Publicist ExtraordinaireJuly 17, 2009 by Victoria Strong Raising awareness about SMA is paramount to us, believing that through awareness a cure becomes infinitely more attainable. So, when we embarked on this trip, we knew we wanted and needed to parlay it into coverage of this leading infant killer. But, garnering media attention is not always easy. That is until you get a stellar publicist on the job! We are so pleased and proud that our story and more importantly, SMA, was featured in over 15 newspapers, on four nightly news segments, and in two radio interviews. (Click here to see our press page.) And we have our PR team to thank -- my sister! My super sister, Elizabeth, is unbelievable! Her press release got attention. Her persistence got things done. And her passion to broaden SMA awareness became contagious. Because of her hard work, her willingness to put things on hold and turn her life upside down for us, we know our campaign to raise awareness was a big success. Thousands of new people now know about SMA!!! Love you super publicist EV, super sis, my best friend! You are amazing!!!
Talk About It
Are You An SMA Carrier? Advocating for the Affordable Care Act: Gwendolyn's Story (Video) It Arrived!!! Let the Adventures Begin!
200k for sma news featured gwendolyn strong foundation fundraiser spinal muscular atrophy gwendolyn teamgsf sma tips parenting a child with disabilities sma awareness friends sponsor-a-mile development concerned acts of kindness birthday family hospitalization video chase community giving therapy sma treatment acceleration act good things for gwendolyn holidaysShow More
200k for sma news featured gwendolyn strong foundation fundraiser spinal muscular atrophy gwendolyn teamgsf sma tips parenting a child with disabilities sma awareness friends sponsor-a-mile development concerned acts of kindness birthday family hospitalization video chase community giving therapy sma treatment acceleration act good things for gwendolyn holidays travel doctor g-tube transportation research special outing power chair newly diagnosed uncategorized health insurance 3rd birthday daily care sma carrier screening giveaway photographer adapted toys grief sitting up 2nd birthday unite for the cure clinical trial smaheadlines.com 1st birthday hospice medi-calHide Tags
2017October (3) September (1) April (1) March (1) January (2)
2016December (1) November (1) October (1) September (2) August (2) July (1) June (1) May (1) April (2) February (2) January (4)
2015December (2) November (1) October (2) September (2) August (4) July (3) June (2) May (1) April (2) January (4)
2014November (3) October (3) September (3) August (3) July (3) May (1) April (1) March (5) February (2) January (2)
2013December (2) November (3) October (3) September (3) August (4) July (2) June (4) May (3) April (4) March (3) February (5) January (5)
2012December (3) November (8) October (4) September (5) August (8) July (7) June (8) May (8) April (9) March (7) February (9) January (9)
2011December (9) November (16) October (15) September (14) August (15) July (16) June (13) May (27) April (22) March (21) February (20) January (21)
2010December (19) November (22) October (16) September (23) August (23) July (27) June (24) May (24) April (21) March (26) February (19) January (24)
2009December (21) November (20) October (31) September (25) August (25) July (47) June (44) May (34) April (27) March (35) February (35) January (35)
2008December (37) November (22) October (31) September (20) August (30) July (27) June (18) May (5) April (6) March (3) February (1) January (2)
2007December (7) October (1)