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Posts tagged with: Parenting A Child With Disabilities

Accessibility for the disabled

December 22, 2008 by Bill Strong
I never realized how truly inaccessible the world is for those with disabilities until our experience with Gwendolyn -- and I'm not even the one with the disability. When we transport Gwendolyn, on walks or in the GVan, we live in a constant state of planning ahead to make sure we can get from...
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Medi-Cal—-> one step closer…

December 19, 2008 by Bill Strong
We're one step closer to getting Gwendolyn accepted into the Medi-Cal system, California's Medicaid program funded by the State and federal governments. The program will open up many services for Gwendolyn -- the most immediate we hope would be more nursing hours during the day to provide us...
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Our experience with our hospice

December 07, 2008 by Bill Strong
I'll never forget being in the hospital at Stanford and again at Cottage Hospital in Santa Barbara and our social workers mentioning that we consider going on hospice. Despite Gwendolyn's condition being terminal and the fact that we were completely, utterly lost on how we were going to make this...
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I Don't Think I Like Teething Very Much

December 05, 2008 by Victoria Strong
I'm not sure what is going on, but Gwendolyn had an enormous meltdown today and it really scared me. She woke up from her nap and seemed a bit crabby, but then she hit the wall and hard. I gave her a treatment, it was about time anyway, because I thought she may have a plug making it difficult for...
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VIDEO - Gwendolyn Enjoying Her New Play Apparatus

November 16, 2008 by Bill Strong
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Disney Playhouse Live at the Granada

September 22, 2008 by Bill Strong

Today we went to the Granada Theater with GrandPa to see the live
rendition of Disney Playhouse. I'm proud of us as there were many good
reasons we could have used to convince ourselves not to go. But we
rallied our courage and we all had a blast -- most importantly
Gwendolyn. She absolutely loves...
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Gwendolyn First Swim

August 24, 2008 by Victoria Strong

Michael Phelps watch out -- your competition has arrived!

Gwendolyn loves the pool -- LOVES it!!! We took her swimming in a big pool for the first time this evening and it was a big hit. At first she was a bit unsure by the cool tempterature, but once her body got used to the cool water, she was an...
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Emotional Day

August 22, 2008 by Victoria Strong
Today was a difficult day. Nothing dramatic happened, thankfully. The aquarium was fine -- fun. It was just an emotionally difficult day for me. I couldn't sleep last night -- I couldn't stop thinking... And today my mind continued to race. Under that pretext, going to a family destination was...
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Happy 9 Month Birthday!!!

July 05, 2008 by Bill Strong
We celebrated Gwendolyn's 9 month birthday yesterday. Gwendolyn had a great day -- so much so that she played all day with Gramma, skipped most of her naps, and then passed out for the night and missed the fireworks show smile We've been keeping a close eye on her over the last week given the...
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Mommy reading to Gwendolyn

June 08, 2008 by Bill Strong

Victoria reading to Gwendolyn. She's on her bi-pap breathing machine and loving every minute of it.
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Bath time!!!

June 04, 2008 by Bill Strong

Bath time is one of Gwendolyn's favorite things to do with Mommy. She absolutely loves to splash in the water, sing songs, play with her rubber piggie, and her weightlessness in the water allows her to move her legs and enjoy floating around. She loves it!
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A great week

June 02, 2008 by Bill Strong



We had a great week last week with Gwendolyn. Her strength has improved remarkably and Victoria and I feel as if she is stronger than she has been since we left for Stanford over two months ago. She's coming off of her bi-pap (breathing machine) for many hours a day and is completely off of oxygen...
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