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Posts tagged with: Sma Awareness

Gwendolyn Becomes Honorary Vaquero | Game This Saturday

September 23, 2011 by Victoria Strong

What a positive night. Yesterday evening Gwendolyn became an "Honorary Vaquero Captain" at Santa Barbara City College's football practice. The big game and her "official" Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team and cheer squad wanted to meet her ahead of time...

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SBCC Supports GSF and Makes Gwendolyn Honorary Vaquero Captain

September 15, 2011 by Victoria Strong

Are you ready for some football? Come on out Saturday, September 24th at 5:30 to support the Gwendolyn Strong Foundation and cheer on Miss G as she becomes the Honorary Vaquero Captain.

We are very excited and honored to have been selected as one of five charities the Santa Barbara City College...

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Santa Barbara Businesses Support theGSF

August 24, 2011 by Victoria Strong

Santa Barbara and its residents have been nothing but embracing since Gwendolyn's diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends...

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This is SMA. And this is what incredible looks like.

August 15, 2011 by Victoria Strong

We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless.

These families and their stories represent what this disease really is. SMA is far more than its brutal...

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City of Santa Barbara Again Declares August SMA Awareness Month

August 12, 2011 by Victoria Strong

Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about...

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Cupcakes for Amanda

August 11, 2011 by Victoria Strong

Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has SMA.

For the entire month of August Amanda...

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Do Something. Make a Difference. August is SMA Awareness Month!

August 01, 2011 by Victoria Strong

August is SMA awareness month and since you are reading this you probably already have a general idea about this brutal disease and why increasing awareness of it is so necessary. Over the next few weeks we will be asking things of you. We will be challenging you to get more involved. We will...

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State of California Declares EVERY August as SMA Awareness Month!

July 28, 2011 by Victoria Strong

Awesome news! The state of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year's declaration. The proclamation doesn't just pertain to this August. Nope. S.C.R. 43, introduced by our awesome state senator,...

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Advocating for the Affordable Care Act: Gwendolyn’s Story (Video)

July 20, 2011 by Bill Strong

Over the last several years, we haven't shied away from lending our voices to advocate on behalf of injustices we have faced. Most of these injustices, if not all, are sides to issues that we may have never become aware of had it not been for the life-altering reality of Gwendolyn's Spinal Muscular...

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Strawberry Festival Goodness

June 28, 2011 by Victoria Strong
The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the...
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The Great Duck Race Round Two

June 02, 2011 by Victoria Strong

Remember last year when the "Gwennie" duck was plucked from the water out of 1,007 rubber ducks at the Troy Strawberry Festival? Remember how Penny and Melissa from Beb-e-ssentials donated all of the $1,000 winnings to the GSF?Well, they are at it again. And get this -- the City of Troy and the...

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Ninth Graders Host Spaghetti Banquet To End SMA and Raise Over $4,000

April 19, 2011 by Victoria Strong
Children helping children...it gets me every time! And I love it!

Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Strong Foundation! But these students didn't...

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Killer B Fitness Goes the Extra Mile for SMA!

March 21, 2011 by Victoria Strong
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer B Fitness, planned the entire event and they...
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2011 Winter Wine Down - Santa Barbara Get Your Tasting On!

March 15, 2011 by Victoria Strong

Santa Barbara Get your palate ready! This years MDA Winter Wine Down is only a few weeks away!!!

We are so excited about the 2011 Winter Wine Down. Firstly because last year was SO, SO much fun! Secondly, we are beyond thrilled that the Santa Barbara MDA decided to dedicate 100% of ALL proceeds of...

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Team Owen Simmons 100 Runners Strong; New Bedford Race in ONE Week

March 13, 2011 by Victoria Strong
Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!!

We are so moved by this effort and the many poignant elements to...

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Meeting Congresswoman Capps

February 01, 2011 by Victoria Strong

Today we met with Congresswoman Lois Capps at her Santa Barbara office. We have met with, emailed, and spoken with her Health Aides many times before, but we have never actually met Representative Capps. The first thing you should know is that she is really super nice. (I found myself wanting...

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GSF selected as part of the famous Grand National Roadster Show

January 19, 2011 by Bill Strong

We are honored and humbled to have been selected by the Grand National Roadster Show as one of only two charities that will benefit from proceeds of its unique auction. The auction features artwork created by the best pinstripers in the nation and it will be held at the Pinstripers Reunion on...

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Hope Calender: Last Call and Finishing Up

January 11, 2011 by Victoria Strong

The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response -- making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. Click here to buy. And for all of those...

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New Bedford Half Marathon Update and New Team GSF Runners!

January 10, 2011 by Victoria Strong

We are bowled over by all of the enthusiasm and positive energy being put toward fighting SMA! Runners are signing up left and right and we think it is simply incredible! And we are super excited to learn that the race director of the NB Half and the Friendly Sons of St. Patrick committee are...

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New Year’s Resolution? New Bedford Half Marathon!

January 01, 2011 by Victoria Strong

Feeling the need to challenge yourself? Wanting to get in shape? Thinking about getting involved in philanthropy? Well, you have a little over two months to prepare -- the New Bedford Half Marathon is calling YOUR name and so is Team GSF!!!

Rated one of the top 25 half marathons by Runner's World...

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