Blog
Posts tagged with: Doctor
Great News
December 13, 2010 by Victoria
Good news -- GREAT news! Gwendolyn's appointment today went really well. All things considered, Dr. Yuan is actually really pleased with how Gwendolyn looks and sounds. Her labs came back excellent. Her x-ray was fabulous. And overall she is in tip-top shape. WHEW! We talked to Dr. Yuan for hours...
Read More >>Some Worry
December 13, 2010 by Victoria We are worried. We have been for a month now, but we keep hoping we will see improvement. We keep hoping we aren't seeing what we are seeing. Gwendolyn just isn't herself. She isn't sick. She wants to do and go and see, but her energy is low. She is not coming off bipap for very long. She is... Read More >>Watching Gwendolyn Closely
August 10, 2010 by Victoria
So Gwendolyn is fighting something. We hesitate to say she is sick because, well, she's smiling and insisting on doing things and going places, but she's just not quite right. No fever. No major lethargy (although a little more tired than usual). But she's not fully herself either. For several...
Read More >>Trilogy Transition Going Well
May 15, 2010 by Victoria Gwendolyn is a champ! She is transitioning to the Trilogy with ease and, thanks to the help of so many people, the last few days have been positive ones. The reality that her settings are now so high that she is even more vulnerable weighs heavily on us, but the kindness of others helps to soften... Read More >>Heading To Stanford For Trilogy 100
May 12, 2010 by Victoria We'd be lying if we said everything is A-ok in the Strong household. It is not. And while we know we are in a very precarious situation with Gwendolyn, we are hopeful. We have a plan. Team Gwendolyn is in full force!Gwendolyn had another episode last week. She didn't completely stop breathing, but...
Read More >>Watching Gwendolyn
February 05, 2010 by Victoria We are a little concerned about Gwendolyn. We have been watching her closely for several weeks. Nothing major is happening, but whenever we notice any subtle changes our worry-meter goes off. She is not tolerating being off bipap for long, has been waking up crying in the night, and has had some... Read More >>Birthday, Check Up and Christmas Walk
December 04, 2009 by Victoria Today is Gwendolyn's 26th month birthday! Hooray! We sang Gwendolyn's favorite song (Happy Birthday to Gwendolyn) and are heading out for walk to get a special birthday balloon!Yesterday afternoon we went to our awesome pediatrician office to get the second dose of the H1N1 vaccine and the first... Read More >>
Vaccinated!
October 29, 2009 by Victoria
We are H1N1 vaccinated! We have been waiting for the shot form of the vaccine to come into our county and started to get nervous as more time passed (and as H1N1 deaths begin in our local hospital). Well, today it arrived and Gwendolyn's pediatrician called us bright and early to come and get it.... Read More >>
Gwendolyn Has a Cold and Ear Infection
October 14, 2009 by Victoria Gwendolyn has a cold and an ear infection. Right now it looks to be a mild-ish issue, but we are, of course, watching closely.It started on Saturday with a random fever, but when a tooth broke through on Sunday our worries subsided, thinking the fever was simply teething. The only thing that gave... Read More >>
EEG Follow Up
October 08, 2009 by Victoria We met with a local neurologist this afternoon to discuss the EEG and the episodes we are seeing. It was inconclusive at this time, but there is concern that what we are seeing is indeed a seizure disorder. We were with the doctor for hours today and went over everything from possible medicines to... Read More >>Gwendolyn's EEG
October 07, 2009 by Bill Strong We've been noticing Gwendolyn having random periods (semi-regularly and mostly off bi-pap) where she is blankly staring into the distance and is more or less unresponsive for several seconds. Her pupils dilate and/or one or both eyes will travel or float during the episode. It's definitely alarmed... Read More >>Gwendolyn Update
September 17, 2009 by Victoria It has been a busy few days. We are home from Stanford now and are continuing to try to figure out what is going on with Gwendolyn. We are still a bit worried, but are relieved to be tackling the issues.She is doing fine on the antibiotic, but we are watching her closely to make sure her...
Read More >>Off To Stanford…
September 14, 2009 by Bill Strong
Gwendolyn Update
September 12, 2009 by Bill Strong
All is Well
May 20, 2009 by Bill Strong
Big Bird Has Come To Town
May 20, 2009 by Bill Strong
Gwendolyn Is Doing Just Fine
April 29, 2009 by Victoria
After speaking with Gwendolyn's pulmonologist and making a visit to see her pediatrician, Dr. Abbott, today, we aren't as concerned as we were earlier. While the change in Gwendolyn's oxygen saturation is strange, given that she has never shown any signs of distress or discomfort or major signs of... Read More >>
Happy 17 month birthday and update
March 04, 2009 by Bill Strong
Happy 17 month birthday Gwendolyn!!!! How about a ginormous "happy birthday" singing Elmo balloon for your birthday? Well, that and a trip to the doctor for your monthly Synagis RSV shot :( Poor little thing.
We were pretty concerned about Gwendolyn over the last week. First, she had an upset tummy,... Read More >>
G winning everyone over
January 22, 2009 by Bill Strong
flirting at every nurse, med student, and doctor. She really knows how
to work a crowd! Read More >>
Stanford, here we come!
January 21, 2009 by Bill Strong Tonight, we're off to Stanford to meet with Team Gwendolyn all day tomorrow. It's a pretty tiring trip, five hours each way, but we've found that getting up and back in the same day is actually less tiring than splitting it out across several days.We'll be meeting with Dr. William Berquist, our...
Read More >>
Popular Posts
Tags
200k for sma
gwendolyn strong foundation
gwendolyn
featured
spinal muscular atrophy
friends
teamgsf
fundraiser
parenting a child with disabilities
sma tips
sma awareness
concerned
sponsor-a-mile
hospitalization
acts of kindness
chase community giving
news
good things for gwendolyn
birthday
holidays
development
therapy
video
sma treatment acceleration act
3rd birthday
Show More
Archive
2013
May (2)
April (4)
March (3)
February (5)
January (5)
2012
December (3)
November (8)
October (4)
September (5)
August (8)
July (7)
June (7)
May (9)
April (9)
March (7)
February (8)
January (10)
2011
December (8)
November (16)
October (16)
September (14)
August (15)
July (16)
June (13)
May (27)
April (22)
March (21)
February (20)
January (21)
2010
December (19)
November (22)
October (16)
September (23)
August (22)
July (28)
June (22)
May (24)
April (23)
March (26)
February (19)
January (24)
2009
December (19)
November (22)
October (32)
September (25)
August (25)
July (45)
June (45)
May (35)
April (26)
March (35)
February (34)
January (36)
2008
December (38)
November (21)
October (30)
September (22)
August (30)
July (27)
June (18)
May (5)
April (6)
March (3)
February (1)
January (2)
2007
December (7)
October (1)