Posts tagged with: Gwendolyn

Pumpkin Patch and A New Four Year Old Attitude

October 24, 2011 by Victoria Strong

Woowee! We have been going, going, going lately. And when we aren't going out with Miss G we have been working hard on some new changes/updates/projects with theGSF. We are pretty darn excited, but it means I haven't been blogging about my #1 girl as much as I usually do. There has been lots of...


Birthday Part 3: The Actual Day and Lion King 3D

October 12, 2011 by Victoria Strong
This is the last birthday celebration post. We had so much fun that it was just too much to cram into one post; hope you aren't tired of the big 4 hullabaloo. To be honest it has been nice for us to reflect on this milestone and truly appreciate all the good things for Gwendolyn -- which so many of...

Birthday Part 2: A Cowgirl Party

October 09, 2011 by Victoria Strong

Yee-haw! Gwendolyn decided she wanted to have a cowgirl birthday party to celebrate turning F.O.U.R. Okay, that was pretty easy to guess since our house is practically a stable with her horse collection. With everything that happened with Gwendolyn's health this summer, we didn't even start...


Birthday Hullaballoo Part 1: The Cousins Arrived

October 07, 2011 by Victoria Strong
Wow! Wow! Wow! Thank you all so very much for your thoughtful comments, facebook messages, cards and gifts. Gwendolyn is certainly a very lucky little girl and we are so thrilled to celebrate this special and big milestone with all of you. I have to say that this birthday was pretty darn awesome....

Miss G is 4!

October 04, 2011 by Victoria Strong

My dearest darling Gwendolyn,

Today you are four years old and I am so proud of you.

At four you are such an incredible little girl -- so certain of yourself, so eager to live life to its fullest, so patient when the world isn't always ready for you. And I am so proud of you.

Your willingness to give...


Miss G’s 4th Birthday Photos

September 25, 2011 by Victoria Strong
This week we took Gwendolyn's 4th birthday photos with the incredible Jennifer Foster from Z's the Day Photography. Yep, in just a little over a week our baby will be a big four-year-old -- and she knows it. Miss G has been so proud of herself lately. She loves helping plan her party. She lights up...

Health Net Health Insurance Premium Increase: 18% this year, 136%

September 20, 2011 by Bill Strong
Health Net -- our health insurance provider -- is at it again this year raising our health insurance premiums at ridiculous rates. This year it was a clean 18%. Yup, 18%. That number is crazy on its own, but what % do you think Health Net has raised our health insurance premiums over the last 4...

First Day of Preschool! Miss G is a Big Pre-K Girl!

September 16, 2011 by Victoria Strong
Yep, you read that correctly. Miss G had her first day of preschool yesterday and it was AMAZING! Absolutely positively a very, very "Good Thing for Gwendolyn!"

The second we asked Gwendolyn if she would like to start going to school again, her little fingers tapped so fast and her eyes rolled up...


Super Miss G Is Home Rocking New Super Powers

September 14, 2011 by Victoria Strong
Super Miss G is doing great. Really great. As in almost fully back to normal. The blood transfusion was a success and we were sent home after just one day with Gwendolyn's lips more ruby than we have seen in weeks.

I'm so sorry we are just posting now. I know that worries people. To be honest we...


In PICU: Gwendolyn Had a Blood Transfusion

September 08, 2011 by Victoria Strong

Well, crud. We are in the PICU again. Little Miss Gwendolyn had to have a blood transfusion. I know -- What the heck! Over the last week Gwendolyn has been really pale and so her doctors wanted to check her red blood count. Well, yesterday her hemoglobin came back a 5. Now all of this is new to...


Feeling Pretty Good.

September 06, 2011 by Victoria Strong
Yes, we are feeling pretty good right now and it is all because Gwendolyn seems to be doing a little bit better. Baby steps, but we will take those! Gwendolyn had an okay Saturday, a great Sunday, and an okay Monday. I'm not saying we are in the clear now or that all is fine, but... she had a GREAT...

This Moment.

September 02, 2011 by Victoria Strong

When Gwendolyn was first diagnosed, within two weeks we were hit like a ton of bricks with the reality of SMA -- a consultation trip turned into a month-long hospital stay at Stanford, new routines, new machines, a surgery, so much uncertainty, a failed ambulance ride home nightmare, a collapsed...


Gwendolyn Update and a Special Visitor

August 26, 2011 by Victoria Strong
Thank you all so much for your thoughtfulness and concern for Gwendolyn this week. Gwendolyn is status quo and we are still very worried...but very hopeful. We are seeing improvements in some areas, but are still waiting in others. There is still uncertainty about what exactly is going on, but...

A rough week, but grateful

August 22, 2011 by Victoria Strong

Gwendolyn has had another rough week. And this weekend was down right lousy. The good news is that from a respiratory standpoint she is healthy -- that is very, very good news for SMA. The bad news is this darn infection (or the problem we can't seem to figure out) just won't go away. It is now a...


Good Things For Gwendolyn: A Wizard Promise Fullfilled

August 17, 2011 by Victoria Strong
Gwendolyn is still having a tough time. She hasn't bounced back the way she usually does after antibiotics and we are feeling a bit on edge (well, we are always on edge, but more so). We are having more tests done to try to get to the bottom of it all, but she just isn't her go, go, go self. So we...

Viva Las Vegas

August 10, 2011 by Victoria Strong
Before unexpectedly driving 5 hours north to Stanford, we had a fabulous planned long weekend 5 hours east of Santa Barbara visiting some great friends in Las Vegas, Nevada. Viva Las Vegas! Whoa, the G-Van is really racking up the miles these days...

Gwendolyn is actually a Vegas veteran. Yep, at...


We Are Home and There Is No Place Like It!

August 06, 2011 by Victoria Strong

We are home! We are home! And everyone is doing fine. Gwendolyn is such a trooper, but she definitely had enough of being poked and prodded and beamed from ear to ear as we marched out those hospital doors -- in a Dorothy dress no less and with new toys and balloons. (Thank you Lunt and Gooden...


Gwendolyn stable, but in PICU

August 04, 2011 by Victoria Strong

Oh Gwendolyn. She likes to keep us on our toes. We are at Stanford right now in the PICU. It's a bit of a long story and the truth is we don't really know all the chapters yet. She is stable and happily watching lots of movies, but something isn't quite right. For the last few weeks we have been...


Acts of Kindness: A Wizard of Oz Surprise in Memory of Chloe

July 29, 2011 by Victoria Strong
Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this was a hit is an understatement. When...

A Royal Tea Party in Oz

July 25, 2011 by Victoria Strong

This weekend Gwendolyn received a very special package of gifts (more on that later) -- one of which is a Wizard of Oz tea set. Gwendolyn has been in heaven playing with it. We had a tea party yesterday with Laurie, Chris and Connor at the Santa Barbara Mission. And this morning Gwendolyn and I...


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