Posts tagged with: Acts Of Kindness

Good Things For Gwendolyn: A Wizard Promise Fullfilled

August 17, 2011 by Victoria Strong
Gwendolyn is still having a tough time. She hasn't bounced back the way she usually does after antibiotics and we are feeling a bit on edge (well, we are always on edge, but more so). We are having more tests done to try to get to the bottom of it all, but she just isn't her go, go, go self. So we...

Acts of Kindness: A Wizard of Oz Surprise in Memory of Chloe

July 29, 2011 by Victoria Strong
Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this was a hit is an understatement. When...

Acts of Kindness: The Walker Family

July 07, 2011 by Victoria Strong

Wow. Simply blown away. Ann and Jim Walker and their darling twins Will and Lily are determined to raise $5,000 for theGSF this year. They decided this all on their own and are half way to their goal. When Will and Lily turned two earlier this year they asked for donations to theGSF in lieu of...


Strawberry Festival Goodness

June 28, 2011 by Victoria Strong
The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to increase SMA awareness. You may remember the...

Gwendolyn Tests Tobii and an Act of Kindness Leaves Us Speechless

June 03, 2011 by Victoria Strong

We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster.

Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This "computer" is able to detect and follow Gwendolyn's eyes and how...


Little Star and Gwendolyn in Santa Barbara News-Press

April 13, 2011 by Victoria Strong

You all know that Little Star is Gwendolyn's animal BFF. She loves him so much and he loves her. I've written about them here, here, and here.

We are so lucky that Diane (Little Star's Mommy) is such a dear friend. She always includes us and she always, always makes Gwendolyn feel special. We met...


Hope Calender: Last Call and Finishing Up

January 11, 2011 by Victoria Strong

The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response -- making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. Click here to buy. And for all of those...


Birthday Donations/Children Helping Children Part 2

January 06, 2011 by Victoria Strong

We continue to be incredibly humbled by the dozens of people who have chosen to turn their special birthday into a fundraising opportunity for GSF. Some have done big things for milestone birthdays (like Julie's 40th and Mia's 30th), hosting parties at restaurants or bars and asking all their...


Amazing Employers Helping to End SMA: Nazdar

December 23, 2010 by Victoria Strong

Kristin and Tony Burks have incredible employers -- as in dream companies! Not only is Tony's boss climbing the highest peak in the Western and Southern Hemispheres to raise awareness and funding for SMA research, but Kristin's company, Nazdar, has consistently gone above and beyond as well. Their...


Snow At The Santa Barbara Zoo

December 06, 2010 by Victoria Strong

We had an AWESOME day yesterday! Awesome! And we needed it. The Santa Barbara Zoo hosted their annual "Snow Leopard Festival" (you may remember we went last year). The Santa Barbara Zoo actually trucks in piles and piles of ice to create snow for a one day really special event. They build a...


Kismet Kindness

November 11, 2010 by Victoria Strong
Don't worry -- we are doing okay. It's funny how sometimes just venting brings relief. And we are definitely feeling encouraged and supported by your kind comments and emails -- THANK YOU! And yesterday we received the most wonderful packages from four different very special friends. It is amazing...

ONE WEEK LEFT: Beb-e-ssentials Birthday Bash

October 25, 2010 by Victoria Strong

Whew - where did the month go? There is only one week left in October, which means only one week left to be part of Beb-e-ssentials Birthday Bash for Gwendolyn! These fabulous ladies have turned their entire business over to increasing SMA awareness and funding and we are simply blown away by them...


The Halloween Fun Begins

October 25, 2010 by Victoria Strong

We had a really great weekend of pre-Halloween fun. We have been so busy lately that we are getting a late start on all the Halloween goodness. I love Halloween -- pumpkins, dress up, all the harvesty foods -- sign me up! So I was in full glory this weekend and since Gwendolyn is her Mama's girl...


MUST READ: Doing the Right Thing Leads to TWO $20K Grants

October 02, 2010 by Bill Strong

By now, I'm sure you heard the incredibleSamsung Helmet of Hope news about Cookies for Kids' Cancer winning $20,000 for ending up with the most votes in the contest and GSF being surprised by Jimmie Johnson live on television with a $20,000 grant for 2nd place. Awesome! Simply awesome!

So, how did...


Birthday, Birthday, Birthday and Gratitude

October 01, 2010 by Victoria Strong

Only a few more days until little Miss Sparkle's BIG day! And it is definitely birthday madness around here. Every day more cards, packages, and $36 for 36 Months donations arrive from all the amazing people who love our little princess. (THANK YOU! THANK YOU!) We are busily organizing our trip to...


Little Star Love

September 03, 2010 by Victoria Strong
Gwendolyn is in love -- L.O.V.E. His name is Little Star and he is her mini horse best friend!!! Little Star moved to a new home over by the beach about three weeks ago and we have been going out to see him every chance we get. The best part is Gwendolyn completely controls everything.

We've been...



August 27, 2010 by Bill Strong
In all of the sadness and the grief that comes with all of the frustration with having to fight for so much while sometimes barely holding all of the years we've now lived with this disease -- the kindness of others continually amazes us and leaves us simply speechless. Sometimes...

Children Helping Children Part 1

August 10, 2010 by Victoria Strong
There's something about children helping gets me every time. It makes me both choked up and motivated to see these innocent faces filled with so much determination and certainty. I love it. We are invigorated by their selflessness and their generosity in giving up a toy or a playtime...

National SMA Awareness Month Sweepstakes

July 31, 2010 by Victoria Strong
I was just getting ready to post about this amazing thing author Chris Finlan is doing and let folks know they can still participate in this awesome thing, when I got a call about his newest generous idea! August is National Spinal Muscular Atrophy Awareness Month and to kick things off, Chris...

Way to Go Stephen! Good Luck and Thank you!!!

June 22, 2010 by Victoria Strong

Tomorrow Stephen Taylor will fly from New Bedford, Massachusetts to Squaw Valley, California in the countdown to the Western States 100 Ultramarathon. That is 100 miles over rough terrain in a 24 hour period. It is insanity and incredible! And Stephen's motivation, selflessness, and perspective...


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