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Posts tagged with: Hospitalization

Super Miss G Is Home Rocking New Super Powers

September 14, 2011 by Victoria Strong
Super Miss G is doing great. Really great. As in almost fully back to normal. The blood transfusion was a success and we were sent home after just one day with Gwendolyn's lips more ruby than we have seen in weeks.

I'm so sorry we are just posting now. I know that worries people. To be honest we...

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In PICU: Gwendolyn Had a Blood Transfusion

September 08, 2011 by Victoria Strong

Well, crud. We are in the PICU again. Little Miss Gwendolyn had to have a blood transfusion. I know -- What the heck! Over the last week Gwendolyn has been really pale and so her doctors wanted to check her red blood count. Well, yesterday her hemoglobin came back a 5. Now all of this is new to...

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We Are Home and There Is No Place Like It!

August 06, 2011 by Victoria Strong

We are home! We are home! And everyone is doing fine. Gwendolyn is such a trooper, but she definitely had enough of being poked and prodded and beamed from ear to ear as we marched out those hospital doors -- in a Dorothy dress no less and with new toys and balloons. (Thank you Lunt and Gooden...

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Gwendolyn stable, but in PICU

August 04, 2011 by Victoria Strong

Oh Gwendolyn. She likes to keep us on our toes. We are at Stanford right now in the PICU. It's a bit of a long story and the truth is we don't really know all the chapters yet. She is stable and happily watching lots of movies, but something isn't quite right. For the last few weeks we have been...

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Gwendolyn In Hospital But On The Mend

June 13, 2011 by Bill Strong
UPDATE: We are now home and Gwendolyn is doing well. She's still tired and we are still keeping a close eye on her, but she's rehydrated and glad to be in her own bed.

---

Don't panic, but we're in the hospital. It looks like Gwendolyn has the stomach flu. We didn't blog much last week because...

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Looking Back and Family Flu Shots

September 26, 2008 by Victoria Strong
Yesterday we went to see Gwendolyn's pediatrician, Dr. David Abbott, for a check up, check in, and family flu shots. We haven't seen him in almost two months -- a huge time lapse in our world considering there were months that we saw him every week -- some times every few days. Thinking of that...
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Update from Stanford

August 08, 2008 by Bill Strong

We've had a very busy, but very productive week meeting with

Gwendolyn's doctors up at Stanford. We've walked more in the last five

days than we have in months and it was nice to walk around the

Stanford campus and explore a bit. It's really beautiful up here; much

different from what I was taught as a...

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Home sweet home

May 25, 2008 by Bill Strong
Victoria, Gwendolyn, and I are glad to be back at home after spending the past 10 days in the hospital. Gwendolyn's right lung is moving air again and is more or less back to where it was before it collapsed. Her strength through this latest episode has been miraculous and the doctors were amazed...
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Cottage Hospital Update

May 15, 2008 by Bill Strong
We received a little good news this morning. Gwendolyn's early morning x-ray showed a slight improvement in the upper lobe of her right lung. She seemed a bit less distressed last night and this morning and Victoria and I have noticed a lot of thick mucus starting to come up from the treatments we...
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Back in the hospital

May 13, 2008 by Bill Strong
Dear Friends:

We hope this email finds you well. We wanted to give you all an update on Gwendolyn's condition.

In short, it has been a very difficult, trying month for all of us. The team of specialists at Stanford provided us a lot of knowledge, a plan, and some empowerment with that plan, but our...
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Surgery Update

April 24, 2008 by Bill Strong


Hi All:

We just wanted to let everyone know that Gwendolyn's MIC-key button g-tube (feeding tube) surgery went extremely smoothly yesterday. Her recovery from surgery has progressed much more quickly than the doctors had anticipated and she is already out of the ICU, off of the ventilator,...

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Stanford Update (2)

April 17, 2008 by Bill Strong


We've had a very productive week meeting with a number of SMA specialists at Stanford and have learned a ton about how to provide Gwendolyn with the best quality of life possible through this journey. Gwendolyn was scheduled to have surgery tomorrow to implant a very important feeding tube in...

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Stanford Update

April 17, 2008 by Bill Strong

We thought we would send a quick update of the latest events -- and there are quite a few. Gwendolyn stopped breathing yesterday, but thankfully we were across the street from the emergency room. She is stable now, although dehydrated and exhausted. We were transferred to a pediatric ward last...

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Home sweet home

January 05, 2008 by Bill Strong


We're home!!! After three weeks and one day, the doctors let us leave the hospital. We are thrilled to be home and ready to handle Gwendolyn's care on our own -- although she will be seeing doctors two to three times a week and will have therapy as well for some time. The even better news is that...
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Update

January 01, 2008 by Bill Strong

Hi Everyone:

Unfortunately we are still in the hospital with Gwendolyn and are still not 100% certain what type of neuromuscular disease she is suffering from. The good news is that she is continuing to show slight signs of improvement in both muscle movement and direct feeding every day. The not so...
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Update

December 24, 2007 by Bill Strong
Well, yesterday's email was sent a bit prematurely. Unfortunately, Gwendolyn started choking late last night during a feeding. It was very scary, but she is okay. However, this event has set us back as doctors have taken her off of breastfeeding until she regains her strength again. Given the lack...
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Update

December 23, 2007 by Bill Strong

Good news -- we are going home from the hospital tomorrow, Christmas Eve. Gwendolyn is doing really well, with new small movements every day. She is now pointing her toes again and smiling and babbling away at the many nurses and friends she has made at the hospital. We will have physical,...
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Update

December 19, 2007 by Bill Strong

Hi Everyone:

We just wanted to give you a quick update on Gwendolyn. We're still in the hospital but Gwendolyn is no longer attached to any machines and although she is still being fed through a tube she has started to breast feed a few times a day -- getting stronger each time. All of the doctors...
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Update

December 16, 2007 by Bill Strong
More good news. Gwendolyn graduated from the ICU to normal pediatrics and is continuing to show slight signs of mobility in all of her limbs - a great, great sign. She did a small test bottle feeding for the speech therapist this morning and the therapist was very encouraged by her ability to...
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Update

December 14, 2007 by Bill Strong
We appreciate all the thoughts and prayers from everyone. It helps to know how much support we have.

A quick update. Gwendolyn received the antidote late last night (Friday 3:30am) and we have started to see some small signs of mobility improvement throughout the day. Both our pediatrician and the...
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