Posts tagged with: Hospitalization
I'm so sorry we are just posting now. I know that worries people. To be honest we...Read More >>
Well, crud. We are in the PICU again. Little Miss Gwendolyn had to have a blood transfusion. I know -- What the heck! Over the last week Gwendolyn has been really pale and so her doctors wanted to check her red blood count. Well, yesterday her hemoglobin came back a 5. Now all of this is new to...Read More >>
We are home! We are home! And everyone is doing fine. Gwendolyn is such a trooper, but she definitely had enough of being poked and prodded and beamed from ear to ear as we marched out those hospital doors -- in a Dorothy dress no less and with new toys and balloons. (Thank you Lunt and Gooden...Read More >>
Oh Gwendolyn. She likes to keep us on our toes. We are at Stanford right now in the PICU. It's a bit of a long story and the truth is we don't really know all the chapters yet. She is stable and happily watching lots of movies, but something isn't quite right. For the last few weeks we have been...Read More >>
Don't panic, but we're in the hospital. It looks like Gwendolyn has the stomach flu. We didn't blog much last week because...Read More >>
We've had a very busy, but very productive week meeting withGwendolyn's doctors up at Stanford. We've walked more in the last five
days than we have in months and it was nice to walk around theStanford campus and explore a bit. It's really beautiful up here; much
different from what I was taught as a...Read More >>
We hope this email finds you well. We wanted to give you all an update on Gwendolyn's condition.
In short, it has been a very difficult, trying month for all of us. The team of specialists at Stanford provided us a lot of knowledge, a plan, and some empowerment with that plan, but our... Read More >>
We just wanted to let everyone know that Gwendolyn's MIC-key button g-tube (feeding tube) surgery went extremely smoothly yesterday. Her recovery from surgery has progressed much more quickly than the doctors had anticipated and she is already out of the ICU, off of the ventilator,...
We've had a very productive week meeting with a number of SMA specialists at Stanford and have learned a ton about how to provide Gwendolyn with the best quality of life possible through this journey. Gwendolyn was scheduled to have surgery tomorrow to implant a very important feeding tube in...
We thought we would send a quick update of the latest events -- and there are quite a few. Gwendolyn stopped breathing yesterday, but thankfully we were across the street from the emergency room. She is stable now, although dehydrated and exhausted. We were transferred to a pediatric ward last...Read More >>
We're home!!! After three weeks and one day, the doctors let us leave the hospital. We are thrilled to be home and ready to handle Gwendolyn's care on our own -- although she will be seeing doctors two to three times a week and will have therapy as well for some time. The even better news is that... Read More >>
Good news -- we are going home from the hospital tomorrow, Christmas Eve. Gwendolyn is doing really well, with new small movements every day. She is now pointing her toes again and smiling and babbling away at the many nurses and friends she has made at the hospital. We will have physical,... Read More >>
We just wanted to give you a quick update on Gwendolyn. We're still in the hospital but Gwendolyn is no longer attached to any machines and although she is still being fed through a tube she has started to breast feed a few times a day -- getting stronger each time. All of the doctors... Read More >>
A quick update. Gwendolyn received the antidote late last night (Friday 3:30am) and we have started to see some small signs of mobility improvement throughout the day. Both our pediatrician and the... Read More >>