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Posts tagged with: Acts Of Kindness

Calling All SMA Families—Win a FREE Apple iPad!

June 14, 2010 by Victoria Strong

The Strong family, together with Milverstead Publishing, is super excited to be giving away an Apple iPad to one lucky person on SMA Space.

Yes, that's right. One family impacted by spinal muscular atrophy could win a FREE Apple iPad! Doesn't cost a thing. No strings attached. You just submit an...

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Rubber Duckie…You’re The One!

June 08, 2010 by Victoria Strong
The amazing Beb-e-ssential ladies, Penny and Melissa, have blown us away and we are so excited to share their exciting story! Not only did Penny and Melissa hold a GSF fundraiser, raising over $1,000 through sales of their darling handmade children's accessories, they then extended their GSF...
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Abby Cadabby Dream Come True

May 21, 2010 by Victoria Strong

When we returned home after the Stanford trip, we received the most incredible surprise. And I mean, incredible! A dream come true for Gwendolyn. Unbeknownst to us, a friend of a friend was working on a little project for Gwendolyn (actually, a pretty darn BIG surprise in the world of an...

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Acts of Kindness: Personal Charm Bracelet

April 02, 2010 by Victoria Strong
I opened the mail today to discover a letter from a woman I have never met. Nor have I emailed with her. In fact, I had no idea that she was busy making the most wonderful gift for me -- a personalized charm bracelet. Now this isn't any old charm bracelet -- this is amazing! Tanya said she went...
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Acts of Kindness: Andrulaitis Family Fundraiser

November 06, 2009 by Victoria Strong
We are once again humbled by the kindness and generosity of friends -- and strangers. A few weeks ago I was contacted by Mary Andrulaitis, a woman I've never met. She told me in her email that she heard about Gwendolyn through her involvement with PEP and has since been following our blog and...
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Flag Flown Over U.S. Capitol in Honor of Gwendolyn

October 17, 2009 by Victoria Strong
Our friends have done it once again. We are humbled, excited, and so honored by the thoughtfulness, generosity, and kindness of the people in our lives. Unbeknownst to us, a flag was flown over the United States Capitol in honor of Gwendolyn on her second birthday! Yes, this building where all 535...
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Acts of Kindness: The #Westin Palo Alto via Twitter

September 17, 2009 by Bill Strong
Normally, when we take Gwendolyn to Lucile Packard Children's Hospital at Stanford (LPCH) to see "Team Gwendolyn", we pile in the minivan and drive from Santa Barbara to Palo Alto (600+ miles round trip) in the middle of the night, have our appointments all day, and turn around and come right home....
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Acts of Kindness and Pajama Party at Elements

September 07, 2009 by Victoria Strong
A few weeks ago, we received the most thoughtful gift in the mail -- and after a particular yucky day, it couldn't have come at a better time. I opened a letter to find two things: 1) a gift certificate to our favorite restaurant, Elements, signed from "An Angel" and 2) an email to Elements from...
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Acts of Kindness: Santa Barbara Friends

July 26, 2009 by Victoria Strong

We have posted about the wonderful people we know in Santa Barbara before (1,2, 3...) but we are truly, truly fortunate and continually astounded by the kindness and support we receive.

Over the last nearly two years, a core group of Santa Barbara families have made a substantial difference in our...

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Acts of Kindness: LifeCare Solutions

July 17, 2009 by Bill Strong
We'd like to thank our home healthcare provider, LifeCare Solutions, for being unbelievably proactively supportive of our cross-country RV trip with Gwendolyn. One of our biggest concerns and stresses about this trip was Gwendolyn's machines and supplies. What would happen if we were in the middle...
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Acts of Kindness: The Prokopetz Family

July 09, 2009 by Victoria Strong

We received the most heartwarming email from our blog friend Lisa about the wonderful gesture her darling children created to benefit the Gwendolyn Strong Foundation. The Prokopetz family live in Canada and July 1st is Canada Day. As part of their celebration, sweet Matthew and Sidney asked their...

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Acts Of Kindness: Nana Barb and Mounds Park Academy

July 03, 2009 by Bill Strong

Barb Meland, known as "Nana Barb" in SMA circles and to her darling grandson Drew, and her students at Mounds Park Academy have touched our hearts. She is a first grade teacher in St. Paul, Minnesota. At the end of the school year one of the parents asked what she would like as an end-of-year gift....
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Acts of Kindness: Palestine, TX

July 02, 2009 by Victoria Strong
Where do I even begin with what we just experienced in East Texas? It all began with the wonderful front page article Cheril Vernon wrote for the Palestine Herald. During the phone interview she mentioned an opportunity for us to speak publicly and I quickly said we would absolutely be interested,...
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Acts of Kindness: Penn Valley/Wynnwood Mom's Club

July 01, 2009 by Victoria Strong

We just got news that the Penn Valley/Wynnwood Mom's Club outside of Philadelphia, Pennsylvania (where my sister is a member) has chosen the Gwendolyn Strong Foundation as this year's recipient of their charitable donation. We'd like to especially thank the thoughtful women who nominated GSF and...
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Acts of Kindness: Rancho Sedona RV Park

June 29, 2009 by Bill Strong
These are the things that give me goosebumps - literally. And, over the last year since Gwendolyn's diagnosis, I've had the distinct pleasure of experiencing things of this nature many, many, many times. And it's not sympathy, as I really don't appreciate sympathy. It is just simple, gracious acts...
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Live New England Lobstas…Yummy!

May 24, 2009 by Bill Strong
Yesterday, a surprise box was delivered to our house in the morning. One of my best friends, Matt (who lives in Boston), sent us live lobsters from Legal Sea Foods, a New England mainstay. Matt was born and raised in Boston so I've heard my fair share of Legal Sea Foods stories over the years. But,...
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Glendale Elks Lodge No. 1289 - Thank you!!!

January 09, 2009 by Bill Strong
We'd like to say a big thank you to our dear friend Jeff Hanson and the Glendale Elks Lodge No. 1289 for their generous and unexpected donation. We are planning to use the funds to help us purchase ramps for our home and the GVan to make it easier for us get Gwendolyn's wheelchair stroller in and...
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Gwendolyn's New Wheels

November 20, 2008 by Bill Strong

Gwendolyn has a shiny new stroller, the ExoMotion JAZZ EASyS, and she is absolutely loving it!!! Although the Quinny Buzz Dreami stroller worked really well for much longer than we ever anticipated, Gwendolyn's long legs were busting out of the end of it -- literally. Something tells me the...

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Emily Hart-Roberts and NILMDTS

October 28, 2008 by Victoria Strong
During the week of Gwendolyn's first birthday we had photos taken by Emily Hart-Roberts. Emily is kind and sensitive and a very talented photographer. She also works with the organization Now I Lay Me Down to Sleep, a non-profit that provides photographs to families of critically ill or stillborn...
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Awesome PEP Moms

August 12, 2008 by Victoria Strong
I am once again blown away by the kindness of others and their willingness to go above and beyond for us. Over the weekend a group of PEP mothers, the parent group I was in before Gwendolyn became ill, got together and hosted a booth on State Street. They passed out fliers, spread awareness about...
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