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Posts tagged with: Parenting A Child With Disabilities

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March 01, 2010 by Victoria Strong
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Big Girl Salon Hair Cut

February 16, 2010 by Victoria Strong
This weekend we took Gwendolyn to the big girl fancy salon that Mommy and Daddy go to, Walter Claudio Salon Spa, for her official second hair cut. The whole salon idea came from how much she loves "Daddy Salon" after her bath and that she was in bad need of a hair cut coupled with my stylist, Jen,...
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Special Buddies

February 09, 2010 by Victoria Strong
Gwendolyn loves her friends. She just loves them. When I say their different names, she immediately lights up and gets so excited about going to see them. And although she usually watches from her stroller or from the couch as they play (toddlers are pretty busy), I can tell she still feels...
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Gwendolyn Playing On Her iPod Touch; So Many Possibilities!

December 31, 2009 by Bill Strong
Gwendolyn's big Christmas present this year was an iPod Touch. We think the super-sensitive "touch" screen and the thousands of fun applications through the App Store will be great for her to play independently -- something that we're always struggling with given her challenges. We also think the...
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All I Want For Christmas…

December 13, 2009 by Victoria Strong
All I want for Christmas is....

Hope for my child.
I dont dream of her walking.
I dont wish that she could climb a tree.
Those things are lovely, but we could manage life in a powerchair...
and I know my little fighter would rise to the challenge with a smile.
No, my wildest dreams are simple.
I wish my...
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Let It Snow, Let It Snow, Let It Snow

December 07, 2009 by Victoria Strong


Yes, you read that right. Santa Barbara has snow...well, sort of...

When your child is disabled and/or given a terminal diagnosis, there are certain things, certain ideas you had about being a parent that are especially difficult to let go of. They usually make little sense to someone...

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Great AFO Socks, SmartKnitKIDS seamless sensitivity socks

December 05, 2009 by Bill Strong
Finding socks that work well with Gwendolyn's AFOs has been challenging. Most children's socks have raised bumps, lines, or patterns and are too big or too small or too high or too short. And it's not like Nike is manufacturing Dri-FIT technology socks for toddlers, so the fabric most children's...
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Gwendolyn's Wheels (watch your toes…)

December 03, 2009 by Bill Strong
Gwendolyn has been practicing and practicing and practicing in her power chair and she's starting to really get the hang of it. She loves it -- and that's absolutely the most important thing. Her face beams when she is in her chair and she loves "finding" Daddy and Mommy and Gramma. Watching her...
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Joe Barnick, thanks for the inspiration!

November 20, 2009 by Bill Strong
This is such a small, small, tiny world in so many ways. Victoria and I have been researching and thinking through ways to use technology to help Gwendolyn communicate. There is a really cool application that we've been looking at, Proloquo2Go, that brings augmentative and alternative communication...
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Date Night

November 18, 2009 by Victoria Strong
Bill and I had a first -- and this is a big one -- we got a babysitter and went on a date without Gwendolyn!

This is only the second time in Gwendolyn's entire life that we have left her with someone. The first time was when she was just four-months-old and stayed with Gramma while Bill and I went...
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Power Chair Practice

November 12, 2009 by Bill Strong
Gwendolyn likes to move it, move it! She LOVES the power chair and gets so excited when we go in the backyard to practice, practice, practice. We are practicing every afternoon and she totally gets it -- now we just have to get the modifications to stay in the correct place. If you hear a lot of...
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Gwendolyn's First Steps

November 03, 2009 by Bill Strong

Over the last month we've been prepping Gwendolyn and getting her comfortable with her hot pink demo power chair at one of her therapy sessions every week. She's taken baby steps, as usual, warming up to the idea at first and slowly making her own decision when she's ready to take the next step.

...

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Warming Up To That Power Chair

October 20, 2009 by Bill Strong
On Monday, Gwendolyn had a big, huge, gigantic personal breakthrough with her demo pink power chair at our weekly therapy appointment. We've been careful not to push her too quickly into the chair, knowing that it was going to be a major step for her and one that she had to make on her own -- at...
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VIDEO: Gwendolyn Riding The "Magic Carpet"

October 13, 2009 by Bill Strong
Check it out! Our little daredevil is at it again. This time she's taking a ride on the "magic carpet"...

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EEG Follow Up

October 09, 2009 by Victoria Strong
We met with a local neurologist this afternoon to discuss the EEG and the episodes we are seeing. It was inconclusive at this time, but there is concern that what we are seeing is indeed a seizure disorder. We were with the doctor for hours today and went over everything from possible medicines to...
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Gwendolyn's EEG

October 08, 2009 by Bill Strong
We've been noticing Gwendolyn having random periods (semi-regularly and mostly off bi-pap) where she is blankly staring into the distance and is more or less unresponsive for several seconds. Her pupils dilate and/or one or both eyes will travel or float during the episode. It's definitely alarmed...
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VIDEO: Gwendolyn's Slide Adventures

October 01, 2009 by Bill Strong
Check out Gwendolyn taking on the big-girl-slide with Daddy last weekend! She was so excited to give it a try and there was no way I was leaving that park until we did...

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Warming Up To The Power Chair

September 30, 2009 by Bill Strong
On Monday, we had very exciting "first" -- and much sooner than we anticipated. Gwendolyn got to see and try a Permobil K300 power chair. And it was hot pink!

Our experience with new things, especially big new things for Gwendolyn, is that she needs a warm-up period to get used to the idea and,...

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VIDEO: Gwendolyn's Rocket Ship Adventures

September 23, 2009 by Bill Strong
Check out Gwendolyn's rocket ship adventures with Mommy! She loves it.

5--4--3--2--1--BLAST-OFF!!!


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H1N1/Swine Flu—No Joke For Us

September 19, 2009 by Victoria Strong
I know we've all heard enough about the H1N1/swine flu on the news to know it is serious -- or potentially so. While the rest of the country flew into hyper mode last spring, Bill and I continued what we do every single day -- washing, sanitizing, and limiting exposure. And while parents discussed...
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