Posts tagged with: Sma Awareness
Guess which charity is being featured by Chase Community Giving? Yep, the Gwendolyn Strong Foundation!!!
We are really honored that out of all of the hundreds of charities and great causes who have won Chase Community Giving grants over the last year, that they selected the GSF to feature in a...Read More >>
Our friends Hillary and Keith Schmid, parents to twins Zane and Avery, are amazing. Their determination and take-the-bull-by-the-horns spirit continually motivates us. There are just certain people in the world that see an issue and, instead of complaining about it, are stirred to action. And that...Read More >>
Whew - where did the month go? There is only one week left in October, which means only one week left to be part of Beb-e-ssentials Birthday Bash for Gwendolyn! These fabulous ladies have turned their entire business over to increasing SMA awareness and funding and we are simply blown away by them...Read More >>
On Sunday, Bill, Gwendolyn and I were invited by the Jimmie Johnson Foundation to attend the NASCAR Sprint Cup Pepsi 400 -- the Helmet of Hope race. We were really excited to get to be part of this and especially to thank Jimmie and his foundation for all they have done for SMA and the Gwendolyn...Read More >>
We are beyond excited! NPR or National Public Radio's highly respectedCalifornia Report is airing an interview about Gwendolyn and spinal muscular atrophy (SMA) this Friday and Saturday! The segment will be aired statewide on Friday at 4:30pm PT on over 30 stations and again inSanta Barbara and...Read More >>
Whew! What. A. Race.
We're not sure how many times we bumped between the #1 and #2 spot over the last three weeks in this contest, but it was probably in the neighborhood of several times daily. A pretty exciting contest indeed! The Samsung Helmet of Hope was literally down to the wire yesterday...Read More >>
Today is the first ever "SMA BLOG PARTY!" Thanks for joining us by reading about the #1 genetic killer of young children, posting about this cruel disease, and sharing the links with others. The idea of the "SMA BLOG PARTY" is simple -- bloggers come together to 1) Talk about SMA, 2) Put a face to...Read More >>
Yes, an official "SMA BLOG PARTY!" The first ever! What's a "Blog Party"? Simple -- We all come together and post about the same topic on the same day -- in this case Spinal Muscular Atrophy, SMA!
On THURSDAY, September 16th, bloggers will come together to 1) Talk about SMA, 2) Put a face to this...Read More >>
We are so excited and it's been hard to keep the secret over the last 24 hours! We had a conference call with the awesome folks at the Jimmie Johnson Foundation yesterday morning -- yes, the reigning 4-time NASCAR Sprint Cup Champion and 3-time Brickyard Winner Jimmie Johnson --and there is...Read More >>
We've been so busy working on the "$200K for SMA" campaign that we completely forgot to update about the other wonderful things that have been happening with Spinal Muscular Atrophy awareness and advocacy this month.
The State of California Declares August SMA Awareness Month --> This took a lot of...Read More >>
You aren't going to believe the awesome adventure that is taking the SMA fight to a new height! A 22,840 foot height! Yes, that's right...mountain climbing!
You may remember gorgeous Jadon Burks from this post. Well his incredible parents, Tony and Kristin, and their wonderful mountain climbing...Read More >>
We are so, so excited! We just received news from the Jimmie Johnson Foundation that the Gwendolyn Strong Foundation (GSF) was selected for this year's Samsung Helmet of Hope!!! We are absolutely honored to be part of this wonderful project and beyond thrilled that more people will now hear about...Read More >>
Not A Fire Exit, the suspense novel written by Christopher Finlan, has been optioned for a motion picture! As you may remember, Chris and his Milverstead Publishing have been generously donating a portion of all proceeds of Not A Fire Exit and several other Milverstead publications (The Jeffrey...Read More >>
I want you to meet our friends, the Zahn family: Noah, Barb, and baby Lucy. Lucy is the most darling little girl and this July she will turn one. And, yes, Lucy has SMA.
On October 14th, Lucy Zahn was diagnosed with SMA Type 1. Within mere months and in the midst of learning to care for a...Read More >>