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Posts tagged with: Clinical Trial

California friends, we need your help!!!

April 03, 2009 by Bill Strong
Families of SMA (FSMA) is working with California Stem Cell, Inc. (CSC) to secure federal funding for a clinical trial aimed at identifying a cure for SMA via cell replacement therapy. They are at a critical juncture in this process and we need your support!

If you live in California please...
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Good News and Bad News

October 07, 2008 by Victoria Strong
Yesterday we did a day trip to Stanford to see Gwendolyn's Pulmonologist, Dr. Nanci Yuan, about our recent concerns. The good news is Gwendolyn does not have pneumonia or areas of atelectasis in her lungs. The bad news is the changes we are seeing are in large part because her chest wall is...
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No change = good news

October 02, 2008 by Bill Strong
There was no change in Gwendolyn's condition yesterday, which is very good news. She's in good spirits, as usual, but is a bit lethargic. Nothing jumps out as a result of all of the tests, but the doctors think that Gwendolyn is most likely fighting her way through a small virus. When healthy,...
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Stanford cattle-run

September 09, 2008 by Bill Strong
We all had a wonderful time with Gramma last week. Gwendolyn loved
playing and swimming and just plain being spoiled (we were all
spoiled). We arrived back home on Sunday via our new mini-van (the G-
Van) and our house was actually in pretty good order given the
extensive surprise plumbing project...
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Point Lobos State Reserve

August 20, 2008 by Bill Strong


We spent the last two days at Stanford for some more appointments with Gwendolyn's neurologist, Dr. Wang. She had two blood draws, which are really hard on her because her veins lay deeper than normal due to her lack of muscle tone and blood flow :( She also had an EKG and everything looks good....
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On the road again…

August 16, 2008 by Bill Strong

On Sunday (8/17), we're packing up and hittin' the road in the RV again. We have several all day long appointments at Stanford with Gwendolyn's neurologist, Dr. Wang. We will be checking into the day hospital and Dr. Wang is going to be taking blood from Gwendolyn every two hours to see how her...
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Stanford Here We Come…

August 02, 2008 by Bill Strong


I just loved this picture of Gwendolyn...

Next week we'll be heading up to Stanford for a week to meet with Gwendolyn's amazing doctors, Team Gwendolyn smile We can't believe it's been three months already since we came home from our first trip up there. On one hand it feels like it was just yesterday...
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