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Posts tagged with: Featured

Babysitter For Hire

April 22, 2010 by Victoria Strong

One 2 1/2 year old babysitter for hire with lots of experience. I give gentle snuggles, tickle toes, pat tiny baby bottoms, and know just how to put baby to sleep.

Gwendolyn LOVES babies! And I mean loves! She looks when she hears a baby cry, she wants to visit all of her friends' new baby...

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Call To Action: Help Pass SMA Bill

April 20, 2010 by Victoria Strong
Calling all SMA supporters! We need your help!

As you know the SMA Treatment Acceleration Act is making its way through Congress. While the last few months have been focused on health care reform, our little SMA bill has been circling the desks of lots of Senators and Representatives. The good news...

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Family Cartoon

April 19, 2010 by Victoria Strong

The benefits of living in a seaside town with lots of tourists? Sometimes its fun to be a tourist, too.

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Nominate GSF

April 19, 2010 by Victoria Strong

We have so many exciting things happening at GSF! With your help we are collectively making a difference in the future of SMA. Thank you so very much for continuing to fight for the children impacted by this cruel disease!

In the coming weeks we are going to ask more of you. We are going to ask you...

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Moving Forward

April 18, 2010 by Victoria Strong
We are doing okay. Gwendolyn is back to wanting books and songs and helicopter rides. But it is going to take us a good while to fully recover from that episode. Sheer minutes, perhaps seconds, rallied in our favor yesterday and it is difficult not to think of the what ifs.

This isn't the first...

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Scary Saturday Morning

April 17, 2010 by Bill Strong
I'll preface this by saying that Gwendolyn is okay, but this is a Saturday morning that we'd like to reflect on, learn from, put in perspective, and put behind us.

This morning Gwendolyn stopped breathing, turned completely blue and cold from head to toe, and was lifeless for several minutes.We...

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Horse Therapy

April 15, 2010 by Victoria Strong
As you know Gwendolyn adoresmini horses. She just lights up whenever she is around them and clearly gets so much from seeing them. But Quicksilver, the mini horse breeder, is not super near us, which got me thinking about the possibility of being involved with a horse therapy non-profit called...
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New Blog

April 14, 2010 by Victoria Strong
Taaaa Daaaaa!!!! We are back! And we are BRAND spankin' NEW!

We are so excited about our new GwendolynStrong.com site. We have been conceptualizing it for some time now and this is exactly what we wanted!It has lots of new bells and whistles and I think will help us integrate our life living with...

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We Have Ramps!

April 14, 2010 by Victoria Strong

We have ramps for our car and this is BIG news around here! Probably seems crazy, but up until recently we've actually been lifting the entire stroller loaded with Gwendolyn and all the machines into the van (the "we" means Bill because it all weighs over 50 pounds). Ramps have clearly been a...

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Team_GSF_Header-01

April 13, 2010 by Victoria Strong
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Easter Weekend

April 06, 2010 by Victoria Strong

We had a really wonderful Easter weekend. My dad and Bill's mom came up on Saturday and Gwendolyn loved it. She kept looking back and forth at them, listening to everything everyone was saying, and seemed extra content to have both Gramma and GrandPa around her. We had fun doing an Easter egg...

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