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Posts tagged with: Travel

Trilogy 100 Plug Adapter Issue and Cigarette Lighter Adapter Workaround

March 14, 2011 by Bill Strong
We had a pretty scary experience with Gwendolyn's Trilogy 100 bipap while on vacation in San Diego. Gwendolyn has been using the Trilogy for about 9 months now and we absolutely love it. We've had no problems with the machine and we haven't found anything negative about the machine -- nothing at...
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KEYT-3 (ABC) Santa Barbara, CA: SMA on "In Focus" special,

July 24, 2009 by Bill Strong
This morning we taped a segment with Mike Klan of KEYT-3 (ABC) for the "In Focus" special that airs every Sunday evening. The segment will include information on Spinal Muscular Atrophy (SMA), our trip, Sponsor-A-Mile, the Gwendolyn Strong Foundation, and PetitionToCureSMA.com.

Thank you Mike for...
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We're Home: Trip Recap

July 18, 2009 by Victoria Strong

We're home and the old adage is true, there is no place like home (a full size shower feels like such a luxury). But, we are also sad to see this trip come to an end. While we knew this journey was going to be special, it has been more than we could have ever imagined. We have had experiences...

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How We Made This Trip Work

July 18, 2009 by Bill Strong

We've found doing anything outside of our home with Gwendolyn to be challenging. Her machines, the power issues, being outside of our comfort zone, having no night nurse, the change in schedule, exposure to viruses, the added stress, etc. But, we also know how much Gwendolyn enjoys getting out...

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Acts of Kindness: LifeCare Solutions

July 17, 2009 by Bill Strong
We'd like to thank our home healthcare provider, LifeCare Solutions, for being unbelievably proactively supportive of our cross-country RV trip with Gwendolyn. One of our biggest concerns and stresses about this trip was Gwendolyn's machines and supplies. What would happen if we were in the middle...
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Where On the Road is Gwendolyn?

July 16, 2009 by Victoria Strong
Benson, Arizona, just for the night. And thanks to one of our great Sponsor-A-Mile corporate sponsors, KOA, we're all taken care of at the Benson KOA for the night. Thanks KOA!

The last couple of days have been tiring. We left South Padre Island, TX yesterday morning and have traveled over 1,100...
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South Padre Island Family Reunion Recap

July 15, 2009 by Victoria Strong

We had an absolute blast in South Padre Island, Texas with our family...and seeing Gwendolyn so utterly content made it all the more special...very, very special and memorable for all of us. Just being with family and seeing Gwendolyn surrounded by so many people who love her was enormously...

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Where On The Road is Gwendolyn?

July 13, 2009 by Bill Strong

South Padre Island, Texas. Twinkling her toes in the sand and feeling
the waves for the first time.
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Where On The Road Is Gwendolyn?

July 13, 2009 by Bill Strong

At the beach and loving it...
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Where On The Road Is Gwendolyn?

July 11, 2009 by Bill Strong

South Padre Island, Texas. Poolside!!! Someone get that girl a pina colada smile It is so nice to be down here at "the beach" relaxing and spending time with Victoria's family. Gwendolyn is having a blast, taking it all in, and enjoying each and every second of all of the undivided attention.

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Where On The Road Is Gwendolyn?

July 09, 2009 by Bill Strong

South Padre Island, Texas! We are so excited to be down here at "the beach" -- our final much anticipated family reunion before heading home. Victoria's super Aunt and Uncle organize a yearly gathering in Padre Island and under normal circumstances we come every year, but we haven't been able...
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Where On The Road Is Gwendolyn?

July 09, 2009 by Bill Strong

...the TeePee Motel & RV Park in Wharton, Texas! When we called yesterday to make reservations, the woman laughed and said, "You don't need a reservation. We've got plenty of spots, just pull on in." You mean Wharton isn't a hot spot? Well, the TeePee Motel should be! Although we are resting our...
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Where On The Road Is Gwendolyn?

July 07, 2009 by Bill Strong

French Quarter, New Orleans, LA. Post oysters on the half shell,
barbecue shrimp, and crawfish lunch at Brennan's. Pre French Quarter
stroll. Rained out this morning but cooler and wonderful this
afternoon. Enjoying our time here!
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Meeting Laurian and John Scott

July 07, 2009 by Victoria Strong

Yesterday we had the honor of meeting Laurian and John Scott for breakfast in the French Quarter. Laurian and John are an unbelievably inspiring couple whom we greatly admire. Although this was our first meeting, I feel as if I already have a deep and personal friendship with Laurian. I began...

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Visit with Harry Recap

July 06, 2009 by Victoria Strong



I would be lying if I didn't admit that I am thoroughly depressed after leaving Harry. I always feel this way after leaving him, although this time it is worse. He is truly remarkable. And I adore him. He has been an enormous influence in my life and I know I am fortunate for that.
We had a...

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Where On The Road Is Gwendolyn?

July 06, 2009 by Bill Strong

"The Big Easy" (although she's looking a bit zoned out in this picture)!!! We are enjoying the one-of-a-kind city of New Orleans, Louisiana, a place we've always wanted to experience together.

This morning we got out for some breakfast in the French Quarter, had a cafe au lait at the famous Cafe Du...
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Happy Birthday Daddy!

July 06, 2009 by Bill Strong

We love you so much Daddy! Thank you for being the most incredible
husband, father, friend...Happy Birthday!!!
posted by Victoria and Gwendolyn!
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Where On The Road Is Gwendolyn?

July 05, 2009 by Bill Strong
In Vicksburg, MS snuggled in Harry's arms on her 21 month birthday. Happy Birthday Gwendolyn - or "little doll" as Harry now calls her! Words simply cannot describe how much we are all enjoying each and every second of this...


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Gwendolyn Meets Harry

July 04, 2009 by Victoria Strong

We are beyond words thrilled to be here, to be with Harry, to be together. We are all savoring each and every single moment. Gwendolyn can't take her eyes off Harry - literally. She is mesmerized by him and his voice. I suppose we all are. We always have been. Anyone who has ever met Harry is....

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Meeting Dakin—Gwendolyn's Texas Boyfriend

July 02, 2009 by Victoria Strong
One of the first thoughts to cross our minds when we figured out the route we were going to take on this big journey was that we may have the opportunity to meet the Lovelace family who live in East Texas. Devon and Dakin Lovelace have a darling little boy named Dakin. His smile could melt...
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