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Queen Gwendolyn's Maiden Voyage

May 07, 2008 by Bill Strong
I'd be lying if I told you Victoria and I weren't on egg shells the whole voyage to the doctor's office yesterday but one very, very important thing I can assure you -- Queen Gwendolyn thoroughly enjoyed being escorted in her shiny cherry red wagon that the Families of SMA Foundation sent us and...
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Surgery Update

April 24, 2008 by Bill Strong


Hi All:

We just wanted to let everyone know that Gwendolyn's MIC-key button g-tube (feeding tube) surgery went extremely smoothly yesterday. Her recovery from surgery has progressed much more quickly than the doctors had anticipated and she is already out of the ICU, off of the ventilator,...

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Stanford Update (2)

April 17, 2008 by Bill Strong


We've had a very productive week meeting with a number of SMA specialists at Stanford and have learned a ton about how to provide Gwendolyn with the best quality of life possible through this journey. Gwendolyn was scheduled to have surgery tomorrow to implant a very important feeding tube in...

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Stanford Update

April 17, 2008 by Bill Strong

We thought we would send a quick update of the latest events -- and there are quite a few. Gwendolyn stopped breathing yesterday, but thankfully we were across the street from the emergency room. She is stable now, although dehydrated and exhausted. We were transferred to a pediatric ward last...

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Gwendolyn's beach debut

April 10, 2008 by Bill Strong
Gwendolyn loves feeling the wind in her hair at the beach.
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