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Posts tagged with: Gwendolyn Strong Foundation

Westchester County, NY High School Fundraises For theGSF

October 27, 2011 by Victoria Strong

Kids helping kids. We LOVE it!

Ossining High School in Westchester County, New York recently created an awesome and creative fundraiser with the Gwendolyn Strong Foundation as beneficiary. And we are so excited to be involved. During Spirit Week students with the Power of Peace club created a...

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Irvine, California | An Evening with Dr. Hans Keirstead

October 23, 2011 by Bill Strong

If you live near Irvine, California you don't want to miss this incredible opportunity to meet and learn from a pioneer in stem cell research! Our awesome friends at The Roman Reed Foundation are hosting "An Evening with Dr. Hans Keirstead" at University of California, Irvine on Wednesday, October...

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Team GSF SB Marathon: My X-Factor and the Final Stretch.

October 21, 2011 by Bill Strong

Hard to believe, but nine months has come and gone since I set out to do my first training run for the Santa Barbara Marathon while on a trip with Victoria and Gwendolyn to Monterey, California. And it's been five months since I decided to go for it and we officially launched our Team GSF SB...

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SMA Wing Fest

October 19, 2011 by Victoria Strong

This is awesome and hilarious -- and a reminder that truly anything can become an opportunity to raise funds and awareness for SMA.

Friends Chris Byrd andJoseph Ranseth are doing what guys often do -- challenging each other. In this case, it is a "Wing Fest". Yep , that's right, these men are...

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Smile To Fight SMA | One Camera Click At A Time

October 18, 2011 by Victoria Strong

Do you know what we love? When people turn their talents into a way to fundraise to help end SMA. And Couture Foto sure is talented -- and YOU have the opportunity to benefit!

Acclaimed photographer Brandon Humes of Couture Foto and his wife, Stephanie, have organized "Smile To Fight SMA" at the...

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Vanille Cupcake Boutique Raises $1,125 for theGSF in Honor of Amanda

October 17, 2011 by Victoria Strong

Cupcakes are yummy delicious treats. But did you know they also help end SMA? Vanille Cupcake Boutique in Panama City, Panama opened up their gorgeous bakery to fundraise for theGSF's mission in honor of sweet Amanda Cardoze. For the entire month of August (SMA Awareness Month), Vanille sold a...

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Join Team Callie In The North Carolina Marathon

October 13, 2011 by Victoria Strong

Team Callie is gearing up for the North Carolina Marathon and we are so proud of them. In honor of adorable, sweet, precocious Callie Golden, her father, Nathan, is racing on November 19th with a team of 20 by his side. Team Callie will be tackling the full, half and relay throughout High Point --...

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Sweet Revenge Raises $2,400 for the GSF in Memory of Ciara Van De

October 11, 2011 by Victoria Strong

Sweet Revenge: A Benefit in Memory of Ciara Rose Van De Loo was a cupcake, wine and beer tasting held at the Gnarly Vine in New Rochelle, New York -- and it was an incredible night for many reasons. The amazing Van De Loo family turned what should have been their daughter Ciara's 1st birthday...

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Micah March 5K October 22 in Ojai

October 08, 2011 by Victoria Strong

The third annual Micah March is coming up on October 22nd in Ojai, California and you don't want to miss the fun. This 5K walk meanders through a tree-lined trail, finishing with a concert, silent auction, family fun, and dinner catered by Don Lalo's Mexican Restaurant. Last year, Micah's...

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Beb-e-ssentials Birthday Bash Special Offer & Giveaway!

October 05, 2011 by Victoria Strong

In honor of Gwendolyn's 4th birthday and to celebrate all those with SMA, the awesomely amazing women at Beb-e-ssentials are doing awesomely amazing things for YOU! For the entire month of October, they are offering a "Buy one beanie, get one FREE" special. You've seen these darling beanies from...

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Fight For Owen Bowling Night

September 27, 2011 by Victoria Strong

If you've been reading this blog for long, then you already know about our love for the amazing Shuler family and their beautiful baby boy, Owen. Owen Vincent Shuler was born March 7, 2008. Just like Gwendolyn he was diagnosed with SMA Type 1. And just like our family the Shulers immediately...

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Gwendolyn Becomes Honorary Vaquero | Game This Saturday

September 23, 2011 by Victoria Strong

What a positive night. Yesterday evening Gwendolyn became an "Honorary Vaquero Captain" at Santa Barbara City College's football practice. The big game and her "official" Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team and cheer squad wanted to meet her ahead of time...

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Morongo Casino Donates $20,000 to the GSF

September 22, 2011 by Bill Strong

We are humbled and honored to have been selected as one of only three charities to benefit from the 15th Annual Morongo Charity Golf Tournament put on by the Morongo Casino, Resort, and Spa in Cabazon, California. And we are simply speechless by their incredible generosity. Morongo donated $20,000...

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Team GSF SB Marathon: Help Us Reach Our $26,200 Team Fundraising

September 19, 2011 by Bill Strong

Thirty Team GSF runners are challenging and pushing themselves for the SMA cause in the Santa Barbara International Marathon on November 12, 2011. 30 competitors! And on top of the immense personal physical commitment they've made, they have collectively set a team fundraising goal of...

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SBCC Supports GSF and Makes Gwendolyn Honorary Vaquero Captain

September 15, 2011 by Victoria Strong

Are you ready for some football? Come on out Saturday, September 24th at 5:30 to support the Gwendolyn Strong Foundation and cheer on Miss G as she becomes the Honorary Vaquero Captain.

We are very excited and honored to have been selected as one of five charities the Santa Barbara City College...

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Team Lucy’s Legs Rock Lake Winnebago

September 07, 2011 by Victoria Strong
We absolutely LOVE Team GSF team members! We love, love, love them. We love the way they challenge themselves, we love how they motivate others, and we love that they push their bodies to the limits to make a difference for SMA.

Team Lucy's Legs is a prime example. They are rock stars. Lead my the...

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GIVEAWAY: And The Winners Are…

September 01, 2011 by Bill Strong
Firstly, we want to commend all of the applicants for entering GSF's SMA Awareness Month Giveaway. You have taken a step to gain knowledge that many don't even know exists. You have power in knowing that this information is important...can be life changing.

We want to thank Counsyl for their...

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Counsyl Has Generously Donated Free Genetic Tests to Help Raise Awareness

August 28, 2011 by Bill Strong
At the Gwendolyn Strong Foundation, we want as many people as possible to know that 1 in 40 people unknowingly carry a severe mutation in the SMA gene. Getting tested before pregnancy is one of the best ways to make sure that your child does not fall victim to a possibly lethal genetic disease.

And...

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Santa Barbara Businesses Support theGSF

August 24, 2011 by Victoria Strong

Santa Barbara and its residents have been nothing but embracing since Gwendolyn's diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends...

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Team Lucy’s Legs

August 18, 2011 by Victoria Strong
Sweet Lucy Zahn has inspired a team of supporters! Her spunky spirit is motivating people to not only learn about SMA, but to get involved in helping end it!

Team "Lucy's Legs" will be riding 90 miles around Lake Winnebago this weekend in Race The Lake 2011. Lake Winnebago is one of the largest...

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