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Posts tagged with: Sponsor-a-mile

Sponsor-A-Mile Raises $44k, awareness of SMA

August 22, 2009 by Bill Strong


When it was all said and done, we drove 4,816 miles round trip in an RV from Santa Barbara, CA to Vicksburg, MS and back. We had a blast, blew through a ton of diesel gas, and are very proud of all that was accomplished through our Sponsor-A-Mile awareness and fundraising campaign for SMA. We...

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KEYT-3 (ABC) "In Focus": Gwendolyn, SMA, and Gwendolyn

July 27, 2009 by Bill Strong

Thank you KEYT-3 (ABC), Santa Barbara, CA and Mike Klan for featuring Gwendolyn, SMA, Sponsor-A-Mile, and the Gwendolyn Strong Foundation on your special "In Focus" Sunday night program. We appreciate your support! Twelve minutes about SMA -- awesome!

Watch HERE
 

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KEYT-3 (ABC) Santa Barbara, CA: SMA on "In Focus" special,

July 24, 2009 by Bill Strong
This morning we taped a segment with Mike Klan of KEYT-3 (ABC) for the "In Focus" special that airs every Sunday evening. The segment will include information on Spinal Muscular Atrophy (SMA), our trip, Sponsor-A-Mile, the Gwendolyn Strong Foundation, and PetitionToCureSMA.com.

Thank you Mike for...
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We're Home: Trip Recap

July 18, 2009 by Victoria Strong

We're home and the old adage is true, there is no place like home (a full size shower feels like such a luxury). But, we are also sad to see this trip come to an end. While we knew this journey was going to be special, it has been more than we could have ever imagined. We have had experiences...

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How We Made This Trip Work

July 18, 2009 by Bill Strong

We've found doing anything outside of our home with Gwendolyn to be challenging. Her machines, the power issues, being outside of our comfort zone, having no night nurse, the change in schedule, exposure to viruses, the added stress, etc. But, we also know how much Gwendolyn enjoys getting out...

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Publicist Extraordinaire

July 17, 2009 by Victoria Strong
Raising awareness about SMA is paramount to us, believing that through awareness a cure becomes infinitely more attainable. So, when we embarked on this trip, we knew we wanted and needed to parlay it into coverage of this leading infant killer. But, garnering media attention is not always easy....
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Acts of Kindness: LifeCare Solutions

July 17, 2009 by Bill Strong
We'd like to thank our home healthcare provider, LifeCare Solutions, for being unbelievably proactively supportive of our cross-country RV trip with Gwendolyn. One of our biggest concerns and stresses about this trip was Gwendolyn's machines and supplies. What would happen if we were in the middle...
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SponsorAMile.com Update: $35,500 To Date; We Need Your Help To Reach

July 16, 2009 by Bill Strong
When we set out on this cross country adventure and organized SponsorAMile around it, we set a goal of raising $50,000 for the Gwendolyn Strong Foundation solely to benefit SMA awareness and research programs. To date, we've raised over $35,500 from 373 individuals and corporate sponsors. We are...
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Where On the Road is Gwendolyn?

July 16, 2009 by Victoria Strong
Benson, Arizona, just for the night. And thanks to one of our great Sponsor-A-Mile corporate sponsors, KOA, we're all taken care of at the Benson KOA for the night. Thanks KOA!

The last couple of days have been tiring. We left South Padre Island, TX yesterday morning and have traveled over 1,100...
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Valley Morning Star: Family on 5,000-mile journey to raise awareness

July 15, 2009 by Bill Strong

Thank you Gabriel Saldana and Valley Morning Star for helping us raise much needed awareness about Spinal Muscular Atrophy (SMA), the leading genetic killer of young children.

Click here or on the image below to read Gabriel's story.

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Island Breeze: Journey of Love Stops in SPI

July 15, 2009 by Bill Strong


Thank you to the Island Breeze for running a story on SMA and Sponsor-A-Mile! We appreciate it.

Click here to read the story.

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Care2.com: What is Spinal Muscular Atrophy (SMA)?

July 15, 2009 by Bill Strong

Read our second guest blog post on Care2.com. Click here to read the blog post.
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South Padre Island Family Reunion Recap

July 15, 2009 by Victoria Strong

We had an absolute blast in South Padre Island, Texas with our family...and seeing Gwendolyn so utterly content made it all the more special...very, very special and memorable for all of us. Just being with family and seeing Gwendolyn surrounded by so many people who love her was enormously...

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Where On The Road is Gwendolyn?

July 13, 2009 by Bill Strong

South Padre Island, Texas. Twinkling her toes in the sand and feeling
the waves for the first time.
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Where On The Road Is Gwendolyn?

July 13, 2009 by Bill Strong

At the beach and loving it...
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Where On The Road Is Gwendolyn?

July 11, 2009 by Bill Strong

South Padre Island, Texas. Poolside!!! Someone get that girl a pina colada smile It is so nice to be down here at "the beach" relaxing and spending time with Victoria's family. Gwendolyn is having a blast, taking it all in, and enjoying each and every second of all of the undivided attention.

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Where On The Road Is Gwendolyn?

July 09, 2009 by Bill Strong

South Padre Island, Texas! We are so excited to be down here at "the beach" -- our final much anticipated family reunion before heading home. Victoria's super Aunt and Uncle organize a yearly gathering in Padre Island and under normal circumstances we come every year, but we haven't been able...
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Palestine Herald-Press: Never Too Old for Accolades

July 09, 2009 by Bill Strong

Thank you again Palestine Herald-Press and Cheril Vernon for another wonderful article! We are so glad you featured the thoughtful deed by your newly elected mayor. Harry can't stop talking about it!!! And as "Honorary Citizens," Mayor Herrington gets our vote for re-election!

Click here or on the...
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Care2.com: The #1 Genetic Killer of Young Children - that You've

July 09, 2009 by Bill Strong

Care2.com, one of our corporate sponsors for Sponsor-A-Mile, has been so unbelievably supportive and encouraging of all of our cause efforts. This week they asked us to guest blog on their Care2 community. Not only did they post our blog post, but they featured it on their homepage as their...
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Acts of Kindness: The Prokopetz Family

July 09, 2009 by Victoria Strong

We received the most heartwarming email from our blog friend Lisa about the wonderful gesture her darling children created to benefit the Gwendolyn Strong Foundation. The Prokopetz family live in Canada and July 1st is Canada Day. As part of their celebration, sweet Matthew and Sidney asked their...

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