Posts tagged with: Parenting A Child With Disabilities
Gwendolyn is going to preschool. Shes going to preschool. PRESCHOOL! Today is the big day! Her very first day of school. Can you believe it?
So the logistics.
I am going with her. Its funny because this is never something Bill and I talked about. We never asked permission from anyone. We...Read More >>
Where do we even begin... Disneyland was an absolutely amazing experience for Gwendolyn (and us, too)!!! To see the imaginative world through the eyes of your child is incredible...for any parent...and for us, well, it was everything -- surreal!!!
There isn't really a ONE thing that stands out as...Read More >>
Anyone who knows us knows that raising broad awareness of SMA is something that we are pretty passionate about...just a wee bit. And. So. Well. We're pretty excited around here today. The New York Times ran a vignette on our family today about SMA and our perspective on the two pieces of the new...Read More >>
We've been...Read More >>
Gwendolyn has therapy every day -- on some days twice. The therapy ranges from stretching to play and sometimes a combination of the two, but all of it allows Gwendolyn to experience things she could not without the help of some very special people.
Therapy for SMA children is a challenge. It's not...Read More >>
So I am having one of those weeks. I just feel spent, emotional, lump in the throat. Gwendolyn is doing okay -- not 100% yet -- but thank goodness not going down hill. We have had a few choking scares and I don't think I will ever get used to saving my daughter's life. And there is the anxiety of...Read More >>
So Gwendolyn is fighting something. We hesitate to say she is sick because, well, she's smiling and insisting on doing things and going places, but she's just not quite right. No fever. No major lethargy (although a little more tired than usual). But she's not fully herself either. For several...Read More >>
We're celebrating a small, but very sweet victory in the Strong household. Back in December 2008, I posted about how inaccessible our neighborhood sidewalks are. I was pretty annoying about the whole thing with the City -- and then a little more annoying. Well persistence paid off! And while the...Read More >>
Gwendolyn's disabilities are such that we...Read More >>
The summer has just begun, but we have already been having lots of fun.
We've been having picnics with friends.
We've been teaching our princesses to dance.
We've been swinging in our new swing.
We've been taking Abby Cadabby for strolls.
We've been relishing time with old friends.
We've been reading...Read More >>
We were so excited that the Santa Barbara Zoo hosted a super special Yo Gabba Gabba event on Friday with the REAL Plex and Brobee characters in attendance! Gwendolyn LOVES Yo Gabba Gabba and we knew she would LOVE the opportunity to meet the cast. We danced to the fun music, hung out with friends,...Read More >>
This isn't the first...Read More >>
We had a really wonderful Easter weekend. My dad and Bill's mom came up on Saturday and Gwendolyn loved it. She kept looking back and forth at them, listening to everything everyone was saying, and seemed extra content to have both Gramma and GrandPa around her. We had fun doing an Easter egg...Read More >>
Gramma is so creative and I am so glad. I have been busily collecting little gifts for Gwendolyn's Easter basket over the last few weeks (the usual sweets in the basket don't work for a child who doesn't eat by mouth), but I completely forgot about dying Easter eggs...and that's a perfect...