Posts tagged with: Grief
I dont know if it is the June gloom or if being in the hospital has messed with my mood, but Im in a funk. And its a low one. The reality of SMA is weighing heavily on my chest like a load of bricks and Im having trouble catching my breath.
For such a long time weve been plodding...Read More >>
Harry Reese Gillespie
June 27, 1905 - March 30, 2011
My grandfather Harry passed away this week and I am devastated. He was 105 years old and while I know this is the normal course of life, this is an enormous loss for me and anyone who knew him. He was kind, thoughtful, generous, insightful and has...Read More >>
On Thursday night we learned that our dear sweet special friend Jonas Coleman had passed away -- a gorgeous blue-eyed almost 3-year-old darling little boy. Tomorrow is his funeral. And we are heartbroken.
And while I try to sit with the thoughts of him now being able to run free, of him no longer...Read More >>
So I am having one of those weeks. I just feel spent, emotional, lump in the throat. Gwendolyn is doing okay -- not 100% yet -- but thank goodness not going down hill. We have had a few choking scares and I don't think I will ever get used to saving my daughter's life. And there is the anxiety of...Read More >>
Gwendolyn had another episode last week. She didn't completely stop breathing, but...Read More >>
This morning Gwendolyn stopped breathing, turned completely blue and cold from head to toe, and was lifeless for several minutes.We...Read More >>
Hope for my child.
I dont dream of her walking.
I dont wish that she could climb a tree.
Those things are lovely, but we could manage life in a powerchair...
and I know my little fighter would rise to the challenge with a smile.
No, my wildest dreams are simple.
I wish my... Read More >>
GriefNovember 13, 2009 by Victoria
I don't know why, but I woke up filled with grief today. Nothing happened. Gwendolyn is fine. But some days it is just hard not to feel the heaviness of grief...not to feel overwhelmed with sadness. No matter how many we have met, I've never become used to meeting another sweet family newly...Read More >>
This afternoon was difficult. I knew it would be when planning this trip, but it was something that was very important to me. I took Gwendolyn to meet my mom. The last time I was in Palestine, it was to bury my mother. That was ten years ago this August and I still miss her desperately. My...Read More >>
Gwendolyn released her favorite dragonfly balloon today in memory of her buddy from Australia, Beau Coogan, who lost his battle with SMA last week -- just 10-months-old. Please keep fighter Beau and his parents in your thoughts and prayers. We've been touched by their journey with their precious... Read More >>
This week Owen Schuler would have celebrated his first birthday -- if he had not been born with SMA. This week his parents would have thrown a party filled with laughter and joy. But, instead, this week is a time of mourning for his sweet parents because Owen passed away at only five-months-old.
I... Read More >>