Bill Strong

Dad - "Good morrrrrning sunshine. Smile!!!!"

Gwendolyn - "DAD!!! You better not put that on my blog! I just woke up and you haven't even wiped this drool off my face."

Victoria "spotlighted" on SBParent.com

July 24, 2008 by Bill Strong

Click here to read "Mom On The Move - Victoria Strong"

Gramma time!!!

July 23, 2008 by Bill Strong

Gwendolyn had a great day with Gramma today playing peek-a-boo, pat-a-cake, exercising, exploring the house and yard, and honking Gramma's horn (which is her favorite -- it makes her laugh every time).