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Posts tagged with: Development

Preschool Photo Shoot and the Small Things

March 18, 2011 by Bill Strong

Yesterday, Gwendolyn had her preschool photo shoot. She took her class picture with all of her school friends and teachers. And then -- just like all of the other kids -- she excitedly took her posed solo shots sitting in her purple tumbleform chair in front of a cheesy faux windowsill setup smile...

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Power Chair—Get the G-Team Van

July 02, 2010 by Victoria Strong
The power chair is being ordered!!! Hazzah! After almost a year of preparation, trial and error, Jerry-rigging, tweaking, and lots of practice, practice, and more practice, we have found a system that works for Gwendolyn and she is ready to hit the road.

Gwendolyn's disabilities are such that we...

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Gwendolyn’s New Food Regimen—The AA Diet

June 27, 2010 by Bill Strong
This week we started Gwendolyn on a new food regimen, the Amino Acid (AA) diet. This represents a pretty big shift for Gwendolyn and we are appropriately nervous. Any change is always worrisome, but we are also hopeful that the AA diet will benefit Gwendolyn's overall energy and health.

Gwendolyn...

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Heading To Stanford For Trilogy 100

May 13, 2010 by Victoria Strong
We'd be lying if we said everything is A-ok in the Strong household. It is not. And while we know we are in a very precarious situation with Gwendolyn, we are hopeful. We have a plan. Team Gwendolyn is in full force!

Gwendolyn had another episode last week. She didn't completely stop breathing, but...

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"Walking"

March 02, 2010 by Victoria Strong
Yesterday was a first...well, at least in this form. Gwendolyn "walked." By walking I mean she was in the stander and we rolled it through the therapy unit. Simple enough for most folks, but this is the first time Gwendolyn has ever moved completely forward while standing. She has been using the...
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Gwendolyn Playing On Her iPod Touch; So Many Possibilities!

December 31, 2009 by Bill Strong
Gwendolyn's big Christmas present this year was an iPod Touch. We think the super-sensitive "touch" screen and the thousands of fun applications through the App Store will be great for her to play independently -- something that we're always struggling with given her challenges. We also think the...
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Gwendolyn's Wheels (watch your toes…)

December 03, 2009 by Bill Strong
Gwendolyn has been practicing and practicing and practicing in her power chair and she's starting to really get the hang of it. She loves it -- and that's absolutely the most important thing. Her face beams when she is in her chair and she loves "finding" Daddy and Mommy and Gramma. Watching her...
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Gwendolyn's First Steps

November 03, 2009 by Bill Strong

Over the last month we've been prepping Gwendolyn and getting her comfortable with her hot pink demo power chair at one of her therapy sessions every week. She's taken baby steps, as usual, warming up to the idea at first and slowly making her own decision when she's ready to take the next step.

...

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Warming Up To That Power Chair

October 20, 2009 by Bill Strong
On Monday, Gwendolyn had a big, huge, gigantic personal breakthrough with her demo pink power chair at our weekly therapy appointment. We've been careful not to push her too quickly into the chair, knowing that it was going to be a major step for her and one that she had to make on her own -- at...
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Warming Up To The Power Chair

September 30, 2009 by Bill Strong
On Monday, we had very exciting "first" -- and much sooner than we anticipated. Gwendolyn got to see and try a Permobil K300 power chair. And it was hot pink!

Our experience with new things, especially big new things for Gwendolyn, is that she needs a warm-up period to get used to the idea and,...

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Hear Ye, Hear Ye…Presenting Princess Gwendolyn

June 08, 2009 by Victoria Strong



Yes, Lady Gwendolyn is now an official Princess and she could not be more excited! After opening this wonderful present yesterday from her special Aunt and Uncle and cousins in Philadelphia, Gwendolyn LOVED looking at herself in the mirror wearing her crown and the tutu skirt. I was only allowed...
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X-Y-L-O-P-H-O-N-E

June 03, 2009 by Bill Strong

Gwendolyn is really doing well in her stander and she is LOVING EVERY SECOND OF IT! - which is all that matters. She's up to 50-55 degrees for about 20-30 minutes. This week, she smiled ear-to-ear when we put her in the stander at her weekly CCS therapy session and starting raising her up. But, the...
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New Fun Toy and a Pair of Pink Crocs!

May 30, 2009 by Bill Strong
Gramma brought a fun new toy that Gwendolyn enjoyed playing with her last week. Gwendolyn loved choosing which color wooden "nail" to take on next and having Gramma help her pound, pound, pound them with the hammer. You can tell she really liked the feel of the impact of the hammer and the noise...
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Being Social with SMA

May 28, 2009 by Victoria Strong

Gwendolyn is truly a social child. She has been since she was a tiny baby. During our first hospitalization when she was only 9-weeks-old, she showed no fear toward strangers, and instead beckoned every nurse with a sweet grin and a look that said, "Hi, come play with me." And she hasn't slowed...
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First Haircut

May 19, 2009 by Victoria Strong
Gwendolyn had a big day today. After two sessions of therapy, playtime with Mommy, and an outing, she had her very first haircut. Yes, our little baby is such a big girl. A nice woman came over to our house and in less than 5 minutes, snip, snip, snip, Gwendolyn is looking like a glamor girl. She...
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Gwendolyn Loves Ernie

May 06, 2009 by Victoria Strong
Elmo is still a favorite, but Ernie has become another trusted and special buddy. Gwendolyn also likes Big Bird and Zoe, so we will be on the lookout for these cuddly friends to join her posse.
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Gramma's House

April 21, 2009 by Victoria Strong
Gwendolyn was over the moon to be at Gramma's house. The excitement started before we even got there just by telling her we were going to see Gramma and Gramma's doggie!!! Gwendolyn totally understands now and it was so cute to see her get excited about the new adventure. She loved the new...
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Where is Baby Gwendolyn?

April 15, 2009 by Victoria Strong

Will someone please tell me where my little baby went? Apparently Gwendolyn got the memo that she is now a BIG Girl of 18 months. I know many of you have noticed her growth spurt already, but seeing her in these big girl jeans -- Wow! (They are her first pair.) Her personality has also suddenly...
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Just Say No to Naps

February 07, 2009 by Victoria Strong

This is Gwendolyn during her morning nap...Yes, the entire nap...accompanied by lots of singing.
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New Tricks

February 06, 2009 by Victoria Strong

Gwendolyn has now mastered several new tricks that we, of course, continue to ask her to perform. And, like the good girl she is, she appeases us until, well, she's had quite enough...

No Nod: Gwendolyn has been shaking her head "No" for months, but it is only recently that she does so with...
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