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Posts tagged with: Research

Irvine, California | An Evening with Dr. Hans Keirstead

October 23, 2011 by Bill Strong

If you live near Irvine, California you don't want to miss this incredible opportunity to meet and learn from a pioneer in stem cell research! Our awesome friends at The Roman Reed Foundation are hosting "An Evening with Dr. Hans Keirstead" at University of California, Irvine on Wednesday, October...

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Why We Chose A Pre-Clinical Model As Our Next Research Focus

March 04, 2011 by Bill Strong

Taking a step back. Looking at the big picture. Making sure our direction is sensible and methodical. That is why we chose a pre-clinical model as our next research focus.

Over the past two years, the Gwendolyn Strong Foundation (GSF) has taken a laser-guided missile approach to funding research,...

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“$200K For SMA” Goal Surpassed! GSF Signs On To Continue Funding

February 10, 2011 by Victoria Strong

We did it!

That's right, we ALL DID IT!

In just six months since launching the "$200K for SMA" fundraising challenge, the Gwendolyn Strong Foundation and FightSMA -- and all of our wonderful supporters -- not only raised $200,000 for gene therapy research -- we blew it out of the water!...

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HELP NEEDED: Help Us Save Critical Research Funding

February 05, 2011 by Bill Strong
We. Need. Your. Help.

[it takes less than a minute]

A great "friend in the fight", the inspiring Don C. Reed and his equally inspiring son, Roman Reed, are on the front-lines battling once again in California to save funding for spinal cord injury research -- which, in turn, can benefit spinal...

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Watch, THINK!, and sign the Stem Cell Charter!

July 07, 2010 by Bill Strong
Thank you Canadian Stem Cell Foundation for asking us to be part of your campaign and selecting GSF to profile. We are honored to contribute to your grassroots movement to move this promising science forward. And GSF will always support your positive and important work!

Have you signed the Stem...

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Help Us Raise “200K for SMA” Gene Therapy Research!

July 06, 2010 by Victoria Strong

$200K for SMA --> One person and one dollar at a time. Together we can end SMA!

Why Your Support Matters -->

The Gwendolyn Strong Foundation (GSF) is a 501(c)(3) nonprofit public charity dedicated to ending Spinal Muscular Atrophy (SMA), the leading genetic killer of infants and young children. As...

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SMAandNutrition.org: Calling All SMA Type I Families, We Need YOUR

May 28, 2010 by Bill Strong
I don't think anyone would argue that nutrition and proper dietary management is a critical component to any Spinal Muscular Atrophy (SMA) care philosophy. There are several options and points of view, but, unfortunately, to date there has yet to be any data driven scientific research to provide a...
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GSF Awards $135,000, Partners On Promising Gene Therapy Program

May 20, 2010 by Victoria Strong

Gwendolyn Strong Foundation Awards $135,000, Partners On Promising Gene Therapy Program

We are so excited to announce the Gwendolyn Strong Foundation (GSF) has granted $135,000 to two promising cure focused SMA research programs. We have been working on these for months -- since a certain really...

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As Promised, $25,000 To Dr. Keirstead

December 19, 2009 by Bill Strong

It is with great pleasure and mountains of hope that we sent this $25,000 grant to Dr. Hans Keirstead at University of California, Irvine on behalf of each and every single Facebook user that voted for the Gwendolyn Strong Foundation in the first round of the $5M Chase Community Giving campaign. We...
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Dr. Keirstead's Research Named "Project That Will Change

November 18, 2009 by Victoria Strong
Dr. Hans Keirstead's research was just featured in Esquire magazine as one of 2009's "Six Radical Projects That Will Change Science Forever". This is the groundbreaking research that we wholeheartedly support. Dr. Keirstead and his team are our hope to cure SMA and this is why we started Unite For...
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SMA Research Study Needs SMA Moms

November 06, 2009 by Victoria Strong
I think carrier screening is crucial to increasing awareness of SMA and in both treating and preventing it. And with SMA carrier prevalence as high as 1 in every 40 people, it is high time that SMA joins Cystic Fibrosis as a routine option for potential parents. I know most families impacted by SMA...
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Unite For The Cure: Take a look at what's going on over here!

August 24, 2009 by Bill Strong
Unite For The Cure

If you haven't done so recently, take a stroll over to UniteForTheCure.com to see what's going on! We are so excited that 11 inspiring "Uniters" are already on board and we'll be announcing additional families soon...

We started Unite For The Cure to motivate the SMA community to band together to...
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Calling ALL SMA Families: Unite For The Cure!

August 18, 2009 by Bill Strong

This is an urgent call to action for all families impacted by SMA. We need your help to make sure that the promising stem cell research program in California -- that has the very real potential to CURE SMA -- makes it to FDA approved human clinical trials. If we don't act as a community,...
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Run For Owen

August 16, 2009 by Victoria Strong

I was planning to post about Dorothy Shuler and her extraordinary efforts when I read "Lucy's" post this morning. I am continually struck by the remarkable people in the SMA community -- a club I know we'd all rather not belong to, but nonetheless unites us on a very deep level forever. Dorothy...

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Promising Research Needs Funding

August 11, 2009 by Bill Strong
A few weeks ago, Victoria, Gwendolyn, and I were invited to an update event for a very promising stem cell therapy program headed by Dr. Hans Keirstead, Co-Director of the Sue and Bill Gross Stem Cell Research Center at UC Irvine. In short, this therapy has the potential to end, yes END Spinal...
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California friends, we need your help!!!

April 03, 2009 by Bill Strong
Families of SMA (FSMA) is working with California Stem Cell, Inc. (CSC) to secure federal funding for a clinical trial aimed at identifying a cure for SMA via cell replacement therapy. They are at a critical juncture in this process and we need your support!

If you live in California please...
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Obama Lifts Strict Bush Limits on Stem Cell Research

March 09, 2009 by Bill Strong
Obama Lifts Bush's Strict Limits on Stem Cell Research (NY Times)

I'm sure you can imagine my interest and delight in learning that Obama overturned Bush's strict limits on stem cell research today. In 2001, Bush limited federal funding to a very small number of stem cell lines in existence at the...
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VIDEO: Promising stem cell research (UC, Irvine)

March 02, 2009 by Bill Strong
A video featuring Dr. Hans Keirstead of the Sue and Bill Gross Stem Cell Research Center at University of California, Irvine discussing developing promising therapies based on stem cells to treat diseases such as Spinal Muscular Atrophy. While this research has nothing to do with the SMA Treatment...
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Stem cells from SKIN cells develop heartbeat

February 13, 2009 by Bill Strong
This is really encouraging stuff.

Stem cells develop heartbeat
By: Molly Sheetz /The Daily Cardinal - February 13, 2009

UW-Madison researchers have discovered a way to convert stem cells developed from adult skin cells into functional heart-muscle tissue, a breakthrough that could change the way the...
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F.D.A. Approves First Stem Cell Trial On Humans

January 23, 2009 by Bill Strong
"In a research milestone, the federal government will allow the worlds first test in people of a therapy derived from human embryonic stem cells."

N.Y. Times - F.D.A. Approves A Stem Cell Trial

FINALLY!!! The initial human clinical trial will focus on spinal cord injuries, not SMA, but its results...
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