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Posts tagged with: 200k For Sma

Ava’s Aunt Anna: SMA Aunt on Etsy

December 17, 2010 by Victoria Strong

Ava is an adorable long-haired sassy sweetheart. She has a big personality and she loves her Aunt Anna. And who can blame her -- Ava's Aunt Anna is awesome! Anna contacted us back in June wanting to participate in the "$200K for SMA" campaign. Anna has been a big supporter of all the different...

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Nerds For Nora

December 16, 2010 by Victoria Strong

You may remember this post about some of the creative fundraisers the Gooden family have organized over the last few months. And in that post I mentioned sweet Nora's awesome Aunt Tiffany was organizing "Nerds For Nora" -- a night of board gaming for a cure! Well it was a big success! Friends...

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Shop Zoolu! Today Through Next Week To Help End SMA

December 03, 2010 by Victoria Strong

The big End SMA bash at Zoolu! starts TODAY!!!! Between December 3rd and December 15th, Zoolu! will be donating 15% of ALL orders with the "ENDSMA" code!

Zoolu! is an online store that offers all the top name-brand gifts for babies, children and Mommies as well as a large selection of quality...

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Help Make Your Holiday Purchases = SMA Research Funding

November 23, 2010 by Victoria Strong

It's that time of year! Holiday shopping is now in full swing! Don't let the chance to help end SMA pass you by. There are so many ways your purchases can help garner increased research funding and you can give really special gifts at the same time! We are really honored to partner with so many...

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Calling All GSF Supporters—We Need Volunteers!

November 21, 2010 by Victoria Strong

Okay Team GSF, we need your help! You remember that GSF was selected as the sole recipient of this year's beautiful Hope Calendar? And I know many of you have already purchased one for yourselves (thank you!). Well, Hope Calendar photographer Debi Gomez was able to present a $10,000 check to last...

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2nd Annual “Golf For A Cure” A Huge Success!

November 21, 2010 by Victoria Strong

Last Friday, we hosted GSF's 2nd Annual "Golf For A Cure" tournament at Sterling Hills Golf Club in Camarillo, California and it was a whopping good time and a huge success -- raising over $15,000 for our "$200K For SMA"fundraising program in support of promising SMA gene therapy research! The...

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Incredible Weekend With The Burks Family

November 16, 2010 by Bill Strong

Two weeks ago, I had the pleasure of flying out to Kansas to meet the Burks family and attend their inspiring Climb4SMA kickoff event. It's never easy to leave Victoria and Gwendolyn -- and I so wish they could have gone with me -- but I was honored that Tony and Kristin Burks invited me to be...

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Hope Calendar—> 100% Benefits SMA Research

November 09, 2010 by Victoria Strong

We are so, so excited! The 2011 Hope Calendar has arrived and is ready to start raising funding for SMA research!!! And it is GORGEOUS!!!

What is the Hope Calendar? The Hope Calendaris published by Houston photographer, Debi Gomez of Lifes Images Photography as an annual effort to give back to...

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Gooden Family Fundraisers

November 07, 2010 by Victoria Strong

I am sure you remember our friends the Gooden family. They are parents to sweet-as-a-button Nora. We just love her and them. They are incredible parents, giving Nora such fun experiences and so, so much love. I follow their blog constantly to see what new adventures Nora is getting to have --...

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New York City Marathon SMA Warriors

November 05, 2010 by Victoria Strong

Be the change you want to see in the world!

That is the quote that both Lauren Lundy O'Connor and Magda Cardoso have selected as their mantra for this Sunday's New York City Marathon. Lauren and Magda are SMA Warriors, the SMA Fighting Divas, examples of living with action and their fierce...
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Climb 4 SMA Kick Off Party—> TONIGHT!

November 05, 2010 by Victoria Strong

Tonight -- after 2 1/2 months of intense planning -- the BIG Climb 4 SMA Kick Off Party officially kicks off!!! And the Burks family are simply extraordinary!They really are.Kristin and Tony are pouring every ounce of energy into changing the brutal outcome of this disease, all while giving Jadon...

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ShopToEndSMA.com = End SMA Purchasing Power

November 03, 2010 by Victoria Strong

It's that time of year again. The holidays are in the air and that means shopping, shopping, shopping. So... here is your friendly reminder to continue to put your normal online shopping dollars to good use helping to END SMA by simply starting your shopping withShopToEndSMA.com - some merchants...

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Golden Family Fundraisers

November 02, 2010 by Victoria Strong

There have been so many amazing fundraisers happening over the last few months hosted by so many incredible people. And shame on me for not sharing them sooner because they are awesome! And because of all of these wonderful people, we are that much closer to helping move the needle on promising...

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ONE WEEK LEFT: Beb-e-ssentials Birthday Bash

October 25, 2010 by Victoria Strong

Whew - where did the month go? There is only one week left in October, which means only one week left to be part of Beb-e-ssentials Birthday Bash for Gwendolyn! These fabulous ladies have turned their entire business over to increasing SMA awareness and funding and we are simply blown away by them...

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Calling All Las Vegas Supporters

October 12, 2010 by Victoria Strong

Our super awesome, amazing friends are at it again. This time in Las Vegas!!! And we need your help in spreading the word to all the fine folks in Nevada that they can help end SMA --> THIS SATURDAY!!!

RUMMAGE SALE FOR A CURE

Beginning at 8 am until 3 pm, head on over to Carolyn S. Reedom Elementary...

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Southern California Trike-A-Thon For a Cure!!! 

October 10, 2010 by Victoria Strong

Are you in Southern California? Join us for the first Gwendolyn Strong Foundation Trike-A-Thon. That's right, a Trike-A-Thon. How fun is this? My super awesome and creative friends, Theresa and Adri (whom I've known since riding a trike myself), have organized this fun family event and we love it!

...
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New York Diva Race for Gwendolyn

September 29, 2010 by Victoria Strong

On October 3rd, the day before Gwendolyn's birthday, the fabulous Lauren and the amazing Aunt Moe are teaming up to run the DIVA Half Marathon in honor of Little Miss Diva, Gwendolyn!

I know you know Lauren. She's only the most fabulous person ever. We love Lauren and we admire her dedication to...

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Magda Runs 50 Miles! You Shop. SMA Loses. And 50 Miles of Positivity!

September 18, 2010 by Victoria Strong

I am sure you remember Stephen Taylor and his 100 Miles for Owen? Well, his awesome girlfriend, Magda Cardoso (who truly defines amazingness), is adding her shoes to the ultra marathon trail with a 50 Mile race this weekend! Um, yeah, AMAZING! Magda is compassionate, motivated (obviously),...

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Help SMA Win $20,000 in Samsung Helmet of Hope (For More) Contest

September 08, 2010 by Victoria Strong

We are so excited and it's been hard to keep the secret over the last 24 hours! We had a conference call with the awesome folks at the Jimmie Johnson Foundation yesterday morning -- yes, the reigning 4-time NASCAR Sprint Cup Champion and 3-time Brickyard Winner Jimmie Johnson smile --and there is...

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Gwendolyn’s Birthday Bonanza: $36 for 36 Months

September 07, 2010 by Victoria Strong

Birthday bonanza is beginning! Hold on to your hats!

Can you believe it? Our little girl is turning 3!!! And we are celebrating all month long leading up to the official big day -- October 4th! One month away!!! We are cheerleading all 36 very special months!!! And we hope you will join in!

We are...

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