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Therapy and G’s Awesome Therapists

August 19, 2010 by Victoria Strong

Gwendolyn has therapy every day -- on some days twice. The therapy ranges from stretching to play and sometimes a combination of the two, but all of it allows Gwendolyn to experience things she could not without the help of some very special people.

Therapy for SMA children is a challenge. It's not rehabilitation -- the disease is terminal. It's not strength training -- the disease is degenerative. But therapy is invaluable for Gwendolyn...on so many levels. Therapy helps keep her muscles loose to prevent them from contracting which causes enormous pain. It has allowed her an opportunity to experience movement in a way she can't without assistance. It has provided equipment that allows her to interact in the world in a new way. It's a chance to be challenged in a way that she just won't agree to with mom and dad. And, for us, one of the most important things therapy and her amazing therapists have provided is a time for Gwendolyn to interact and have a special relationship with someone other than her parents. And Gwendolyn values that time so immensely.

She adores her therapists -- adores. She has a different relationship with each of them. And often times I am told to leave the room (literally, she tells me to get out!). They completely understand her subtle cues and unique forms of communication. They are so creative with things to help stimulate her physically and mentally. And they have a wonderful respect and acceptance of who our little girl has become. We feel so very fortunate to have such a sensitive and thoughtful group of people helping us make Gwendolyn's life more full and we know she feels lucky to have them.

We are beyond grateful for you and your help M, K, C, J, and C!

Here is a video from two Mondays ago. She has two therapy sessions that day and really had a fun day.

Talk About It

I just loved watching the butterfly song...I can see how much she loves that game!! angels come in many forms and Gwendolyn's therapists fit that description! Awesome people! be well... Lisa smile
Posted by Lisa Prokopetz on 2010-08-19 07:32:51
Nice G!!!! Loved the butterfly song as well. My guess is next time you video Gwendolyn swinging she'll be doing loop de loops, or at least wanting to do loop de loops. Looks like great fun.
Posted by Beth Pruitt on 2010-08-19 07:56:01
I'm glad to see G is getting lots of physio. I find physio to be one of the essential elements to keep our kids healthy. We do 2 hours every morning including CPT/Beckman Motor Oral Therapy/physio therapy/standing and swinging. All our physio is done while lying on a vibrating mat. Part of physio should be geared towards strengthening the vestibular system and I see some of that happening in G's routine. Great job G and family!!
Posted by Brad Fisher (father to Shira, SMA Type 1, 5 years old) on 2010-08-19 08:12:44
Great job Gwendolyn!! I loved how you played music and hid behind the butterfly. You are doing amazing things and you make so many proud.
Posted by Jennifer Calafiore on 2010-08-19 08:35:36
So glad you have such terrific therapists! It's obvious (only slightly, though!) that Gwendolyn loves them smile
Posted by Helen on 2010-08-19 09:52:25
Me too. I love it when she wanted more play with the butterfly. Good job Gwendolyn
Posted by Jhari on 2010-08-19 16:47:29
Very nice Gwendolyn. I loved watching and hearing you play music, and seeing what you do at your therapy sessions. I go to physical therapy too, but you look like you are having a lot more fun than I do at therapy. I like all the games and songs you get to sing. --Mari
Posted by Mari aka "Thorney" on 2010-08-19 18:37:26
Yay! Love seeing sweet Gwendolyn with the butterfly. My heart is singing. smile
Posted by Holly on 2010-08-19 19:06:33
Wonderful video! I can see why Gwendolyn likes the therapists so much, they are just great with her. Their patience and understanding of her needs is beyond words. Enjoy your day!
Posted by Jillian on 2010-08-20 05:49:57
Absolutely adorable! So glad she has people in here life that take such care to make sure she gets everything she needs!
Posted by Penny on 2010-08-23 20:01:25

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