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Posts tagged with: Video

New Snuggly Friends

July 30, 2010 by Victoria Strong
We have quite a few new snuggly friends lately from different special people in our lives and Gwendolyn is enjoying each of them completely. Gwendolyn always names each new doll and she will not simply accept the first name we throw out...that is unless it strikes her fancy. And once a doll is...
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Gwendolyn’s AA Diet Update: New Movements

July 27, 2010 by Bill Strong
It's been a bit over a month since we started Gwendolyn on her new Amino Acid (AA) diet and everything has been going really, really well. We were pretty nervous about the switch, but Gwendolyn has not had any issues with the transition other than minor constipation in the very beginning. Since the...
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Abby Cadabby Dream Come True

May 21, 2010 by Victoria Strong

When we returned home after the Stanford trip, we received the most incredible surprise. And I mean, incredible! A dream come true for Gwendolyn. Unbeknownst to us, a friend of a friend was working on a little project for Gwendolyn (actually, a pretty darn BIG surprise in the world of an...

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Yo Gabba at the SB Zoo

May 11, 2010 by Bill Strong

We were so excited that the Santa Barbara Zoo hosted a super special Yo Gabba Gabba event on Friday with the REAL Plex and Brobee characters in attendance! Gwendolyn LOVES Yo Gabba Gabba and we knew she would LOVE the opportunity to meet the cast. We danced to the fun music, hung out with friends,...

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VIDEO: Gwendolyn Sledding At The Santa Barbara Zoo

December 08, 2009 by Bill Strong
Gwendolyn taking a run down the sledding slope with Daddy at the Santa Barbara Zoo!
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VIDEO: Gwendolyn Riding The "Magic Carpet"

October 13, 2009 by Bill Strong
Check it out! Our little daredevil is at it again. This time she's taking a ride on the "magic carpet"...

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Second Birthday Princess Party

October 07, 2009 by Victoria Strong
Planning Gwendolyn's second birthday was so much fun. The big TWO has a lot of emotion attached to it -- given the echo of life expectancy for babies with Spinal Muscular Atrophy. But, we were determined...and I mean determined...for this monumental milestone to be a celebration filled with joy, ...
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VIDEO: Gwendolyn's Slide Adventures

October 01, 2009 by Bill Strong
Check out Gwendolyn taking on the big-girl-slide with Daddy last weekend! She was so excited to give it a try and there was no way I was leaving that park until we did...

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VIDEO: Gwendolyn's Rocket Ship Adventures

September 23, 2009 by Bill Strong
Check out Gwendolyn's rocket ship adventures with Mommy! She loves it.

5--4--3--2--1--BLAST-OFF!!!


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Viva La Fiesta!

August 08, 2009 by Bill Strong
We feel very fortunate to live in a community with many festivals, parades, and activities all year long. I think it's funny when I hear locals complain about all of them -- I know, it's a horrible tragedy living in a small beach community that provides you the opportunity to partake in the...
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Hamusuta: The Happy Hamster

August 05, 2009 by Bill Strong
We have a new fabulous toy for Gwendolyn! Gwendolyn's awesome cousin, Camie, immediately thought of her when she saw this crazy toy while on a high school summer trip to Greece and Italy. (What an awesome teenager, right? On a dream trip and still thinking of her baby cousin!) She brought it ALL...
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Brandon's Village: A Park Full of Inspiration

August 04, 2009 by Bill Strong

Last Friday, while staying with Gramma, we went to Gates Canyon Park/Brandon's Village in Calabasas, California. The park was simply AMAZING, inspiring! And, not because it is a handicap accessible park, but simply because it's a fantastic place for children to play! The design of this Universally...

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SMA Awareness Month; New Petition Video

August 02, 2009 by Victoria Strong
August is national SMA Awareness month and in honor of all of those who have lost their fight and the thousands of children still fighting SMA, we hope this video will help to further SMA awareness. We truly believe that through increased awareness of SMA a treatment and cure become infinitely more...
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VIDEO: Gwendolyn playing the monkey game

March 14, 2009 by Bill Strong
Thanks to our friend Laurian, "Monkeying Around" has become one of Gwendolyn's favorite games. She loves helping us hang the monkeys on the tree, one by one, in anticipation of which monkey will send the tree canopy crashing down. She giggles through the whole thing.

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VIDEO: Gwendolyn playing soccer goalie

March 10, 2009 by Bill Strong
I can't tell if Gwendolyn is really enjoying this or not smile

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VIDEO: Promising stem cell research (UC, Irvine)

March 02, 2009 by Bill Strong
A video featuring Dr. Hans Keirstead of the Sue and Bill Gross Stem Cell Research Center at University of California, Irvine discussing developing promising therapies based on stem cells to treat diseases such as Spinal Muscular Atrophy. While this research has nothing to do with the SMA Treatment...
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VIDEO: Gwendolyn sitting up, unsupported, playing

January 26, 2009 by Bill Strong
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VIDEO: Gwendolyn's New Sounds

December 22, 2008 by Bill Strong
Over the last week or so Gwendolyn has been chatting away with a new "yah, yah, yah, yah..." sound that we've never heard before. It melts our hearts every time she does it.

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VIDEO - Gwendolyn Playing With One of Her Adapted Toys

December 08, 2008 by Bill Strong
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VIDEO - Gwendolyn's Giggle

December 05, 2008 by Bill Strong
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