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Posts tagged with: Friends

"Strike Down SMA" Las Vegas Bowling Fundraiser

October 11, 2009 by Bill Strong
We have the most amazingly supportive and creative friends. Our dear friends Wade and Heather of Las Vegas have organized a fun Unite For The Cure bowling fundraiser in Gwendolyn's honor called "Strike Down SMA". Here's how they describe the event:

Join us for an evening of fun, friends and good old...

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Birthday Bonanza Weekend

September 28, 2009 by Victoria Strong
We had a blast this weekend celebrating FOUR very special birthdays!!! And Gwendolyn is COMPLETELY in favor of birthday weekend!

On Saturday morning we went to Bella's 2nd birthday party. Bella had fun decorations, good friends to see, a piano and a piano playing Grammy! She also had chocolate...
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Marina and the Cooking Light Cook-Off

September 13, 2009 by Victoria Strong

One of our good friends and Mommy to Gwendolyn's darling buddy, Bella, was selected by Cooking Light for this year's "Ultimate Reader Recipe Contest"! Nearly 3,000 people entered this contest and Marina was one of only 12 finalists -- and one of only 3 in her "Family Dinner" category!!!

And she...
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More Weekend Fun

September 08, 2009 by Victoria Strong
We had a fun weekend of celebrations and it was a great way to end the summer!

Since most of my Mommy friends originated from our PEP group (which means all of our babies are September/October/November babies), party season has officially begun. On Friday, we attended Luke's birthday party. The big...
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Mr. & Mrs. B

August 31, 2009 by Victoria Strong
Being with dear friends is one of our favorite things in the world! We just love... being with dear friends who can offer comfort and love and support by simply being... being with dear friends who go above and beyond to make our situation easier... being with dear friends who love us and our...
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Busy, Busy, Busy…

August 28, 2009 by Victoria Strong
We are busy...busy, busy, busy. On top of new casts, teething molars, entering into fall and the worry of the flu and the dreaded swine flu and what that means for Gwendolyn's life, we are both working around the clock and are pouring our hearts into Unite For The Cure. In fact, we are starting to...
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The Fabulous Fight For Owen Gang

August 21, 2009 by Victoria Strong
Yesterday we met Dorothy and Jon Shuler and it was so important and meaningful to us. We don't know exactly why this is or what it was, but the Shuler's were the very first SMA family we reached out to. Just after being diagnosed, given little to no hope of a treatment or cure, we went through a...
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Run For Owen

August 16, 2009 by Victoria Strong

I was planning to post about Dorothy Shuler and her extraordinary efforts when I read "Lucy's" post this morning. I am continually struck by the remarkable people in the SMA community -- a club I know we'd all rather not belong to, but nonetheless unites us on a very deep level forever. Dorothy...

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Busy Summer

August 13, 2009 by Victoria Strong
So we haven't been very good about our daily postings lately and it is for several reasons, but one is we are just plain busy having fun with Gwendolyn!

We have been sliding down slides and swinging on swings...

We have been playing with princesses...

We have been reading books with Grand Pa...

We...

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Viva La Fiesta!

August 08, 2009 by Bill Strong
We feel very fortunate to live in a community with many festivals, parades, and activities all year long. I think it's funny when I hear locals complain about all of them -- I know, it's a horrible tragedy living in a small beach community that provides you the opportunity to partake in the...
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Acts of Kindness: Santa Barbara Friends

July 26, 2009 by Victoria Strong

We have posted about the wonderful people we know in Santa Barbara before (1,2, 3...) but we are truly, truly fortunate and continually astounded by the kindness and support we receive.

Over the last nearly two years, a core group of Santa Barbara families have made a substantial difference in our...

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Meeting Laurian and John Scott

July 07, 2009 by Victoria Strong

Yesterday we had the honor of meeting Laurian and John Scott for breakfast in the French Quarter. Laurian and John are an unbelievably inspiring couple whom we greatly admire. Although this was our first meeting, I feel as if I already have a deep and personal friendship with Laurian. I began...

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Pajama Party

June 22, 2009 by Bill Strong

Gwendolyn is having a blast with her new best buddy, Reagan, and so are we!!! This is the girls getting their jammies on together -- they did not want to be apart after their big evening dance party. So fun! And they both couldn't wait to see each other this morning.
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Wine Country

June 07, 2009 by Victoria Strong



We had a big day of wine tasting in the Santa Barbara wine country today to celebrate the birthday of our good friend, Mike. Yes, Gwendolyn got to go (with Big Bird and Abby in tow) -- and yes, that is legal smile Gwendolyn loved the attention, the smiles, the cheers-ing, and did not want the party to...
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Micah's Birthday

June 01, 2009 by Victoria Strong
Today was a very special day. We were invited to join the Marshall family in celebrating the very important first birthday milestone of their darling little boy, Micah. Micah has SMA Type I also. He and Gwendolyn have been Internet buddies for six months, following his diagnosis at Cottage...
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Muppet Mayhem

May 29, 2009 by Victoria Strong
You are never going to believe it! Today Miss Princess received another pressie. This one was from Aunt Elizabeth, Uncle Chad and cousins William and Henry. It is funny because today is little Henry's 2nd birthday and so he should be opening pressies from us, too! Gwendolyn excitedly helped unwrap...
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The Gang is Multiplying

May 29, 2009 by Victoria Strong
Yesterday, a big box arrived with Gwendolyn's name on it. She completely understands the word "present" now and was super excited to open it. I had been given a little heads up that something special was on its way from our friends Donna and Pete, who lost their beautiful youngest daughter, Andrea,...
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Old Friends and New Friends

May 25, 2009 by Victoria Strong
We have had a really wonderful long weekend visiting with both old friends and new ones. We feel so very lucky to have such supportive and awesome people in our lives.

Yesterday, one of my oldest friends, Summer, and her mom, Sheri, my second-mom, spent the day with us chatting, catching up, and...
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Live New England Lobstas…Yummy!

May 24, 2009 by Bill Strong
Yesterday, a surprise box was delivered to our house in the morning. One of my best friends, Matt (who lives in Boston), sent us live lobsters from Legal Sea Foods, a New England mainstay. Matt was born and raised in Boston so I've heard my fair share of Legal Sea Foods stories over the years. But,...
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Big Bird Has Come To Town

May 20, 2009 by Bill Strong

We have a new member of the family. That's right, Big Bird has officially joined the gang. It didn't take long (all of 5 seconds) for Gwendolyn to fully accept her new pal. She insisted on napping with him, taking him on her walk, and complained at bedtime until Daddy wisely acquiesced and...
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