Posts tagged with: Gwendolyn Strong Foundation
100 miles. 100 miles in 30 hours. 100 miles though the Sierra Nevada Mountains. 100 miles through extreme heat and even snow. Yep, that crazy Stephen Taylor is doing it again -- 100 miles for Owen! And we think he's incredible!
Held the last weekend of June in Northern California, the Western...Read More >>
Meet Jenna Boguhn. A spunky six-year-old who loves school, having painted nails, playing dress up, and being with her two older sisters. And while Jenna is so much like any other adorable six-year-old, Jenna has Spinal Muscular Atrophy. This Sunday, Renee Gronowski, Jenna's aunt, will be running...Read More >>
Santa Barbara --> Get your rummage on to help end SMA!!! Rummage To Cure is THIS Saturday and it is going to be AWESOME! Treasures - check. The Burger Bus - check. Yummy Mummy treats - check. Shop and eat and shop some more!
Saturday, May 21st9:00 to 3:00
WHERE:Trinity Episcopal Church
1500...Read More >>
I've always wanted to run a marathon -- it's one of those goals I planned to "one day" check off my list. But, to be honest, the last time I ran in any way was home from my office the day Gwendolyn was diagnosed with SMA. That was over three years ago. She was just six-months-old.
I was at work. My...Read More >>
Team Run For Owen is always amazing and tomorrow they are embarking on a new incredible adventure -- the Ragnar Relay. This fabulous 12 person team starts their journey in Albany, New York and in relay style will travel 196 miles to Tarrytown,...Read More >>
Lucy's Hope for a Cure in Fond du Lac, Wisconsin was a big success. For the second year in a row, Marjorie Trew-Munson organized this great neighborhood sale in honor of Lucy...Read More >>
San Fernando Valley friends, mark your calendars --> Pizza at Fresh Brothers next Tuesday and 20% goes to the Gwendolyn Strong Foundation to help end the #1 genetic killer of babies! That's right --> eat pizza, raise funds for SMA research! Easy!
WHEN --> Tuesday, May 17th from 11 to 9WHERE -->... Read More >>
In December I met Stephanie and Brandon Humes, owners of Lullaby Blankies. Stephanie reached out with an email about their story that goes something like this --> Gorgeous couple in love. Get married. Want to start a family. But Stephanie and Brandon's story takes a turn there. Thanks to a...Read More >>
Woowee! Get your rummage on! You all have blown us away and there are Rummage To Cure sales popping up everywhere!
This weekend in Fond du Lac, Wisconsin and Canoga Park, California -->
Lucy's Hope for a Cure will host their 2nd annual Rummage To Cure! Lots of items for just 25 cents!
- WHEN -->...
Nora Gooden is surrounded by people who adore her and who fight SMA in her honor. And Nurse Kim is definitely one of them. The incredible Nurse Kim has organized a fun night with Sips N Strokes to "Paint Away SMA" in Knoxville, Tennessee on May 14th. Painting, spending time with friends, enjoying...Read More >>
$8,110 was raised for the Gwendolyn Strong Foundation and our "$200K for SMA" campaign!!!A-mazing! Simply amazing! A big thank... Read More >>
We've always believed that having a consistent, coordinated SMA voice on Capitol Hill is a key component to continuing to move SMA awareness, funding, research, and advocacy forward at the highest level.We've been big supporters...Read More >>
Thank you all for participating in the GSF Mother's Day Giveaway! We had so much fun and we hope you did, too! A big THANK YOU to the 10 fabulous vendors who contributed to this fantastic prize and who continually support the GSF and our mission to END SMA, the #1 genetic killer of young...Read More >>
Real Estate For A Cure was started by real estate team Kristen Kearns and Lucy Rhodes in Pennsylvania in honor of Sweet Baby Zane Schmid. We adore the Schmid family. They are the kind of people who see a need,...Read More >>
Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Strong Foundation! But these students didn't...Read More >>
Okay GSF supporters --> We need your treasures! It's that time of year again -- Rummage To Cure benefiting the Gwendolyn Strong Foundation!
Don't have time to do a major spring clean? You can still make a difference --> We know cleaning out the garage is a big task and you have helped us make the...Read More >>
The Gwendolyn Strong Foundation was honored to be selected as one of two featured nonprofits for the world famous Grand National Roadster Show this year. The event, known as the longest running indoor car show in the world, was held in January 2011 at the Fairplex in Pomona and it was incredible....Read More >>
Newborn Screening is one of the most successful public health programs ever. Each year babies are treated because of it. But it is being threatened and needs your support.
The Newborn Screening Program first began in the 1960s for PKU. PKU is a condition in which a baby is born...Read More >>