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Posts tagged with: Gwendolyn Strong Foundation

100 Miles For Owen. Stephen Taylor Running Western States 100 (Again)

May 27, 2011 by Victoria Strong

100 miles. 100 miles in 30 hours. 100 miles though the Sierra Nevada Mountains. 100 miles through extreme heat and even snow. Yep, that crazy Stephen Taylor is doing it again -- 100 miles for Owen! And we think he's incredible!

Held the last weekend of June in Northern California, the Western...

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Team Jenna Raises Over $1,200 and Races This Sunday

May 25, 2011 by Victoria Strong

Meet Jenna Boguhn. A spunky six-year-old who loves school, having painted nails, playing dress up, and being with her two older sisters. And while Jenna is so much like any other adorable six-year-old, Jenna has Spinal Muscular Atrophy. This Sunday, Renee Gronowski, Jenna's aunt, will be running...

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Rummage To Cure in Santa Barbara Raises $3,400 for The GSF

May 23, 2011 by Victoria Strong
Santa Barbara's Rummage To Cure was a HUGE success and Team Gwendolyn ROCKS! Yep, they are A-M-A-Z-I-N-G! And Saturday's sale was another example of their awesomeness. So many in the community got involved. So many made this a success. And we are so, so grateful. And... $3,400 was raised for The...
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Santa Barbara Rummage To Cure THIS Saturday!

May 19, 2011 by Victoria Strong

Santa Barbara --> Get your rummage on to help end SMA!!! Rummage To Cure is THIS Saturday and it is going to be AWESOME! Treasures - check. The Burger Bus - check. Yummy Mummy treats - check. Shop and eat and shop some more!

WHEN:

Saturday, May 21st

9:00 to 3:00

WHERE:

Trinity Episcopal Church

1500...

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I’m Running the Santa Barbara Marathon

May 17, 2011 by Bill Strong

I've always wanted to run a marathon -- it's one of those goals I planned to "one day" check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just six-months-old.

I was at work. My...

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HUSH in Panama Hosting Shop To End SMA!

May 14, 2011 by Victoria Strong
Marcela Vallarino and Juan David Cardoze have the most adorable baby girl, Amanda. Amanda has SMA. At just 10 months old, sweet Amanda has already inspired friends, family and her community to join the SMA cause in her honor. The Cardoze family was part of the GSF's "200K for SMA" campaign,...
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Team Run For Owen Runs Ragnar Relay

May 12, 2011 by Victoria Strong
200 miles. 12 runners. Two days. Running to end SMA!!!

Team Run For Owen is always amazing and tomorrow they are embarking on a new incredible adventure -- the Ragnar Relay. This fabulous 12 person team starts their journey in Albany, New York and in relay style will travel 196 miles to Tarrytown,...

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This Weekend’s Rummage To Cure Sales Raise Nearly $5,000 for the

May 11, 2011 by Victoria Strong
Wow! Wow! Wow! This was a huge Rummage To Cure weekend. Two sales. Two locations. And two groups working to help END SMA!!!

Lucy's Hope for a Cure in Fond du Lac, Wisconsin was a big success. For the second year in a row, Marjorie Trew-Munson organized this great neighborhood sale in honor of Lucy...

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Calabasas Fresh Brothers Fundraiser May 17th for the GSF

May 10, 2011 by Victoria Strong

San Fernando Valley friends, mark your calendars --> Pizza at Fresh Brothers next Tuesday and 20% goes to the Gwendolyn Strong Foundation to help end the #1 genetic killer of babies! That's right --> eat pizza, raise funds for SMA research! Easy!

WHEN --> Tuesday, May 17th from 11 to 9

WHERE -->...
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Lullaby Blankies Helps End SMA!

May 08, 2011 by Victoria Strong

In December I met Stephanie and Brandon Humes, owners of Lullaby Blankies. Stephanie reached out with an email about their story that goes something like this --> Gorgeous couple in love. Get married. Want to start a family. But Stephanie and Brandon's story takes a turn there. Thanks to a...

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Rummage To Cure—> This Weekend and Coming Soon Near You

May 06, 2011 by Victoria Strong

Woowee! Get your rummage on! You all have blown us away and there are Rummage To Cure sales popping up everywhere!

This weekend in Fond du Lac, Wisconsin and Canoga Park, California -->

Lucy's Hope for a Cure will host their 2nd annual Rummage To Cure! Lots of items for just 25 cents!

  • WHEN -->...

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Paint Away SMA at Sips N Strokes in Knoxville, TN

May 05, 2011 by Victoria Strong

Nora Gooden is surrounded by people who adore her and who fight SMA in her honor. And Nurse Kim is definitely one of them. The incredible Nurse Kim has organized a fun night with Sips N Strokes to "Paint Away SMA" in Knoxville, Tennessee on May 14th. Painting, spending time with friends, enjoying...

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Hope Calendar Raises Over $8,000 For GSF

May 02, 2011 by Victoria Strong
We are so excited! Debi Gomez of Life's Images Photography and the creator of the "Hope Calendar" just announced the final totals of the 2011 sales...Drum roll please....

$8,110 was raised for the Gwendolyn Strong Foundation and our "$200K for SMA" campaign!!!

A-mazing! Simply amazing! A big thank...
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Continuing the SMA Charge on Capitol Hill

April 27, 2011 by Bill Strong
Get ready -- a NEW SMA bill is on it's way and we will need YOUR help.

We've always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level.We've been big supporters...

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GSF Mother’s Day Giveaway {Valued Over $400!}

April 25, 2011 by Victoria Strong
{UPDATE}

Thank you all for participating in the GSF Mother's Day Giveaway! We had so much fun and we hope you did, too! A big THANK YOU to the 10 fabulous vendors who contributed to this fantastic prize and who continually support the GSF and our mission to END SMA, the #1 genetic killer of young...

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Real Estate For A Cure Has Now Raised $7,500 For The GSF

April 21, 2011 by Victoria Strong
We are so excited! Real Estate For A Cure has officially raised $7,500 for the GSF!!!

Real Estate For A Cure was started by real estate team Kristen Kearns and Lucy Rhodes in Pennsylvania in honor of Sweet Baby Zane Schmid. We adore the Schmid family. They are the kind of people who see a need,...

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Ninth Graders Host Spaghetti Banquet To End SMA and Raise Over $4,000

April 19, 2011 by Victoria Strong
Children helping children...it gets me every time! And I love it!

Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Strong Foundation! But these students didn't...

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Rummage To Cure—> We Need Your Treasures

April 12, 2011 by Victoria Strong

Okay GSF supporters --> We need your treasures! It's that time of year again -- Rummage To Cure benefiting the Gwendolyn Strong Foundation!

Don't have time to do a major spring clean? You can still make a difference --> We know cleaning out the garage is a big task and you have helped us make the...

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Grand National Roadster Show Raises Over $5,000 To Help End SMA

April 11, 2011 by Bill Strong

The Gwendolyn Strong Foundation was honored to be selected as one of two featured nonprofits for the world famous Grand National Roadster Show this year. The event, known as the longest running indoor car show in the world, was held in January 2011 at the Fairplex in Pomona and it was incredible....

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Sign Petition To Keep Newborn Screening Program Effective

April 10, 2011 by Victoria Strong

Newborn Screening is one of the most successful public health programs ever. Each year babies are treated because of it. But it is being threatened and needs your support.

Sign This Petition

The Newborn Screening Program first began in the 1960s for PKU. PKU is a condition in which a baby is born...

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