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Posts tagged with: Development

Gwendolyn Has Her Own Ideas

January 27, 2009 by Victoria Strong

Gwendolyn decided she didn't want to take a nap today and she definitely didn't want to go to bed tonight. With a busy day and the lack of sleep, I was surprised she wasn't crabby. In fact, she had lots of cheerful babble to say to all of her pals tonight. Finally, they wore her out and she...
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VIDEO: Gwendolyn sitting up, unsupported, playing

January 26, 2009 by Bill Strong
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It Is A New Year

January 08, 2009 by Victoria Strong

We had a wonderful visit with my sister and her family, but are now getting back into our routine. There is, however, a sense of newness. For one, we are in a much different place than we were when Gwendolyn was first diagnosed. It isn't a place without grief, fear, or heartache, but it is a more...
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VIDEO: Gwendolyn's New Sounds

December 22, 2008 by Bill Strong
Over the last week or so Gwendolyn has been chatting away with a new "yah, yah, yah, yah..." sound that we've never heard before. It melts our hearts every time she does it.

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Gwendolyn's Favorites

December 17, 2008 by Victoria Strong


Gwendolyn is such a happy baby that there are few things that she does not like, but I thought it would be fun to name some of her current super top favorites (in no particular order):

Elmo -- Gwendolyn loves Elmo. That crazy red guys gets her full attention. She loves to watch DVDs of "Elmo's...
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VIDEO - Gwendolyn's Giggle

December 05, 2008 by Bill Strong
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They grow up too quickly!!!

December 03, 2008 by Bill Strong

I can't believe how long my little girl is now. It seems like just yesterday that she could lay on my arm from my hand to my elbow...
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Gwendolyn's new play contraption

November 02, 2008 by Bill Strong




We've definitely found it difficult adapting toys to suit Gwendolyn's situation to keep her mind challenged and to allow her to play independently. Light toys, feathers, ribbons, rings, balloons, balls, music, DVDs, etc. are all favorites, but we've found that hanging things directly over her makes...
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Lower heart rate at 1 year. Who knew???

October 09, 2008 by Bill Strong
Last week we noticed that Gwendolyn's heart rate, while awake and sleeping, was consistently 20-30 bpm's lower than in the past. For the past 12 months her heart rate has been 130-140 while awake and 110-120 while sleeping and her heart rate is now 110-120 and 90-100, respectively. At first we were...
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Caught in the act

September 07, 2008 by Bill Strong

Gwendolyn's new favorite trick is to take her favorite toys, the
trusty green chirping cricket in this case, and toss them off of the
side of the couch. When she does it she looks at whoever is sitting
next to her with such a playful, proud, excited look on her face
(sometimes a little chuckle...
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Just a few new things

August 26, 2008 by Victoria Strong

(I just love this picture and, even though it was taken a few weeks ago, I just had to post it.)

Over the last few days we have seen a few Fun new things.

#1: We felt a tooth!!! This has been a 5 month long discussion as her teething seemed very apparent, but no teeth were ever seen. Well, we have a...
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Teething and Separation Anxiety

July 11, 2008 by Victoria Strong


Gwendolyn is showing us that she is just like all babies. For the last week she has been showing signs of teething: drool, pink cheeks, low fever and fussiness. The fussiness immediately got our attention because she is such a happy baby and rarely fusses. Thankfully, Tylenol and naps do wonders.
...
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