Publicist ExtraordinaireJuly 17, 2009 by Victoria Strong Raising awareness about SMA is paramount to us, believing that through awareness a cure becomes infinitely more attainable. So, when we embarked on this trip, we knew we wanted and needed to parlay it into coverage of this leading infant killer. But, garnering media attention is not always easy. That is until you get a stellar publicist on the job! We are so pleased and proud that our story and more importantly, SMA, was featured in over 15 newspapers, on four nightly news segments, and in two radio interviews. (Click here to see our press page.) And we have our PR team to thank -- my sister! My super sister, Elizabeth, is unbelievable! Her press release got attention. Her persistence got things done. And her passion to broaden SMA awareness became contagious. Because of her hard work, her willingness to put things on hold and turn her life upside down for us, we know our campaign to raise awareness was a big success. Thousands of new people now know about SMA!!! Love you super publicist EV, super sis, my best friend! You are amazing!!!
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Are You An SMA Carrier? Advocating for the Affordable Care Act: Gwendolyn's Story (Video) It Arrived!!! Let the Adventures Begin!
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