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Posts tagged with: Featured

Team GSF SB Marathon: Help Us Reach Our $26,200 Team Fundraising

September 19, 2011 by Bill Strong

Thirty Team GSF runners are challenging and pushing themselves for the SMA cause in the Santa Barbara International Marathon on November 12, 2011. 30 competitors! And on top of the immense personal physical commitment they've made, they have collectively set a team fundraising goal of...

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First Day of Preschool! Miss G is a Big Pre-K Girl!

September 16, 2011 by Victoria Strong
Yep, you read that correctly. Miss G had her first day of preschool yesterday and it was AMAZING! Absolutely positively a very, very "Good Thing for Gwendolyn!"

The second we asked Gwendolyn if she would like to start going to school again, her little fingers tapped so fast and her eyes rolled up...

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SBCC Supports GSF and Makes Gwendolyn Honorary Vaquero Captain

September 15, 2011 by Victoria Strong

Are you ready for some football? Come on out Saturday, September 24th at 5:30 to support the Gwendolyn Strong Foundation and cheer on Miss G as she becomes the Honorary Vaquero Captain.

We are very excited and honored to have been selected as one of five charities the Santa Barbara City College...

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Super Miss G Is Home Rocking New Super Powers

September 14, 2011 by Victoria Strong
Super Miss G is doing great. Really great. As in almost fully back to normal. The blood transfusion was a success and we were sent home after just one day with Gwendolyn's lips more ruby than we have seen in weeks.

I'm so sorry we are just posting now. I know that worries people. To be honest we...

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In PICU: Gwendolyn Had a Blood Transfusion

September 08, 2011 by Victoria Strong

Well, crud. We are in the PICU again. Little Miss Gwendolyn had to have a blood transfusion. I know -- What the heck! Over the last week Gwendolyn has been really pale and so her doctors wanted to check her red blood count. Well, yesterday her hemoglobin came back a 5. Now all of this is new to...

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Team Lucy’s Legs Rock Lake Winnebago

September 07, 2011 by Victoria Strong
We absolutely LOVE Team GSF team members! We love, love, love them. We love the way they challenge themselves, we love how they motivate others, and we love that they push their bodies to the limits to make a difference for SMA.

Team Lucy's Legs is a prime example. They are rock stars. Lead my the...

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Feeling Pretty Good.

September 06, 2011 by Victoria Strong
Yes, we are feeling pretty good right now and it is all because Gwendolyn seems to be doing a little bit better. Baby steps, but we will take those! Gwendolyn had an okay Saturday, a great Sunday, and an okay Monday. I'm not saying we are in the clear now or that all is fine, but... she had a GREAT...
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This Moment.

September 02, 2011 by Victoria Strong

When Gwendolyn was first diagnosed, within two weeks we were hit like a ton of bricks with the reality of SMA -- a consultation trip turned into a month-long hospital stay at Stanford, new routines, new machines, a surgery, so much uncertainty, a failed ambulance ride home nightmare, a collapsed...

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GIVEAWAY: And The Winners Are…

September 01, 2011 by Bill Strong
Firstly, we want to commend all of the applicants for entering GSF's SMA Awareness Month Giveaway. You have taken a step to gain knowledge that many don't even know exists. You have power in knowing that this information is important...can be life changing.

We want to thank Counsyl for their...

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Counsyl Has Generously Donated Free Genetic Tests to Help Raise Awareness

August 28, 2011 by Bill Strong
At the Gwendolyn Strong Foundation, we want as many people as possible to know that 1 in 40 people unknowingly carry a severe mutation in the SMA gene. Getting tested before pregnancy is one of the best ways to make sure that your child does not fall victim to a possibly lethal genetic disease.

And...

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Gwendolyn Update and a Special Visitor

August 26, 2011 by Victoria Strong
Thank you all so much for your thoughtfulness and concern for Gwendolyn this week. Gwendolyn is status quo and we are still very worried...but very hopeful. We are seeing improvements in some areas, but are still waiting in others. There is still uncertainty about what exactly is going on, but...
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Santa Barbara Businesses Support theGSF

August 24, 2011 by Victoria Strong

Santa Barbara and its residents have been nothing but embracing since Gwendolyn's diagnosis with SMA. The support we have received goes well beyond our immediate friends and connections in the community. (And our immediate friends and connections have been awesomely A-mazing!) Friends told friends...

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A rough week, but grateful

August 22, 2011 by Victoria Strong

Gwendolyn has had another rough week. And this weekend was down right lousy. The good news is that from a respiratory standpoint she is healthy -- that is very, very good news for SMA. The bad news is this darn infection (or the problem we can't seem to figure out) just won't go away. It is now a...

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Team Lucy’s Legs

August 18, 2011 by Victoria Strong
Sweet Lucy Zahn has inspired a team of supporters! Her spunky spirit is motivating people to not only learn about SMA, but to get involved in helping end it!

Team "Lucy's Legs" will be riding 90 miles around Lake Winnebago this weekend in Race The Lake 2011. Lake Winnebago is one of the largest...

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Good Things For Gwendolyn: A Wizard Promise Fullfilled

August 17, 2011 by Victoria Strong
Gwendolyn is still having a tough time. She hasn't bounced back the way she usually does after antibiotics and we are feeling a bit on edge (well, we are always on edge, but more so). We are having more tests done to try to get to the bottom of it all, but she just isn't her go, go, go self. So we...
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This is SMA. And this is what incredible looks like.

August 15, 2011 by Victoria Strong

We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless.

These families and their stories represent what this disease really is. SMA is far more than its brutal...

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City of Santa Barbara Again Declares August SMA Awareness Month

August 12, 2011 by Victoria Strong

Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extremely complimentary and enthusiastic about...

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Cupcakes for Amanda

August 11, 2011 by Victoria Strong

Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has SMA.

For the entire month of August Amanda...

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Viva Las Vegas

August 10, 2011 by Victoria Strong
Before unexpectedly driving 5 hours north to Stanford, we had a fabulous planned long weekend 5 hours east of Santa Barbara visiting some great friends in Las Vegas, Nevada. Viva Las Vegas! Whoa, the G-Van is really racking up the miles these days...

Gwendolyn is actually a Vegas veteran. Yep, at...

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SMA Awareness Month: Challenge Number Two.

August 08, 2011 by Victoria Strong

Way to go on Challenge Number One. Keep up the great work. You guys are doing an amazing job spreading the word about SMA and what we at the Gwendolyn Strong Foundation are trying to do to change it. Our Facebook Fan Page is growing every day, reaching new people, thanks to you!!!

Challenge...

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